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Mpls. again tomorrow

katenorwood
Posts: 1800
Joined: May 2012

We've been in a heat wave here.  The humidity has been almost as high as the temp.  Higher 90's....tropical, wet and just plain icky ! 

We go into the U of M in the morning.  Rolie's appointments first with endo.  And then mine after.  I'm not nervous as I want to figure a few things out in my mind.  I have some pretty hard hitting questions for my onc's.  They're good guys, and I think they'll get it.  They see so much in a day's time.  They will be doing the scoping, and a needle biopsy in office.  I use to have such a phobia of needles.....especially when they're directed at my neck or head.....lol !  Then of coarse labs. 

I will be discussing trials with the medical onc.....but was recently told you have to be healthy enough to be accepted.  Good lord, seriously ?  No, I do understand this.  And I agree why would a person put themselves through the unknown if it'll take 'em out. 

I am getting the things lined up at home.....moving right along.  The lifeline box we received yesterday is really futuristic looking.....and the reach is enough I can be outside and still have range.  I think it's hard to make these choices, and yet I know they need to be made the way I want them.....not by a stranger.   I'm not gonna lie, it sucks to be in this position....but what do you do right ? 

It's sinking in.....even being the stubborn old woman I am.  I still want to get up in the early morning....have my coffee and be off to work by 4:30 a.m.  I really do miss it. 

But I'm still kickin it....and am doing it my way.  Never ever accepted anything less in life.....never will !  Many hugs and warm thoughts sent off to you all !  Katie 

phrannie51's picture
phrannie51
Posts: 3594
Joined: Mar 2012

Will be keeping you tucked in today....sending positive thoughts and prayers.  My mom had a Lifeline thing too....

I'll be keeping you close today.

p

katenorwood
Posts: 1800
Joined: May 2012

Up early this a.m. as it's such a drive.  I'm seriously deliberating on getting back into the closer cancer center only 45 miles away.  These trips are mainly now for tracking anyway.  Hugs sent !  Katie 

jim and i's picture
jim and i
Posts: 1556
Joined: May 2011

Your fighting spirit inspires me. I pray fpr God's grace and blessingo\s for you.

What is the Lifeline?

katenorwood
Posts: 1800
Joined: May 2012

Life line is a unit, (box) where if I get into a medical emergency ....and I'm alone at home I hit a button and they will get me what I need.  Just kind of a safety net so my husband can get out without stressing I'm alone.  Hugs sent !  Katie

jim and i's picture
jim and i
Posts: 1556
Joined: May 2011

Thanks, I thought it was something like that. Hugs back.

Debbie

CivilMatt's picture
CivilMatt
Posts: 2803
Joined: May 2012

Katie,

Good luck on your appointment, let’s hope you get the answers you seek.

You do know that you’re a lifeline of sorts with the H&N Forum.  Through your adversity you show a sense of compassion and humility.

Thoughts and prayers,

Matt

katenorwood
Posts: 1800
Joined: May 2012

Thank you for your kind words.....they do mean alot.  This forum keeps me positive and moving forward, to whatever lies ahead of me.  We each have our own personal experiences to share, some more positive and powerful than mine.  I wish I could do more, but I will continue to share what I learn as I travel this road.  Hugs sent my friend !   Katie

Grandmax4's picture
Grandmax4
Posts: 576
Joined: Dec 2011

Katie, keep the faith and the courage~~

katenorwood
Posts: 1800
Joined: May 2012

I'm trying hard to remember mircles do happen.  I'm praying awful hard for those facing more tx's, and believing they will find a way to knock this C-crap outta the park in our lifetimes.  Hugs sent !  Katie

Skiffin16's picture
Skiffin16
Posts: 8052
Joined: Sep 2009

Go K, a lot to be said on doing it your way..... You are not going in blind, you know what you want and how to get there...

 

Thoughts and prayers always,

John

TracyLynn72's picture
TracyLynn72
Posts: 634
Joined: May 2013

I've been thinking about you and praying for you!!!  ((HUGS))

debbiejeanne's picture
debbiejeanne
Posts: 2219
Joined: Jan 2010

karie, sending up lots of prayers for you!!  God bless you.

dj

ljoy's picture
ljoy
Posts: 83
Joined: Dec 2007

If you are closer to St. Cloud the Coborn Cancer Center is an excellent facility. I'm an eight year survivor of tonsil cancer and volunteer there once a week.

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