CSN Login
Members Online: 11

As my cancer journey unfolds.....

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010
Few weeks back a lymph node was found  on my neck, and gave it a few days to see if it would change...got a bit smaller, but still uncomfortable to the touch.  Called GYN oncologist whom suggested I see my PCP, whom didn't think it was thyroid.  From there I was directed to another specialist, ENT (ear, nose & throat) doc whom had concern.  He told me this was a supraclavicular lymph node and part of the path with many cancers.  After reviewing my past CT scans of chest to pelvic area and one to the lungs, noticed the past nodes on lungs, suggested we proceed with a PET scan.
 
Met with ENT yesterday for results.  With a PET everything is rated on metastases according to type of rating under SUV numbering system.  Want anything under SUV 2.5 or so and the supraclavicular lymph node was shown at CT in January (didn't show up on ratings as not truly part of the area checking, but was on side of scan) grew in size and the SUV 8.2...alarms here!!!  Doc says yes cancer....argh~  
 
Plus showed all the lung nodes from July CT scan that I was alarmed before, aren't any alarms now....whew!  As a few have said, many times simply "junk" in the lungs which will be monitored. Do find some spots with higher SUV for 1 on chest between lungs and few in abdominal cavity.  All of these are most likely the same cancer as in the supraclavicular node in neck.  Apparently fluids travel thru lympj nodes from abdominal area and travels to the supraclavicular and goes back down thru the body.  In my case sat there for a bit and got larger and created more cancer cells.  He tells me this neck node is the size of silver dollar...yikes!  
 
Since he isn't expert with my female GYN cancer, wanted to confer with my oncologist Dr. Easley. Both spoke while I was waiting in the exam room, and GYN ONCOL recommended to do a biopsy of the supraclavicular node to see what's going on and type of cancer cells.  All of these spots should be the same cancer and most likely treated with chemo.  They'll send the cancer cell biopsy to a company which tests it, called an ASSAY, and recommends type of cancer and type of chemo to administer.    
 
 
Think I covered it all, but at this juncture they want to confirm type of cancer and then know how to treat.  I can only assume chemo is one way of treating as even Dr. mentioned there could be some "low flyers with cancer" undetected to the PET/CT s cans.  Get them all before they begin to get larger.  Also, all of these spots are LYMPH NODES....nothing on ORGANS!!  This is good news as we all know of a few others whom had spots on lungs, kidneys, brain....how long did they survive!!
 
I've had a great run with 4 yrs of NED, and now picking myself up and getting ready to fight.  I'll make some changes such as using a naturopathic oncologist, as apparently I'm not good at keeping my terrain strong...let that go to a specialist.  
 
What I can relay to anyone else on these boards, don't get in a comfortable place thinking cancer can't come back, as it can.  Do know any unknowns on the body such as enlarged lymph nodes, definitely must be checked out.  Wouldn't you rather get to doc and find out that it's nothing, vs. filling yourself with worry, or if cancer, catch it at the beginning???  I did listen to my body and made the call thru the doc maze until I found the answer.  Not what I wanted to hear, but at least we know what we're dealing with today.
 
I'm a fighter and have no plans of going anywhere off this planet.  Just another part of my journey and luckily this is treatable and do-able.
 
Life goes on and so will I....
 
Hugs to all the warriors...don't ever give up~
Jan 
 
 
fuzzytrouble's picture
fuzzytrouble
Posts: 210
Joined: Feb 2009

Hi Jazzy, I agree with you on not getting comfortable, I am sending you hugs from Oregon and we will keep fighting as long as we can. 

laura25's picture
laura25
Posts: 160
Joined: Mar 2011

Hi Jan,

I just read your post and I'm so so sorry.  Going for the biopsy will tell you for sure... I will hold out and not say cancer until the report comes back that it is.  You are a fighter,  you are determined, you are a warrior.  We all have your back on this board and support you anyway you need. 

With all my love and support,

Laura 

Ro10's picture
Ro10
Posts: 1473
Joined: Jan 2009

When my lymph nodes enlarge usually one of them is a supraclavicular node.  Mine have never gotten as big as yours is.  But they have always responded to chemo.  I have never had it biopsied either.  I hope you get a plan in place because I know you will fight this the best you can.  I too am always thankful The cancer has stayed in the lymph nodes.

