Aug 30, 2013 - 3:06 pm
Few weeks back a lymph node was found on my neck, and gave it a few days to see if it would change...got a bit smaller, but still uncomfortable to the touch. Called GYN oncologist whom suggested I see my PCP, whom didn't think it was thyroid. From there I was directed to another specialist, ENT (ear, nose & throat) doc whom had concern. He told me this was a supraclavicular lymph node and part of the path with many cancers. After reviewing my past CT scans of chest to pelvic area and one to the lungs, noticed the past nodes on lungs, suggested we proceed with a PET scan.
Met with ENT yesterday for results. With a PET everything is rated on metastases according to type of rating under SUV numbering system. Want anything under SUV 2.5 or so and the supraclavicular lymph node was shown at CT in January (didn't show up on ratings as not truly part of the area checking, but was on side of scan) grew in size and the SUV 8.2...alarms here!!! Doc says yes cancer....argh~
Plus showed all the lung nodes from July CT scan that I was alarmed before, aren't any alarms now....whew! As a few have said, many times simply "junk" in the lungs which will be monitored. Do find some spots with higher SUV for 1 on chest between lungs and few in abdominal cavity. All of these are most likely the same cancer as in the supraclavicular node in neck. Apparently fluids travel thru lympj nodes from abdominal area and travels to the supraclavicular and goes back down thru the body. In my case sat there for a bit and got larger and created more cancer cells. He tells me this neck node is the size of silver dollar...yikes!
Since he isn't expert with my female GYN cancer, wanted to confer with my oncologist Dr. Easley. Both spoke while I was waiting in the exam room, and GYN ONCOL recommended to do a biopsy of the supraclavicular node to see what's going on and type of cancer cells. All of these spots should be the same cancer and most likely treated with chemo. They'll send the cancer cell biopsy to a company which tests it, called an ASSAY, and recommends type of cancer and type of chemo to administer.
Think I covered it all, but at this juncture they want to confirm type of cancer and then know how to treat. I can only assume chemo is one way of treating as even Dr. mentioned there could be some "low flyers with cancer" undetected to the PET/CT s cans. Get them all before they begin to get larger. Also, all of these spots are LYMPH NODES....nothing on ORGANS!! This is good news as we all know of a few others whom had spots on lungs, kidneys, brain....how long did they survive!!
I've had a great run with 4 yrs of NED, and now picking myself up and getting ready to fight. I'll make some changes such as using a naturopathic oncologist, as apparently I'm not good at keeping my terrain strong...let that go to a specialist.
What I can relay to anyone else on these boards, don't get in a comfortable place thinking cancer can't come back, as it can. Do know any unknowns on the body such as enlarged lymph nodes, definitely must be checked out. Wouldn't you rather get to doc and find out that it's nothing, vs. filling yourself with worry, or if cancer, catch it at the beginning??? I did listen to my body and made the call thru the doc maze until I found the answer. Not what I wanted to hear, but at least we know what we're dealing with today.
I'm a fighter and have no plans of going anywhere off this planet. Just another part of my journey and luckily this is treatable and do-able.
Life goes on and so will I....
Hugs to all the warriors...don't ever give up~