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going home to sydney after almost a year, in remission, its my 47th birthday as well

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

everyday is special, but birthdays after our oncologists useby date are xtra special!

so clear scans, cea 14 base 5, ca199 19 base 47, crp 0.1, frinogin and all blood normal except white bloods 3.1 when they should be 4, but they are up from 2.0 3 weeks ago. stopping 500mg xeloda and eating raw liver worked. thanks tans.

i am fundrasing in australia to raise 4 million aud, to setup a dendtritic cell lab , i have the doctors consent as long as i get my governments approval. coming home after my 47th birthday, one i was not supposed to have, might allow me some success. of course i will have a soft spot for early stage 4 colorectals where immunotherapies have the most potential.

http://petertrayhurn.blogspot.de/2013/08/dear-australian-priministerplease-help.html

taking the family camping for a few months and living a very quiet life. my gcmaf yogurt cultures are arrving in the usa, the longer i live the people want gcmaf probiotic yogurt. its not certified or approved, its for free, and costs 5 us dollars a week to make. i am sending this yogurt around the world, it works i think, even ren is going to have another try.

be happy and joyful and have hope in whatever therapy you choose, you all know that i am passionate about wholistic and experimental therapies and conventional. the secret to our survival, my survival is getting the balance right.

the german cancer business works, but its focused on money. i used up my 500,000 in the last year, i have been camping for free in the german summer, eating raw eggs and organic liver. a simple enjoyable, nature filled existence has helped me achieve my healing potential.

last post for another few months, going off line to camp and dive. of course the diving is on a rebreather at 2 atmospheres, this works with ketogenic and 2dg.

ren gave me a months worth of 2dg for my birthday, what a friend, i have left a bag of avastin in the fridge if he wants it.

pm me if your interested in lifestyle and experimental.

its always been about our health, its always been about our immune system. now more than ever, with everyday single 70 trillion cells in my body do i know this to be true.

I am back in duderstadt early november, renting a 10 bedroom house and running my non profit lifestyle based, ketogenic communal home, I already had my first taker yesterday, the first person i told, she has a beautiful smile and a couragous sole. the first years results or 20 early stage 4 cancers using the best lifestyle and dendtritic cells therapies and all the medical resources is essential.

there is the worlds best alternative cancer conference at baden baden, on the blog, meet me their if your interested.

hugs,

Pete

ps i have apologised for my radical beliefs and the upset they cause, alas they are so different to most here i post very little because i hope and joy are essential to healing. 5% chemo based survival for stage 4 says it all, i am aiming at 100% cure and with god as my assistant i will achieve it, and help those interested as well.

 

 

 

 

lilacbrroller's picture
lilacbrroller
Posts: 412
Joined: Jun 2012

Congrats on your results and on reaching another annual milestone-happy day. I'll be 47 this year too, I hope. 1966 was the year of the fire horse in Chinese astrology btw.

good luck with the clinic. If the therapy works, it will catch on. 

all the best and thanks for posting. I'm sure yor blog and posts have a lot if lurkers who are benefittfrom your your "radical" posts. More than you know

karin 

 

KathiM's picture
KathiM
Posts: 8060
Joined: Aug 2005

It sounds like you are living the way you want to live, and no one should judge you for that!!!!

 

I am sad that, in my joy that you are going home, I have not had the opportunity to meet you face to face!  We are tethered here in so Cal until at least July 2014 because of my beau's heart transplant.  With the threat of rejection diminishing every day, a year post surgery is when they will set him free!  

And the first thing I will do then is book tickets to Europe!

 

BIG hugs, dearheart....safe travels....Tot Zeins.....Hartelijke gefeliciteerd met je verjaardag!

 

Knuffels, Kaatje

Annabelle41415's picture
Annabelle41415
Posts: 4560
Joined: Feb 2009

Wishing you a very happy birthday.  Hope you have a wonderful time camping and spending it with your family.  Can't get any more wonderful than camping and seeing all God's nature around you.  Congratulations on all your successes and hoping you continue to heal.