In Ocober I am coming up on the five year anniversary of hearing that terrifying "C" word.  I too plan to continue to fight this beast, and continue to enjoy each day. 

Jan, hang in there and take it a day at a time.  You remain in my thoughts and prayers.  In peace and caring.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 550
Joined: Mar 2013

Jan, I am so sorry.  You have been so helpful to me and I hate to hear that you have to go through more treatment. 

You are right though, as Winston Churchill said: Never, ever, ever, ever, ever, ever give up!

Keep us posted and know that you are in my prayers, as I know of so many others.

ConnieSW's picture
ConnieSW
Posts: 623
Joined: Jun 2012

You hadn't been posting as you usually do so you have been in my thoughts.  I chose to hope you were off on vacation.  I'm so sorry that wasn't the case.  Your fighting spirit and courage will stand you in good stead.  I hope the plan of treatment comes together quickly so you can get on with getting into remission.  I send you my love.

Connie

cheerful
Posts: 127
Joined: Apr 2011

Hi Jan:

 

  I am so sorry to hear of your latest post regarding the lymph node and that you will need chemo.  It's good that you kept on top of this although like you said it was not what you wanted to hear.  I am glad to hear that it is treatable and doable.  

  As far as cancer goes, none of us can ever let our guards down as it is always in the back of one's mind.  All any of us can do is hope for the best.

  I will keep you in my thoughts and prayers, Jan and wishing you all the best.  Please keep us posted.

Hugs,

Cheerful

a/k/a Jane

 

  

Kathy G.'s picture
Kathy G.
Posts: 116
Joined: Dec 2012

Hi Jan!

I was really flabbergasted to read your post! And SO sorry you have to go through the waiting, worrying, testing, etc. That is always the worst part.

I am prayerful that whatever this turns out to be that minimal treatment is necessary to get you back on course.

I have always admired your committment to your recovery, these boards and helping others, and the vast knowledge that you have shared.

Please don't be too hard on yourself...your comment on your terrain kinda shocked me given how much you know about the link between good nutrition and cancer and your history of taking care of yourself this way and with exercise.

While I believe diet, exercise and lifestyle plays a big part in if we get seriously ill and how seriously ill we get I am really leaning towards thinking genetics and enviromental factors beyond our control play a huge part in disease. So many ladies on here made herculean changes to their lifestyles to avoid reoccurences, and still they happen.

My thoughts and prayers go out to you.

Please keep us posted.

Kathy

Double Whammy's picture
Double Whammy
Posts: 2333
Joined: Jun 2010

I'm so sorry that you're going to have to battle the beast again, but you will be armed with good information and on the right course.  And, because it's been 4 years, you're strong enough to do it!  I just hate that this is happening.

Suzanne

debrajo's picture
debrajo
Posts: 792
Joined: Sep 2011

As we say in Texas,|" this is not your first rodeo'. You have a lot of the fear factor taken out of the equasion and you certainly know howw to fight!  You know we all look up to you for strenght so I KNOW you are not going anywhere! I personaly will NOT allow it.  Just look at your 4 years of NED as a practice run...this time you are going for the 100 % cure!  I am here,just give me a holler.  Best, Debra(I gotta have someone to gripe to!) LOL

Sisters three's picture
Sisters three
Posts: 157
Joined: Nov 2012

 

I continue to learn so much from your postings. Thank you for explaining the PET scan. I'm sorry your back into this. I'm sure that your doctor will beat it back again. I love hearing about the naturopath 

coming into play too. Two teams working is much better than one. Hang in there and keep us posted on what both teams are going to do to get you back to NED. Your so strong and active I believe the cancer doesn't have a chance against you! 

 

 

I also have several lung nodules that are being watched and at first was worried sick over them. Doc decided to wait six months for a recheck due to the junk possibility. I wondered how I could sit back just worrying. Then the husband had a heart attack and a 15 hour open heart surgery that nearly killed him. He was in ICU for three weeks, after 34 total days in the hospital he got home last week. It will be another several weeks of recovery before he is back on his feet. During this time the refrigerator went out as did the hot water heater. Yesterday I had to pull the toilet up and replace the wax seal under it. It's funny I prayed to have a diversion from worry, ummm God not this kind!!!! How about winning the lottery or finding buried gold when I replaced the tree the storm brought down just before the heart attack!

Let this be a lesson to us all, DON'T PRAY FOR DIVERSIONS! 

