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PhotoDynamic Therapy Photos

Skiffin16's picture
Skiffin16
Posts: 8052
Joined: Sep 2009

Well as mentioned from a previous post..., had the procedure Tuesday.

First they scrub your face with Acetone (nail polish remover), then alcohol..., next they apply a photosensitive mecication and rub it in good... Next they sent me to the lobby for an hour wearing a big floppy hat....

Next the put googles (like swim goggles) on me, and sit me down in front of a wrap around light source (blue light, though it looked yellow).

Oh, and then she says, "well this is going to feel like 1, 000 fire ants stinging your face"...., hmmm great. Then 16+ minutes of getting zapped...

Man, felt like a blow torch frying my face...

Day One

r1

Day Two

r2

Day Three

r3

My follow-up yesterday, she says all looks well, LOL... She will see me in two months for a follow-up....

Oh, and I can return to my "normal" activities.., she obviously doesn't know I'm abi-normal.

So anyways, having fun back at work today.....

No fishing this week-end for me anyways.

Holiday week-ends are only for sitting at the ramp in the shade with a cooler of beer, watching all of the crazies trying to back their trailers and boats into the water, for their annual once or twice a year boating ventures...

BTW, I do have more than one tank top, but this is my soft comfy one, and I wanted to wear it..., LOL.

Best,

JG - AKA ~ Rocky Racc.oon

KTeacher
Posts: 874
Joined: Jan 2011

Does it hurt as much as it looks like it hurts?  Do you get to put some cream on it?  Thank you for sharing, I'm not sure that I am up to this one.

phrannie51's picture
phrannie51
Posts: 3594
Joined: Mar 2012

Ummmmm.....Rocky.....When you first brought this up it sounded interesting....I mean photodynamic has kind of a nice (benevelent) ring to it.....but a 1000 fire ant stings???  How long does your face stay red?

donfoo's picture
donfoo
Posts: 1143
Joined: Dec 2012

Dude,

That is going to be the biggest sunburn in your life. I really want to see the pics of all that skin hanging off your face, like a dang lizard molting. lol 

eat a browine or two for the pain! don

jim and i's picture
jim and i
Posts: 1556
Joined: May 2011

Lobster comes to mind:) Just think, when it is all over with you will have a face as smooth as a baby's bottom.

Debbie

debbiejeanne's picture
debbiejeanne
Posts: 2217
Joined: Jan 2010

ooowwwwww!!!!  i'm sorry u have to go thru this.  i'd be too scared!    me and pain don't get along...lol.  seems like there would b a better/easier way.  i hope u r not n pain too long.  Cool  have 2 wear sun glasses b/c u r shining...lol.

dj

fishmanpa's picture
fishmanpa
Posts: 1096
Joined: Jan 2013

John,

That seems almost counterproductive. A procedure to eliminate areas that could turn cancerous on your skin by basically burning the crap out of your skin?! But I guess if it works..... although give me the freeze and scrape method over 1000 fire ants stinging my face anyday!

"T"

 

CivilMatt's picture
CivilMatt
Posts: 2802
Joined: May 2012

John (or whoever you are),

So this is because you are entering the witness protection program or did you fall asleep in the sun while fishing?

I read up on the procedure and it is a trip.  I haven’t shown signs of skin problems yet, do you think it is due to your outside Florida life style, it surely must be more than a precaution.

Burn baby burn,

Matt

longtermsurvivor's picture
longtermsurvivor
Posts: 1755
Joined: Mar 2010

That's what my face looked like on erbitux.  I never  got much in the way of zits, just looked and felt like the worst sunburn imaginable. 

Hondo's picture
Hondo
Posts: 5601
Joined: Apr 2009

Will it improve on looks if so moreover I am headed your way. Looks to me more like a very bad sunburn then any therapy. If you can use some raw aloe to help cool it down and make your face heal faster. Sometimes I take a bath with it rubbing it into my skin and just damp drying it off.

Hope and pray it works for you

Hondo

Skiffin16's picture
Skiffin16
Posts: 8052
Joined: Sep 2009

Here's my day four evening peeler crab photo...

d3e

Actually it doesn't hurt as much as it looks, as long as I'm not in the sun... It's not like a sunburn that hurts all of the time and is hot.

This only has some pain when I'm in the sun, I presume the photosensitive meds haven't completely worn off. That feels more like some sticking an ice pick in your face in different spots, LOL...

Peeling is starting, so I'm sure I should be good to go in a few days.

JG

Grandmax4's picture
Grandmax4
Posts: 576
Joined: Dec 2011

somehow, I missed your post about this treatment..I about freaked when I opened up this post and saw your face.. my heart is still thumping, glad you elected to have this torture

Duggie88's picture
Duggie88
Posts: 515
Joined: Feb 2010

Thinking maybe I should have this done so we look like twins when we meet for coffee next weekend. We could really freak people out by telling them  a real good once upon a time story. Kinda like living up to the abi-normal. Nothing to abi, I don't know any judges down there and I won't have alot of bail money.