Kim

Chelsea71
Posts: 1170
Joined: Sep 2012

Happy Birthday, Pete.  Hope you have a great time camping with your family.  You deserve a nice, long break.  Congratulations on your continued success.

 

Chelsea

lp1964's picture
lp1964
Posts: 995
Joined: Jun 2013

Have a great flight and a great time at home. No place like it. (Dorothy)

Wish you health and happiness and may your effort and risk taking pay off for you and for many others.

Laz

thxmiker's picture
thxmiker
Posts: 1283
Joined: Oct 2010

Birthdays are landmarks so, Happy Birthday Pete!

 

I am glad your treatments went well!  It is always encouraging to hear good news.  Have fun with the family camping!  That is one of our favorite things to do.  We love walking in the mountainns and enjoying life.

 

Best Always from the Mountains in the AZ!  mike

annalexandria's picture
annalexandria
Posts: 2470
Joined: Oct 2011

you included this bit:

"after a year of the walking post experiment on csn I should know about what colorectal patients do and do not do! most do not do enough, and they don't wont to be told about their lazy is contributing to their death, that's what amazed me about lifestyle, but that's the truth!"

Why edit your opinion of us lazy folks at CSN out of this version, Pete?

annalexandria's picture
annalexandria
Posts: 2470
Joined: Oct 2011

the rest of y'all are niceer than I am and I probably should just follow your lead.  But Pete's frequent and very specific bad-mouthing of this forum really gets on my nerves.

Nana b's picture
Nana b
Posts: 3048
Joined: May 2009

Where do I sign up!   Germany bound!  

annalexandria's picture
annalexandria
Posts: 2470
Joined: Oct 2011

I would read Pete's blog very carefully before letting his posts influence your decision-making process.  I would also correspond directly with these German doctors, and ask for actual numbers on how many patients reach even short-term remission with these treatments (I'm not sure those numbers even exist...they don't seem to track them, which seems odd to those of us who are used to the "American" way of providing evidence for the efficacy of treatment with large, longitudinal studies, unless it's a clinical trial, of course).  And as Pete himself would no doubt happily tell you, he is the "miracle" patient, who has had results never before seen in the world of cancer treatment (although even with a careful reading of his blog, it's hard to tell what those results actually are at this point).

At any rate, I'm sure you don't need or want my two-cents, but I think it's important for newcomers to this board (who don't know Pete's history here) to hear all sides of this debate.

AA

PhillieG's picture
PhillieG
Posts: 4706
Joined: May 2005

I've read Pete's blog a while ago too and found it quite disturbing. Either a person is done with us or they're not. You shouldn't bad mouth us Pete then expect us to still cheer you on.

Remember, the people you meet on your way up are often the same ones you meet on the way down

annalexandria's picture
annalexandria
Posts: 2470
Joined: Oct 2011

in part because some of his stuff is actually of interest to me.  If my cancer comes back, I won't be a candidate for chemo (unless something new has come up in the meantime).  It's too bad he can't present his information without all the insults (and incomprehensible spelling and grammar...if you're reading this, Pete, pls have someone edit your stuff!  It would be so much more useful if you did.).

 

herdizziness's picture
herdizziness
Posts: 3638
Joined: Apr 2010

You are not alone, when he wrote that bit about being "like the miricle gas chamber survivor alive on a mountain of corpses"....I was done with him.  He constantly belittles those that are on CSN in his blog and then in his egotistic way is like the survivor of the Holocaust, because he got German therapies, sorry you don't get to go there Pete, can't say what I feel about it on CSN. That language is not approved.

Winter Marie

geotina's picture
geotina
Posts: 2091
Joined: Oct 2009

You two are so very correct.  I often found the blog disturbing and simply stopped reading it.  Thank you ladies for veryifying my thoughts on the subject.