Now that we owe our souls to the hospital, there is no way cancer can take me till I pay off this bill.

I think I just bought myself 10 years!!!!

Lisa

 

I believe
Posts: 38
Joined: Oct 2012

Jan,

Let us not jump into conclusions until you recieve the biopsy results. You recall the lesion of 4.5 cm found in CT scan on my mom's liver and then  it turned out to be nothing!

What we can do from now till you recieve the biopsy results is pray and pray and pray....

You are a success stroy for all of us and a great fighter

Keeping you in my prayers

 

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

Jan,

I am just reading your post. I know you are goingt to win this battle. Please keep us poted. As always, you are in my prayers.

Your friend, Luisa

sunflash's picture
sunflash
Posts: 158
Joined: Aug 2011

Dear Jan,

I'm so sorry to hear your news and that you're facing more chemo. But we all know how much of a fighter you are, and I'm sure you're going to kick this beast back to the curb where it belongs.

Thank God it's confined to the nodes and not on any organs. You've caught it early and have every reason to believe this can be conquered. We're here for you every step of the way.

Here's to fighting......beating....and a long, long dance again with our coveted partner, NED.

Hugs!

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

I do feel the love and prayers...coming in very strong today!  Definitely thought I had this little devil beat, but must say I'm doing okay.  ENT mentioned at first appt prior to PET, what he thought it was, I started the "oh no, not me now" thinking.  Felt it was a week from hell and then the PET, 2 days later the results...and here I am today.  I've been raised by 2 very strong-willed and determined parents, and guessing that upbringing has brought me lots of tools to fight.  

Always been a "mind over matter" thinker and today I'm really into the mind working and pushing me into the good enery and positive vibes.  If anyone has read or watched the book/CD called "The Secret", grab a copy and view/read...excellent!!  Speaks about the subject of LAW OF ATTRACTION.  We have to keep our minds centered in a positive light, thinking of the outcome we want, not the negatives.  We attract what we think.....so I'm visualizing my good health back after the treatments.  Bingo!!!

The crazy part of this supraclavicular lymph node, it was on the side of the CT scan (chest to pelvic areas) in January '13.  Guessing the radiologist didn't see or wasn't part of the area he was to check and didn't write up...so off we went to today and it has doubled in size.  Wonder what would have happened if caught in January?  Can't help but wonder, but we all know water under the bridge and on with life.

Cancer is not a sentence, it's a word!!!

Hugs to all~~Kiss

Jan

 

 

.

 

 

 

txtrisha55's picture
txtrisha55
Posts: 429
Joined: Apr 2011

Keep fighting and keep your spirits up.  As you said never give up.  It makes me cry hearing your news.  Praying for you and your family along with all the other warriors here.  Keep us in  the loop as you learn more and know that we are here for you.

trish

Shell bug's picture
Shell bug
Posts: 68
Joined: Nov 2011

I am so sorry! I have been so inspired by your positive attitude since I joined the board in 2011. You always have such a great way to look at things, and I can tell that hasn't changed even with this setback. I am glad that you have had four years to recover and I know you will be successful in this fight.

Sending prayers,

Rachelle

 

paris11
Posts: 132
Joined: Oct 2010

Jan,

You are an inspiration.  My positive thoughts are with you.  I start doxil next week for my third recurrence.  I gain courage from your energy.

Thank you.

Connie

HellieC's picture
HellieC
Posts: 458
Joined: Nov 2010

Sorry to hear this, Jan.  Four years is a long time - I thought you had this beast beat for good.  But they do say that the longer the time between original treatment and recurrence, the better in terms of response to treatment. 

So, it's back in the ring, for you.  Head up, armour on - you will knock this back again.  The warriorettes on this board are all fighting with you. 

Hope you get a treatment plan in place really soon.

Love and positive vibes winging their way to you from the UK.
Helen

Double Whammy's picture
Double Whammy
Posts: 2333
Joined: Jun 2010

Good to read and feel your attitude, Jan.  We will use that to help you move forward.  I don't see when you will have biopsy and results.  When is all of that happening? 

Sending lots of good mojo nad more positive toughts your way.

Suzanne

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Yes attitude has so much to do with getting us to the good part of the journey!!!  Mind over body attitude is always my philosophy.

