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herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

So I'm waiting on appointment with surgeon which is the 28th.

Until then, in misery with much pain as things pass through the colon tumor, WHAT? You can't hear my cries of agony??  Trust me, they are there.

Winter MarieSometimes Life just ain't easy

ron50's picture
ron50
Posts: 1279
Joined: Nov 2001

No it isn't, Ron.

bailee2012
Posts: 61
Joined: Jul 2012

Hate to hear that you goin through this.  Really hate that people have to be in pain for so long just to wait for appointment.  Stay strong. Sending prayers up.   :)

herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

I realize when my husband is asking me if he should drive me to the emergency hospital, that maybe my pain is really showing (could be all those OMGod's and Sweet Jesus refrains that keep leaving my mouth, plus the moaning and writhing in pain). So I emailed my oncologist asking if he could give me a prescription for stool softners and pain pills.  We shall see, why oh why did I wait until it got worse on the weekend?

Winter Marie

Chelsea71
Posts: 1170
Joined: Sep 2012

So sorry you're going through all this.  Hoping you feel some relief soon.

 

Chelsea

John23
Posts: 1832
Joined: Jan 2007

 

Re:

“why oh why did I wait until it got worse on the weekend?”

 

I’ve found that as I got older, the weekends got closer together.

 

Every time I’ve been hospitalized, it was on a late Friday evening, and too often, just prior to Christmas.

 

You’re part of “the club”; Welcome!

 

Seriously, I have some hydrocodone I can overnight to you; I’m not sure if you can use ‘em as a suppository?

 

(ouch)

 

Think “healed”,

 

John

lp1964's picture
lp1964
Posts: 852
Joined: Jun 2013

 but I share of feeling $hitty tonight with you. 

I wish you a quick relief and a long term resolution.

Laz

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

Sorry you are in such pain   :(  !

You are strong, hang in there!

Judy

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

please see if you can get something to control the pain im sorry you are hurting.remember we are family and we are hurting with you...Godbless...johnnybegood

KathiM's picture
KathiM
Posts: 7878
Joined: Aug 2005

But stand helpless nearby.  My tumor was in a place where EVERYTHING passed it....nasty....so I can relate just a bit to your suffering!!!

 

I still needed to work, so I would keep a 'maintenance dose' of Ibuprophen on board at all times, and then, when I would get to my destination for the day, I would take a Vicodin.  It's much easier to cover a breakthru pain spike going from 4 to 8 with strong drugs, than to try to go from 0 to 8 without that 'maintenance level' pain med control already on board...

Love you, dearest....

 

Hugs, Kathi

Cathleen Mary
Posts: 556
Joined: May 2011

So sorry you are going through this.  Go to ER if you don't hear from doc. You are not alone in having things happen on weekends! 

Hope you have relief Soon.

Cathleen Mary

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 445
Joined: May 2012

I hope you have something by now for pain. It seems to get bad so fast! If you are like me you think it will be better next time, then next time it's worse. Hope you get some relief.
Sandy

Lovekitties's picture
Lovekitties
Posts: 2926
Joined: Jan 2010

So very sorry to hear that you are in so very much pain. 

Perhaps a trip to the ER would be a good thing to do...the tumor plus anything in the "pipeline" may be causing an obstruction which is more than you can handle with stool softeners.  It may also get you fast tracked for that surgery to get that tumor out.

Praying that you get relief soon.

Hugs,

Marie who loves kitties

Goldie1's picture
Goldie1
Posts: 250
Joined: Sep 2011

you shouldn't have to suffer.  If not the ER, get those pain meds STAT!  Hoping that you feel better soon!

Ellen

hippiechicks
Posts: 302
Joined: Sep 2012

I also agree with Marie .. a trip to ER sounds like the place to be.  I was in the same pain you are discribing at one point in my journey, and that is exactly what happened .. fast tracked and relief! 

My best to you for quick resolution!

Cool

Hippiechicks

 

kennyt's picture
kennyt
Posts: 110
Joined: Jun 2013

so sorry you are going through this you should go to the er at least they may help with the pain.

abrub's picture
abrub
Posts: 1531
Joined: Mar 2010

Having been in a situation where no pain relief worked (major anal fissure) so any bathroom runs were a cause for tears and follow-up in the fetal position.  It was so bad that when my husband went to the bathroom, I had empathy pains, and moaned in true agony.  I hope that they can get the pain under control, and address all issues quickly.

Sending gentle hugs and lots of understanding,

Alice

marbleotis's picture
marbleotis
Posts: 482
Joined: Mar 2012

Please get some relief.  You should not have to suffer.  Get on the Dr and have him make it happen.  I am so sorry you are suffering.

annalexandria's picture
annalexandria
Posts: 2193
Joined: Oct 2011

Four more days to surgery must seem like an eternity to you.  Any chance for pain meds?  When I was in the midst of a lot of cancer growth, and had some pretty significant pain, I was given oxycodone.  It worked fairly well (although in my case it caused physical dependency in about two weeks, but if you only take it for a few days, just to get to surgery, that shouldn't be an issue).