Tina

LivinginNH's picture
LivinginNH
Posts: 1414
Joined: Apr 2010

Yes, I agree on all points.  His blog is filled with extremely insulting statements on traditional chemo patients.  The blog disgusts me, and he has some friggin nerve to continue to post to us "sheep" (Pete's word, not mine) on this board.

renw's picture
renw
Posts: 282
Joined: Jan 2013

I know pete personally and to his defence he is a great guy who wears his heart on his sleve. He is very passionate about what he is doing and what he has achieved, maybe to a fault, and he wants to save everyone with cancer and change the medical establishment in the process. His attempts tend to fall on deaf ears and I think he finds that very frustrating. His comments are a little harsh at times and that is probably his frustration showing. I know he means well and is trying to kick others into taking action which may save their lives, but I guess often those attempts backfire.

The german therapies are expensive and not for everyone, but core elements can be done even in the US and do not need to break the bank. If I sum it up, the core treatments are.

1. Holistic approach to lifestyle. No stress, meditation, qigong, good organic nutrition and optimizing the body's overall wellbeing which a good homeopath can manage anywhere. And yes carb free keto diet.

2. Immunotherapies. These are harder, but one does not need to travel to germany as Dr. Chan in the US can do the same therapies. Cost wise this can still be prohibitive, but many Australians in particular that I come across in germany have no means to be here, but fundraise to be able to get the treatments. Where there is a will there is a way.

3. TACE - very effective and though prof. Vogl is the world's foremost authority and works out of Frankfurt, TACE is offered by many hospitals everywhere.

4. Lastly there's Removab, and as far I know only Hallwang offer this unfortunately. Although I am doing removab as well, I think one may be able to achieve good results without it.

The greatest hurdle is finding the will to take charge of one's treatments and relying less on traditional oncologists, as most are only good for dosing chemo anyway.

PhillieG's picture
PhillieG
Posts: 4706
Joined: May 2005

I don't question Pete's intentions but he could reread (or read) his posts before he hits submit. I also feel that he confuses what seems to be helping him with having found the cure for cancer. It's a major difference that needs to be distinguished.

I'm sure Pete's helped many by trying different approaches and sharing them with everyone. He certainly does not have to do that. Many of the approaches he talks about make a lot of sense and have merit for sure.

At the same time, he knows that many in his audience read both sites so I can't understand why he expresses himself so differently on the sites. I know that I've been less than thrilled to read his opinions at times.

annalexandria's picture
annalexandria
Posts: 2470
Joined: Oct 2011

than he comes across in his writing, Ren.  But then, I can only judge him based on his writings, in which has has repeatedly called people on the forum names and said horrible stuff about us in general.  I also find his "frustration" kind of ridiculous, given that he has had a recurrence since starting these therapies, and may or may not be NED even now (he keeps mentioning a few cancer cells in his blog, so I don't know what his actual health status may be...and anyway, it's almost irrelevant, as what really matters is whether he is NED 6 months, or longer, down the road).  And the docs there have apparently told him he is a "miracle" patient.  So in short, I don't feel that his quest to bring these therapies to the whole world makes a whole lot of sense.  And honestly, much of what he writes (about starting clinics, and being a doctor, and other statements very difficult to swallow) leave me uncertain as to what is reality and what is fantasy.

At any rate, Pete is welcome to do his thing on his own blog, of course, but he shouldn't expect to come here and get a warm welcome from everyone.  I was a big support of Pete's originally, and I'm interested in the alt therapies, but he has a very problematic personality, imo.

PS several trials of removab (for a variety of cancers) are recruiting right now in the States, just fyi.

PSS It makes little sense to say "where there's a will, there's a way".  That's just one of those sayings that actually makes very little sense when you think about it logically.  But I'll be sure to mention it to my friend who is presently raising funds to pay for her dead daughter's cancer-related medical bills.  She's got 10K already (some of us have given twice)...should be no prob to raise the other 40K.