Had pre-op testing yesterday...not bad but now heart rate is up and so is blood pressure.  Since TSH for thyroid was higher might be some of side affects if thyroid not functioning at 100%....gee!!  Next Monday Sept 9th is the biopsy at out-patient side of hospital.  Not a procedure done at doc office as this node is close to nerves and jugular...why would any of this be easy...argh~  These results go to the facility in Cali who does the assay (is that how it's spelled) to test for proper chemo drug to use plus oncologist wants to know type of cells in this node.  

I've got happy thoughts to know this is just another side step in my journey.  God wants to make me work a bit more for the  life time NED.....I do see it~

Thanks for everyones kind thoughts...

Jan

 

 

 

txtrisha55's picture
txtrisha55
Posts: 429
Joined: Apr 2011

I will keep you in my thoughts and prayers till all the test come back and even though the results and plan of action.  Remember the saying that God only gives us what we can handle and then is by our sides to hold us up and help us though it.  Remember Footprints in the sand poem.

You are such a strong woman with a positive attitude and such a giving spirit to all of us on this site.  You make me a stronger fighter for my journey.  Thanks for all you have shared with me over the course of my journey and giving you all my positive energy through my prayers. ((((Jan)))Praying for you. trish

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Thanks for your kindness too!  I believe in God and know he has a path for all of us, good or bad in our minds, but HIS PATH!!  

After I was NED for 3 yrs I asked my oncologist what my chances are of staying away from any more cancer -- his response:  It's in the hands of the man upstairs...all the statistics and data aren't what will show our journey, but his direction for us.

You've been NED for what 2 years now?  Keep doing whatever you doing, but remember ENJOY EACH DAY!!!!

Best to you,

Jan

 

Tresia23's picture
Tresia23
Posts: 75
Joined: Dec 2010

Hi Jan, I am sorry to hear your news too and wish that you be peaceful and safe while you go through this journey. I really agree with Kathy that you must not be hard on yourself about lifestyle. I think it is more about genetics and environment too. We can do our best and be positive as you always seem to be on this discussion board, but in the end we do not have total control. Whatever you believe in, that is the place to take refuge when the journey is rough.

Ro's kind comments were good to hear too. Five years on. That is really encouraging.

Finally yes we do need to remember to ENJOY EACH DAY and not worry TOO much about what has not happened. You are very much in our thoughts right now.

Georgia

laura25's picture
laura25
Posts: 160
Joined: Mar 2011

Hi Jan,

I had to have a lymph node biopsy done as an outpatient also.  Mine was a para aortic lymph node and it was behind my kidney right next to the aorta ...so it was a tricky procedure also.  Just wanted to let you know I didn't feel any pain and was back to myself by the time I got to the hospital parking lot.  I must say the drugs to relax me before the biopsy were fantastic!  

 

 

txtrisha55's picture
txtrisha55
Posts: 429
Joined: Apr 2011

I was thinking about all day long yesterday sending postive thoughts to you.  How did it go and when will you get the results back? trish

laura25's picture
laura25
Posts: 160
Joined: Mar 2011

I'm also wishing you well and hope all went smoothly.  Looking forward to hearing from you. 

Kaleena's picture
Kaleena
Posts: 1213
Joined: Nov 2009

Jan:

I have not been on the boards too much lately and just saw your post.   You are a fighter and will continue to do so!    You are also so right about the positive thinking.  I am sorry you have to go through all of this.  I am sending you my positive thoughts and wishes.   Your posts have always encouraged me to continue to think positive and still do!

I wish I could relay my words in a more eloquent way, but I am lacking in that area - lol.  But please know I am thinking of you!

Sending you comforting hugs.

 

Kathy

ConnieSW's picture
ConnieSW
Posts: 623
Joined: Jun 2012

I, too, spent yesterday thinking about you, jan.  hope the biopsy went well.  Any idea how long the assay part takes.  Waiting is so hard but I guesswe've  all had lots of practice at that.  

 

What did your daughter decide to do about school and her major?

nempark
Posts: 596
Joined: Apr 2010

Jan, I am at a lost for words.  It's 10 months since my beautiful daughter passed and I am still in deep grief and disbelief.  I am now 4 years NED with the same disease as yours and I am quite aware that cancer can come back. You fought it with dignity before and you can do it again ten fold this time and have many years ahead of you NED.

 

At this time, I can only offer you a Scripture that really helps me.