Strength and hugs coming your way~AA

annalexandria's picture
annalexandria
Posts: 2193
Joined: Oct 2011

maybe consider putting yourself on a liquid diet at this point?  Totally sucks, I know (worst part of the surgical ordeal for me), but it might really reduce the pain.

 

herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

4 more days just to see the surgeon, don't know surgery date, am assuming since have been off chemo since part of April, the stupid tumor keeps growing.  Will probably do the liquid diet, seems like that may be the easier way to go (pun intended).

Thank you everyone, here's to the pain getting better at some point soonest.

Winter Marie

z's picture
z
Posts: 1249
Joined: May 2009

So sorry for the pain your having.  It reminds me of the pain I had after going through chemo/radiation to the anal cancer I had.  30 days of radiation to that area.  I know that the roxycodone (sp)? helped immensley.  I hope you will have relief soon. Lori

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

I'm sorry to hear about your pain. Your onc shouldn't have any hesitation giving pain killers. I'm having a really rough timewith pain and diaries. I had chemo and radiation this week and thy are dousing a number on me. Imeta taking Imodium for diarea and pain pills.  Pray you get some relief soon. Jeff

lilacbrroller's picture
lilacbrroller
Posts: 272
Joined: Jun 2012

$&@!!

i hate this is disease!

hope you feel better

karin

lilacbrroller's picture
lilacbrroller
Posts: 272
Joined: Jun 2012

$&@!!

i hate this is disease!

hope you feel better

karin

fatbob2010's picture
fatbob2010
Posts: 384
Joined: May 2012

Go to Urgent or Walk-in tomorrow should you not be able to use the ER.  Excess pain is not helpful and may make your situation worse.  Sometimes the sufferings of the disease are not educational...AT ALL.

Gentle hugs and hope of blessings for you and your family.

Art

Annabelle41415's picture
Annabelle41415
Posts: 4229
Joined: Feb 2009

I'm so sorry you are going through so much pain.  Wish that surgeon would just give you a quick date and get done with what you have to feel better.  I'm praying that you get relief soon.

Hugs! Kim

smokeyjoe
Posts: 1428
Joined: Feb 2011

Hoping the doc's come up with something soon to aleviate your pain,  this sucks!!   Are you off all chemo's/avastin now in preparation for upcoming surgery?? 

thingy45's picture
thingy45
Posts: 571
Joined: Apr 2011

So sorry, Winter Mary, Yes indeed the liquid diet might help you. I did before my surgery, it sucks, but I put heaps of protein powder in my juice.

Had Probiotic pills and Omega 3 capsules. Stools remainded nice and soft.

Healing wishes going your way, hope surgery will be soon,

Hugs, Marjan

 

herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

I've been off since April in preparation for the liver resection I had, then was to go back on in July, then tumor in Colon found during colonoscopy, then was referred to surgeon, then CT/PET scan that was done showed 8x7 cm and 7x6 and another 8x something or another tumors in lungs and thorax so they said, NOPE sorry no surgery for you, then my oncologist went to Stanford to look at the scan results with the reporting radiologist and it was discovered (as my Oncologist had thought) that it should have read "mm" and not "cm" so was okayed again to go for surgery, but had to wait for another appointment to open up which is this Wednesday.  So will find out when surgery date is hopefully on Wednesday.

Am assuming all this time off of chemo has allowed the tumor to grow.  I realized yesterday what the pain felt like, and it feels like labor pains.  Since going liquid diet, instead of labor pains every ten minutes it more like two or three an hour now, which is an improvement of some sort ;).  Can't wait for appt on Wednesday and getting a surgery date.  Instead of giving birth to a baby, I feel like I'm giving birth to a tumor.

Thank you everyone for your sympathies, it does help one feel better!  Knowing many of you have gone through the same pain somehow makes it more endurable, as in "if they could handle it, I can handle it".

Love to you all,

Winter Marie

thxmiker's picture
thxmiker
Posts: 1213
Joined: Oct 2010

I understand the pain you are going through.

 

We are sending you our thoughts and prayers for ease of pain and a good solution for your tumor removal!

Stay strong!

 

Best Always,  mike

merrysmom's picture
merrysmom
Posts: 46
Joined: Jun 2011

You are in my thoughts and prayers. Try to hang in there. I will pray your surgery date hurries up. You are such a special person and such

a valued person. You helped me with encouragement a long time ago. I really value you.

Love from barb

 

My prayers are for everyone that posts on this board.

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

Winter Marie...you are in my thoughts and prayers.  Hopefully they can get you signed up lickety split for surgery!

 

alex

relaxoutdoors08
Posts: 518
Joined: May 2011

Hope you are feeling better and thinking of you.  Sending prayerful thoughts for you surgery.

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