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Please help. Husband (41 yrs old) scheduled for CT's, Cytoscopy...I have a bad feeling...

ash21love
Posts: 1
Joined: Aug 2013

3 months ago, my Husband had some pain real low near his groin, but not severe. He had frequent urination, burning while urinating. Went to a general practicioner who found blood in urine (not visible to the eye) did a CT Scan and said it was a kidney stone. A few days went by and the pain did not go away so they tested for bacteria and there was none. The doctor said "it still could be an infection"... So he put him on antiobiotics. a week later, still having frequent urination, burining while peeing. So doc put him on stronger antibiotics. They seemed to help and ease the symptoms but not completely eliminate it.. Then bam, symptoms back again!

Finally he has went to see a urologist. He tested for bacteria, and there was none. Also there was no blood in his urine when the urologist tested it. But there was blood in it 2 times previously.

Now the urologist is sending my Husband for 2 more CT Scans, a Cytoscopy, and to test his urine to see if it has cancer cells in it.

 

I am SO SCARED! I feel like the doctor really thinks its bladder cancer. I straight up asked him if he thought it was, and he said, "I have to rule it out"..... I have been reading a lot of information online, and I am really scared, I honestly feel like he has bladder cancer based on his symptoms and not having any sign of a bacterial infection...

 

IS THIS THE SYMPTOMS OF BLADDER CANCER?  I WOULD LIKE TO HEAR FROM FELLOW BLADDER CANCER SURVIVORS.

 

What were your symptoms before you were diagnosed?

 

PLEASE POST, ANYTHING WILL HELP. I CANT SLEEP AND WE WONT HAVE RESULTS FOR AT LEAST ANOTHER 10 DAYS.

 

THANK YOU IN ADVANCE,

Ashley W.

 

Metryrunner
Posts: 2
Joined: Aug 2013

Ashley, the cystocope should detect if he has bladder cancer. There is a therapy (BCG) for bladder cancer that I understand is fairly successful.  It's a long dragged out process, but hopeful. Google it and find out more about it.

What is his PSA?  

Draginlady
Posts: 9
Joined: Sep 2013

Hi Ashley.  I am a new member on this site and just read your post.  I'd like to know what your husband's tests results were.  I was diagnosed with gallbladder cancer last April.  Hoping to hear from you.

Jan J

Dave Otto's picture
Dave Otto
Posts: 4
Joined: Sep 2013

Hi Ashley.  I see your posting is old enough that you should know what's going on by now, so I hope your fears have all been allayed.  Based on my own experience, if you're going to get cancer, this is one of the better ones.  I passed blood, one time (that I am aware of), which was my only symptom.  Cystoscopy confirmed cancerous polyps on the wall of the bladder.  Subsequent cautery, and follow up has shown me to be bladder cancer free for over 10 years now.  If it's not metastasized, or gone through the wall of the bladder, minor non-invasive surgery may be all thats needed.  That was my situation at any rate.

I now have un-related kidney cancer awaiting surgery, but the BC is a done deal, for me, other than annual cystoscopy.  Hope this helps you.

justsayin's picture
justsayin
Posts: 15
Joined: Mar 2013

Hi Ashley and Dave Otto,

I had kidney cancer first - started with blood in my urine.  I had my right kidney removed 3 years ago and so far my remaining kidney is doing well.  I will have scans every year to keep an eye on it.

This past February, I had blood in my urine again. (lots of clots and deep red).  The cystoscopy confirmed 5 tumors which were removed.  I have to have a cystoscopy every three months for the next two years, then as long as there are no tumors, I will got to every 6 months for 3 years, then again, if there are no tumors, I will go to once a year.

I'm not sure how things turned out for your Dad Ashley, or how your Kidney surgery went for you Dave, but I became very depressed after my second diagnosis.  I was stuck in the why me phase and was constantly wondering "is this the last time I will do this"  whenever I did a seasonal task such as holiday decorating, pool opening, pool closing etc.  Thankfully I found this site and after reading other survivor's stories, I realized that I'm not alone in my feelings.  The good news is, we are all getting tested regularly, so if a reoccurance happens, it will be early and hopefully treatable.

Best of luck to you all and your families.

 

Jean

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