Aug 28, 2013 - 10:52 am
Hi! I was recently diagnosed with UPSC and am 4 weeks post radical hysterectomy. My pre-op CTs were negative as we're all the lymph nodes, and other biopsies done at surgery. I had had a D&C and polyp removal 1 month prior to hysterectomy which established the diagnosis. Originally my surgeon interpreted the research for my stage of the disease as not requiring additional therapy, but he re- read the paper while preparing to present me at Tumor Board and called me last Friday to recommend the Chemo. I go to see him him this afternoon to receive my new prognosis and decide if I will go ahead with Chemo. I have read many of your posts and the neuropathology issues and Chemo brain cause me concern. I have some nerve impairment in my left leg from a herniated disc at L4-5 and from the surgery. Still have an area of numbness on my left arm following surgery as well. He is recommending a 2 drug / wek; 3 weeks on/ 1 week off for 4-6 cycles. I have been having a really hard time warping my head around this change in direction. I was going back to work full time next week but that may all change now.
So I was just wondering if anyone had opted to not take Chemo. He does not intend to do Radiation. I probably had a history of PMB for several years before they discovered the polyps and 2 years before any intervention was done.
Any advice would be appreciated.