Anyway, I hope it all works out, almost like a radiation repeat. You gotta get burned in order to get better.

If you're giving up fishing this weekend to watch the show, thinking you will want to have at it next weekend, keep in mind I can meet early morning since I am ussually up early. Just a thought.

Take care and enjoy the holiday

      Jeff

Skiffin16's picture
Skiffin16
Posts: 8052
Joined: Sep 2009

Are you up for some fishing...., or just saying, LOL...

~JG

hwt's picture
hwt
Posts: 1816
Joined: Jun 2012

Looks painfulCry

TracyLynn72's picture
TracyLynn72
Posts: 634
Joined: May 2013

Ouch!  That makes me want to grab the aloe gel and pour it over your head ;)  

Skiffin16's picture
Skiffin16
Posts: 8052
Joined: Sep 2009

Not really painful, just during the first sizteen minutes under the light.

Now it's just a matter of the old skin peeling off. But it's not like a sunburn where your skin feels hot and painful.

 

Aloe, LOL...

I'm not sure if I'll ever get the nerve to try that again... When I was in treatment getting daily rads, and the daily amifostine injections. I tried aloe (the plant), to rub the gel on my radiation burnt skin (that looked similar to now).

Anyways the last few days of amifostine I got sick as a dog, temperature would drop to 96, then shoot to 102.7. But it hadn't happened until just after I tried the aloe.

Eventually in a day or so we discovered it was the amifostine building up I guess and I stopped the last few injections.

But now just the thought of aloe, is like when you eat something and it makes you sick..., just the thought makes you qweezy.

JG

hwt's picture
hwt
Posts: 1816
Joined: Jun 2012

You mean like when I took cottage cheese and cling peaches to my 1st chemo tx for lunch and now everytime you mention those darn peaches, I get qweezyEmbarassed 

fishmanpa's picture
fishmanpa
Posts: 1096
Joined: Jan 2013

It's funny you mention your aversion to aloe. There are many things that I just can't stand the thought of since this whole thing started. Obviously it's connecting the unpleasentness of cancer and treatment. The smell of "Special Care Cream" just makes me qweezy. Certain foods, drinks, products, smells and even places do the same thing. It's not a manic thing by any means but still.... yuck!

"T"

phrannie51's picture
phrannie51
Posts: 3594
Joined: Mar 2012

the nose is the gateway to deja-vu......I cannot stand the smell of rubbing alcohol....it didn't bother me at all when I started treatment, but now everytime I go get my port flushed, I keep an eye on the bathroom (hoping it isn't occupied).  Laughing 

p

alligatorpointer's picture
alligatorpointer
Posts: 130
Joined: Jul 2012

P ... your comment "the nose is the gateway to deja-vu" is the perfect way to describe it !  Fortunately, the deja-vu can sometimes be good stuff.  For instance, the smell of chicken-n-dumplings cooking always takes me back to my grandmother's kitchen and happy childhood memories.  That gateway is probably mounted on hinges that last forever.

Skiffin16's picture
Skiffin16
Posts: 8052
Joined: Sep 2009

How's the fishin..., any Reds or Poms action lately..., flatties?

JG

alligatorpointer's picture
alligatorpointer
Posts: 130
Joined: Jul 2012

Sorry, John, but I am a failure as a source of vicarious fishing stories while you have to stay out of the sun.  I caught one decent sized whiting yesterday and it cost me hours of sweating in the heat on the beach while swatting dog flies.  Nothing else biting but hardheads and shark.   I am soooooo ready for some cooler autumn weather.  Loved your photodynamic therapy pics ... you are going to be movie-star handsome after you heal. Glad scorchedness is not painful and will soon be replaced by smoothness.  Maybe you will look so good that the fish won't be able to resist your charming countenance as you gaze into the water.  Cool

Skiffin16's picture
Skiffin16
Posts: 8052
Joined: Sep 2009

LOL....

Definitely, I'm not sure if they use alcohol in the flush or what...

I'm not even sure if I actually smelt it or tasted it...

But when they flushed my port, I immediately either smelled or tasted alcohol....

 

Unfortunately it wasn't Corona...., but then again, maybe a good thing it wasn't... I might not like it (Corona) nearly as well as I do now..., LOL.

 

JG

TracyLynn72's picture
TracyLynn72
Posts: 634
Joined: May 2013

Didn't mean to make you queasy!  That will now be known as the "a-word"! LOL

 

I'll retract and say....Ouch!  Makes me want to pour Noxema over your head! haha

 

I get queasy when I have to go back into the rads office.  It smells very strange in there.  It's like I can SMELL the radiation and it makes me sick.  That and the smell of Ensure.  Gosh...just seeing a bottle of it makes me want to puke. 

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