LivinginNH's picture
LivinginNH
Posts: 1414
Joined: Apr 2010

 

No, he's not NED (from his own statement on a blog) or in remission.  Not to mention that he's been taking irinoteacan with Avastin and then Xeloda!! So who's to say that the reason his tumors haven't grown was due to taking CHEMO DRUGS and not all of those alternative million dollar meds???  Seriously, can anyone claim to be in "remission" from only one month off of chemo?  And he has a current CEA of 14! 

From one of his recent blogs:

"i did tace 7 combined ipt to the liver with mitomycinirenotecan , avastin, infusions 2dg, dcadmso and 15 iu insulin..."

"clear scans, cea 14 base 5, ca199 19 base 47, crp 0.1, frinogin and all blood normal except white bloods 3.1 when they should be 4, but they are up from 2.0 3 weeks ago. stopping 500mg xeloda and eating raw liver worked.

Lovekitties's picture
Lovekitties
Posts: 3124
Joined: Jan 2010

Ren, I much prefer your approach to sharing information.  It is direct and to the point. 

I, as do all here, hope that whatever treatments each is following works for them and gives them years and years of a good life.  It is unfortunate, but what works for one does not necessarily work for all...YET.

While we may not all agree as to what treatments to follow and which to discard, I don't think it is asking too much to be supportive of others' choices...after all it is their life in the balance...and their life situations which must also be considered.

Sharing ones choices and successes and failures helps others in their decision making process and is a good thing.  This can be done without mocking or slamming other choices and folks, which is what Pete failed to recognize.  It is also ok for others to have a differing opinion based on their own information gathering.  There will always be those who prefer to swim close to shore and others who will brave the open sea.

A number of us tried to get Pete to focus on his treatments and leave the harsh words out of it...unfortunately it didn't work, and blurred any validity to his information.  It also didn't help that he was giving way to much financial and marital information in his rants. 

Glad that you posted the basics of the treatments and sincerely hope that it all works for you.

Marie who loves kitties

 

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

We, along with survivors of others cancers, are probably the last group of people who I would ever consider lazy.

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

happy birthday!!!

hugs

judy

Nana b's picture
Nana b
Posts: 3048
Joined: May 2009

Pete is only sharing his journey.  Many people have left this forum because they are not allowed to talk about their adventures and choice of treatments.  This isn't really up for debate.  Its people that go out of their comfort zone that usually make a difference.    If he fails fine, but as long as there is tomorrow, he can keep trying.  His money. 

I don't go for finding fault in some one for their way of thinking, or the actions that they take when they are not hurting anyone  I like to wish them well and not publically talk about them/him with no consideration to his feelings. Yes, he gets defensive because he is put down a lot.   We can choose to read posts and follow or not.  Keep in mind there is a language barrier in his writings.   I do realize he goes  overboard at times when making a point 

 

No. I'm not Germany bound I couldn't afford it  But I wish him success. 

Shake your head in your home, but don't blast him on his own post, for Pete's sake! 

 

 

 

geotina's picture
geotina
Posts: 2091
Joined: Oct 2009

Welcome back.  You have not been posting in a long time.  Pete is Pete.  Unfortunately, most of his comments are quite hurtful and offensive, something cancer patients do not need to read but maybe it is the language barrier, who knows.  I stopped reading a long time ago when he posted something the effect that people should consider death rather than take Irenotecan.  It was the same week George started that drug.  Of course, he changed the title but the damage was done.  Sorry, but I have zero respect.  I do find it odd that he is now taking that drug. 

I was referred to and read a few pages of Pete's blog once and it was full of hurtful comments about CSN members so I continue to wonder ......

John has always done alternative (Chinese medicine) but he has always been totally respectful of everyone here.  Unfortunately, most alterntive people were not.

Anyway, welcome back and I sure hope you find the reason for your spike in CEA.

Tina   

 

LivinginNH's picture
LivinginNH
Posts: 1414
Joined: Apr 2010

Hi Nana,

Welcome back.