 

(Isaiah 41:10) Do not be afraid, for I am with you. Do not gaze about, for I am your God. I will fortify you. I will really help you. I will really keep fast hold of you with my right hand of righteousness.’

 

  Jan, I feel and know exactly how you are feeling now.  You are not alone! My chest pains for this journey we have all entered, but God will give us peace and will help us to endure.  

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Hi All,

Biopsy was successfully completed early on Monday and finally getting back to a normal life...gee!  The worst part, I couldn't take any aspirin/anti-inflammatory over the counter meds for my back issues for 7 days prior to procedure (diagnosed 1.5 yrs ago with bulging disk and feel it's starting to aggrivate me a bit....or could it be stress, ya think I've been under some?).  I was in a world of hurt until Monday when the doc loaded me up with meds for procedure, then after...argh!  

Doc took a "chunk" out of supraclavicular lymph node and sent to company in CA for assay testing, plus tell us type of cancer.  The ENT who did the procedure  will not be one setting me up for treatments, that'll go back to my original GYN/ONCOLOGIST whom I saw briefly before the biopsy.  ONCOL will most likely not wait for assay as it could take up to 4 weeks as they apparently grow cultures and take a while, so get me started on something which he feels is best.  If it's the same cancer from '09, bet he'll use same drugs -- carboplatin/taxol.  

Positive of all this, I've had a good 4 years to get my immune system working strong to fight, plus it's encapsulated in only the lymph system which was with original diagnosis.  

Have brought on board some more guidance with a naturopath-oncologist.  I feel so strongly about keeping our terrains strong, so time to gather the forces to win this next round.  Didn't want to spend the money for this type of specialist, but now is time and gives me thoughts of being more in control.  Putting all the eggs in the basket of the medical community scares me like hell.  

I do believe in the higher power, mine being God.  To the point of "take over God" as I'll let you do your good work and get me thru this journey and come out a healthier person then when I started.

One thing I want to stress to all you warriorettes, listen to your body and if you feel something isn't right or in my case, had some hard spot show up on my neck, check it out.  DO NOT ASSUME IT'S OKAY AND PUT ONE'S HEAD IN THE SAND.  Even with a CT of chest to pelvic area it wasn't on the written part of the results.  We caught this lymph node when I visited the ENT who noticed it on the picture part of the CT scan.  It really wasn't part of the radiologist area to analyze, but if he/she was really pro-active it would have been on the written part.  In January the lymph node was 1.5 cm and increased to 2 cm in August on PET.  Not a huge increase but what if this was found in January?  

Water under the bridge, but we all need to listen to our bodies and if ANYTHING UNKNOWN POPS UP OR WE HAVE CONCERNS, at least call the doc.  It took me a while to go thru the chain of specialists, but have found what we needed and now get going and correct it.   Can't stress this enough as I've read many people have some lymph nodes which are inflammed or swollen, why guess it's just a cold ....call the doc and let them decide.

That's all I can report today, and will keep everyone abreast of the next steps.  I'm a very strong-willed little gal, so don't expect me to be going anywhere, but coming out the other end of this journey a lot healthier!!!

Anyone have experience they can share of cancer simply in the lymph system?  First time or recurrence?...curious!

Onward and upward we continue to fight....  Thanks to all whom have expressed their concerns and give me the "AT A GIRL" push...love it all~

Big hugs to all,

Jan

 

cheerful
Posts: 127
Joined: Apr 2011

Hi Jan:

   I am glad to hear that your biopsy is complete and that is done and overwith - you must be so relieved!  

   I had a biopsy done of my thyroid gland a couple of times through the years that is nodules and it is not an easy thing to go through. I ended up having just about all of my thyroid out back in October of 2004 - it was NOT cancer though thankfully and found to be Benign - just a goiter and I had a nodule that eventually would have caused swallowing problems and rather wait down the road, my endo doctor said to me to have my thryoid removed then which I did.  I spent overnight in the hospital and came home the next day. At the time I was working full time so I ended up being out of work about 7 days - and when I went back to work I probably could have used more time off, but got through working okay. I had excellent health insurance at the time and it paid for everything with my hospital stay which was great and one of the anesthesiologists did chip one of my teeth during surgery so the anesthesiologist group ended up paying for all of it and I had to see my dentist afterwards, but it was just another aggravation I had to go through, and my dentist fixed my tooth.  