I believe that you misunderstand why people are upset with Pete since you  have not been the board in a while.  It is certainly NOT that he is sharing his journey, spending money, traveling the world or getting alternative treatments.  It IS because he is disrespectful, rude, and narcissistic.  He’s called CSN members “sheep” for taking their doctor’s direction on chemo, told members that they are jealous of him because he deems his treatments a success, has called himself the new John the Baptist spreading the word, insulted more people than I can count telling them how wrong they are but how right he is, insinuating that all chemo patients are lazy since they don’t exercise daily or off to Germany for their treatments even though it’s cost Pete over a $1M to do so.  Do you have a million dollars in your pocket that you could use to traveling the world for unproven alternatives?  We didn’t.   Rick was certainly not lazy because he couldn’t afford to travel - that is simply absurd.   Let me tell you, when my Rick was alive, he tried all types of vitamins, meditation, he didn’t eat sugar (at all),  as well as tried to exercise until his body just refused.  Cancer was simply devouring his good cells, he could barely make it to the kitchen and back to the living room.  So, how dare Pete tell patients that they are lazy and not worth listening to because they do the traditional chemo route (yes, he said that too).   Everyone here was very patient with Pete, but he just didn’t get it. And no, it’s not because he didn’t spell well, do use that excuse, we can certainly understand what his thoughts and intentions are behind his bad grammar.  It’s simply that we gotten tired of his rants and narcissist personality.  How do you think the newbies like coming onto this board only to be told by Pete that they are sheep to be following the advice of their doctors.  And don’t you find it rather hypocritical that Pete has been taking Irinotecan, Avastin and Xeloda the whole time???  I do.

Take care Nana,

Cynthia

annalexandria's picture
annalexandria
Posts: 2470
Joined: Oct 2011

You are fine with the following:

forum members are "lazy" (this one was from right before he posted this thread here)

Forum members are "sheep"

Forum members "lack courage"

Forum members are "like heroin addicts in their addiction to sugar"

More on sugar:  It's the "blind leading the blind, they will never learn or study"

etc, etc, etc.

All actual quotes, hence the quotation marks...and with links to our conversations here.

There are many more statements I could present to you if I really wanted to dig through all of Pete's stuff, both here and on his own blog, which I won't because it's depressing.

I don't know how many times we can say this, but virtually everyone here was supportive of Pete's various therapies, and cheered on his endeavors.  IT IS NOT THE THERAPIES THAT ARE THE PROBLEM.   The problem lies in Pete's own words, which he chooses to put down in written form and then hit "submit".

You have the right to accept all this (I guess when he talks about forum members, he's not including you), but I sure as heck don't have to.  I come here to support people who are going through the very treatment that he calls us "fools" for accepting and enduring.  I mean really...do you think Craig is a coward for facing chemo for the umpteenth time, instead of selling everything he owns and jumping on a plane to Germany?  Because that is what Pete has said on more than one occasion, and it ticks me off.  So I will continue to comment on these public threads, and you can keep on supporting Pete, with all the ramifications that that holds when you do so.

AA

ETA what the heck is Pete's "language barrier"??  Isn't he Australian?

Nana b's picture
Nana b
Posts: 3048
Joined: May 2009

He does struggle with his words, very hard to follow at times.   I must say,  I at times feel like a sheep waiting for the the next pUsh.   I do feel that  chemo will kill me before the cancer. sucks!  

Pete and I were on the same path and the Chemo didn't work for us. He stopped before I did.   His CEA started going down and mine continues to rise, mine is at 140+.  I am interested in picking up whatever I can to learn what may be out there. I really  don't focus on what's not important, I focus on what can be out there to help us. 

Anyway. we can't allow others to upset us.  I choose to say, crazy people And move on!  People  deal with mortality differently, and go into crisis mode and will do and stay anything.

 Obviously, I have missed some of his threads as I have not seen some of the things you three  mention. There is no excuse for rudeness,   so Pete lighten up. 

 

Living life a day at a time.  Not letting anyone ruin my day.  