  I have been on Synthroid for a number of years even before my surgery and will obviously have to be on this medication for the rest of my life since I basically have very little thyroid.  I still see my endo doctor once or twice a year.  He is a top endo doctor in my area so I am in very good hands.

   I wish you all the best going ahead with chemo - just be sure to get plenty of rest the day after chemo which I know you will. Good luck with all your treatments.

   Glad to hear that you are strong willed and that you will fight it with everything you have - you will get through it very well. I will pray for you and keep you in my thoughts.

  I had minimal effects with the chemo and actually made out pretty well going through it although I did need to have a Neulasta shot and a blood transfusion after my 5th treatment as my platelets were very low, but I actually felt much better after having it done.

  I guess with not being able to take your inflammatory medicine before your biopsy had to be really hard to get through.  You have been under stress for sure, but now it is over and behind you.

 

Hugs,

Cheerful

a/k/a Jane

  

Ro10's picture
Ro10
Posts: 1473
Joined: Jan 2009

Glad you are getting back to " normal".  I can understand the discomfort you must of had not being able to take anything for your back.  I was off my medicines for 5 days for my colonoscopy and my joints really knew the difference.  

I too think they will probably put you back on taxol/ Carbo for your treatment.  My two recurrences have involved multiple lymph nodes.  My initial diagnosis showed 5 of 25 lymph nodes positive for the UPSC, also.  I was put on the taxol/Carbo initially and again  for the first recurrence.  After 3 more Carbo, after the initial 6 Carbo, I had a severe reaction to the Carbo and was switched to Cisplatin.  Many people react to Carbo after 9 doses.  My second recurrence I got taxol/cisplatin again.  That is the plan when I have to have treatment again.

My recurrences show multiple enlarged lymph nodes in the chest and abdomen.  The supraclavicular and para aortic are always mentioned.  So I could not have the " cyber-knife" done.  If only your one lymph node is enlarged could you have the cyber-knife done instead of chemo?   

is the CA-125 a marker for you?  Is it elevated at all?  

I am glad you remain positive and are ready to fight this the best you can.  Will be interested in what your neuropath has to suggest for you.  You seem to be so pro-active already in keeping "your terrain" very strong.  You are such a positive role model.   You continue to encourage all of us.   I too believe God has a plan for us.  We sure don't know what his plan is, but he definitely has one for us.  

Good luck with what ever your plan is.  My doctors tell me the longer I can be off chemo, the stronger my body will be and the better the chemo will work.  Since you have been off chemo for 4 years the chemo should work well for you, again.

you remain in my prayers.  In peace and caring.

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Today I can breath in deep and realize I'm getting my footing back on the ground...gee!  

Yes I was thinking doc would do the same protocol with carbo/taxol.  Since I've got 3 other enlarged lymph nodes in body, rather doublt if the cyberknife would work, but sure is a new concept that's very successful from my reading.  Also, can't imagine doing radiation since it's in 3 different parts of the body.  

Yes CA125 is good marker for me.  It had gone up in January '13 from 5 to 11, then next 6-month it was 17...so we saw a pattern.  The Jan. CT showed the "ground-glass" on the scan, and only advised to watch as very, very small.  Then CT of lung in July showed the various spots on both lungs, and as well very small and none of these even showed up or lite up on the PET scan early August.  This stuff really gets complicated as some scans show things and others don't.  We could spend a jillion bucks doing scans and have so many "unknowns" that have no meaning to cancer, but it only takes that one that lights up like a Christmas tree, which was the supraclavicular lymph node.  

Did you have spots in abdominal cavity when the supraclavicular was lite up?  Come to find that's the path as fluids go from abdominal cavity to the supraclavicular area and then down thru the body.  This was a huge red flag for the ENT, and knew he had to check further with the PET.   

Pro-active, yes I'm always like this as don't like to leave things in the hands of others when entail my body and life.  Feel I have more control when I'm moving to help keep my body healthy.  Not easy, but quite intersting.  Sorta like our bodies are chemical labs...more about what we put in them and what see as outcome.  Fascinating!!

I do remember our dear Mary Ann had the supraclavicular involvement as well.  Sure do miss that gal as she was a trooper, never-ever giving up.

Take care of yourself and keep strong....

Jan

 

 

laura25's picture
laura25
Posts: 160
Joined: Mar 2011

Hi Jan,

Just checking in to see how you are doing... have you gotten any news regarding treatment?  You are in my thoughts...

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network