Off to go see Mom in the hospital. It's been 3 weeks Since she fell.  She is doing better. 

 

Wish you the best. 

mags uk
Posts: 9
Joined: Mar 2013

NanaB , I wish you well and hope your mum is making progress. I am like you I am focusing on my mum's care and lots of the discussion was on his private blog so certainly not a requirement to visit it. I would never use the tone he has used but neither do I make judgements on peoples mental health or assume that we are all able to process life in the same manner and that all gets amplified when a difficult diagnosis is involved. 

I do get concerned by diagnosis on personality types or mental health issues on internet forums, think it breaches some laws. My son is dyslexic and internet forums present communication problems for him. We do not know what other people bring to the table.

I wish you all well,

Mags

Nana b's picture
Nana b
Posts: 3048
Joined: May 2009

Thanks Mags. 

I wish you and your Mom many more great memories! 

 

 

 

renw's picture
renw
Posts: 282
Joined: Jan 2013

While on chemo in aus my CEA continued to rise no matter what the oncologists prescribed. Yes I sold the house and headed for germany to seek alternatives knowing that chemo was a dead end.  Been off systemic chemo since april and despite some early hickups, my CEA dropped from 3300 to 760. I am still far from winning the battle, and may not, but the results are far better than traditional cancer treatments. I just wish I did this 6 months earlier as pete urged me to.

very worried husband
Posts: 87
Joined: Feb 2011

for sharing. and keep up the good work. from 3300 to 760 is  amazing.....i love it.. best of luck

Kathleen808's picture
Kathleen808
Posts: 2340
Joined: Jan 2009

Hi Friends,

I feel a need to share a story from a friend who recently returned from the Hallway clinic in Germany.  This is not to pick sides on anything but just to share with you the experience of one of our friends.  Oahu is a small island and people tend to run in small circles of friends here.  About 2 years ago someone suggested that Dick talk to a man who was just diagnosed with stage 4 prostrate cancer.  He had 2 young children and was also a pilot so they thought that Dick could share hope with him.  He was originally told he had less than 6 months to live and that he would not fly again.  After Dick spoke with him his hope was renewed and he sought out a fabulous naturopath and some more medical advice.  He felt good about his new path and then we did not hear from him the past 6 months.  Dick recently contacted him and he is cancer free and flying again.  There are very high medical standards for getting your FAA medical license. He went to the Hallwag clinic that Pete went to (I have not read through Pete's blog but I know at one point he was at the Hallwag clinic).  When our friend returned to Oahu and was scanned the tech was totally blown away.  Our friends thought at first that the cancer may have wildly spread but instead, there was no cancer to be seen. 

This is one of our friend's stories. We know many people who know this man well and he is of excellent character.  I do not know all the treatments he had, I do not know how long his cancer will be gone, I realize he had prostrate cancer and not colon cancer but I thought his story was important enough to share.

I hope this story may help someone.

Aloha,

Kathleen

tanstaafl's picture
tanstaafl
Posts: 1077
Joined: Oct 2010

That's a great story, Kathleen.  I am sure it is helpful to many.  If he's got a cancer blog or webpage, it would be helpful to many people to see more details on his Hallway and alternative experiences in general.  Our individual experiences multiply as group awareness and knowledge, especially when we plunge into the unseen world of alternative and experimental medicine.

annalexandria's picture
annalexandria
Posts: 2470
Joined: Oct 2011

I would like to stress, however, once again, that no one is debating alternative vs convetional therapies in this thread.  The issue with Pete has nothing to do with his choice of therapies, and everything to do with treating others as you yourself would like to be treated.

Hope things are going better with Dick, Kathleen.

very worried husband
Posts: 87
Joined: Feb 2011

Thanks Kathleen for sharing the story. It really is awesome to see some one winning against this horrible disease, no matter what plan of action they take......

tootsie1's picture
tootsie1
Posts: 5049
Joined: Feb 2008

You're awesome, Pete!

 

*hugs*

Gail

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

2013-09-17

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