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Gary!!!

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

Hey Gary, I am soooooo glad you are back...we missed you Kiss

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

I agree with you, Eims, but was it really necessary to create a new thread just to say that?  (The more unnecessary threads we set up the more we lose track of important threads that get pushed out of site by such ephemera.)

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

tex you may not be impressed at some of the threads up here but some of us actually like a bit of light hearted relief and in some  respect we need it.  i do appreciate your views but honestly tex some of us come here sometimes to talk about anything but cancer.  i don't see anything in the rules that we need to talk about it all the time!!!!  i am hoping you were just having an off day and we are all entitled to those too.

 

eims x

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Eims, you're right - I'm not impressed, but you're missing my point. 

You can't have read more than a handful of messages here if you haven't noticed that I fully approve of light-heartedness here and, in fact, I'm a major contributor on that front, whether I'm having an off day or not (and most of my days are off days - I'm writing in the small hours right now because I'm in too much pain to sleep).  But I don't start a new thread for every posting.  My point wasn't about what you said (I carefully pointed out that I agree with you) but that you could have said it in an existing thread instead of starting a new one.  People starting new threads all the time, for no good reason,  do us all no favours and undermine the value of the forum. 

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

tex i know that you are a major contributor on this and you have helped me so much too and i am very grateful to you but this forum is not just for information but for reaching out and touching base with fellow kidney cancer sufferers, fighters and most importantly survivors so it really doesn't matter how many threads there are and for me the more the better!!!  i am sorry if i got on your goat but we all contribute here in our own way.  i do hope you are not in too much pain today and i hope you get some respite tonight.

eims x

Galrim's picture
Galrim
Posts: 278
Joined: Apr 2013

Yes, theres no rules to what one can post, or when, or how often. and no one here would or should police this forum.

However, if everyone uses the forum for posts that might as well could be sent as private messages, this place would be swamped with posts and impossible to navigate. Example: I have been out of the loop for 4 weeks due to vacation, and just off the top of my mind I could have posted:

"How did the examinations go Djinnie?"

"I hope youre alright Fox, all things considered, after starting IL-2?"

"Anyone heard from Nano recently? I cant see any recent postings from him"

"Why is Michaels avatar a dog now? Did I miss something?"

"Eims, arent your scans coming up soon? Are you okay with the scanxiety?"

All of the above I could have sent as pm´s or found a relevant thread for. Point being, as Texas wrote, lets not clutter the board more than we have to.

And Eims, I hope you know, but i will state it anyway, this isnt directed to you, its a general observation and comment intended to be for everyones benefit :-)

/G

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Thanks for backing me on this one.  EIms's reply has made me so despondent that I am close to the point of abandoning CSN in despair, particularly in view of the degree to which the forum has become trivialised in recent months and there's less and less value in coming to the site.  

When I said I've been a major contributor here, I was referring solely to the matter of being light-hearted and I feel that, along with Gary, I've been a leader in doing that!  I think it's one of the crucial elements of the forum. 

However, the forum is for "kidney cancer" and anyone who wants to avoid thinking about cancer should go elsewhere rather than sabotage the forum by talking about everything other than cancer.   I find it depressing that a valuable resource is being subverted by much rushing to offer hankies and soothing words whenever some one thinks they may be about to go down with a cold, or is in a blue funk just because they have a scan coming up.  In any case, it's not a helpful attitude to talk oneself ill with worry about essential procedures that are designed to help protect one's health.

Galrim's picture
Galrim
Posts: 278
Joined: Apr 2013

Its about making this site user friendly and meeting the wide range of needs. One way, and I have considered mailing CSN about it, would be to have sub forums to make the sorting and navigating easier. A pretty standard feature in forums with numerous posts

Off the top of my head:

Main forum Kidney cancer (of course). Once you click on that, possible sub forums could be:

Sub forums:

Caring and sharing

Treatment and diagnosis/prognosis

News and developments in kidney cancer treatment

Off-topic

 

/G

 

 

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

It certainly beats having to agree communally on what percentage of the community discussion is clinical-treatment focused and what percentage can be life sharing, uplifting communication without having to explain.

On the communal side, perhaps we can have one group for tattoos, one for motorcycles, and one for having a place where you can talk about your RCC with people who don't look at you like you are going to drop dead at their feet.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Its nice to be missed...I was on a little motorcycle trip with a couple of friends...great fun!!!

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

Wonderful to see your glowing Tattooed self back here!

Lagavulin around for all!

foxhd's picture
foxhd
Posts: 1923
Joined: Oct 2011

Did you sneer at little old ladies and children? Fun huh? Nuttin like getting away on the Harley's. Glad you are riding.

TillieSOK's picture
TillieSOK
Posts: 237
Joined: Jul 2013

Welcome back, Big Boy!  Good to see your tattooed bicep back on here!

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Hubby and I would be hard pressed to find a better form of therapy than a nice long ride on our Harley.  So, Keep Calm and Ride On, Gary!! 

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

oh god you are all making want a harley!!!  i'd love that and i know its gonna take me a few more years to persuade my hubby to do it with me!!

eims x

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Eims, there's nothing quite like it!  Granted, we don't do 3,200+ miles in 8 days...that's hardcore!!  Hubby would be in hog heaven on a ride like that but, I tend to sit the overnighters out.  We do our fair share of fundraiser runs and I'll tell ya what, there's nothing quite like the sight of hundreds of bikers bringing toys for tots at Christmas time...just warms the heart!   My hubby would LOVE for me to learn to ride and have my own Harley but I'm perfectly happy riding b****, as they say.  Perhaps if you got a bike, hubby would follow suit.  It's some of the best quality time we share.

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

That Gary is "hardcore" in more ways than one.

I am seaching for cast lists from some "studios" now for proof!

Laughing

garym's picture
garym
Posts: 1651
Joined: Nov 2009

My core may have softened a bit over the years, but I'm still bad to the bone.

Ya know what they say..."I may not be as good as I once was, but I'm as good once as I ever was!"

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

love it xxx

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Does 3,200+ miles in 8 days qualify?

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

wow gary well done you.........did you know that ride has 2 meanings here in ireland??!!!!  google it Laughing

eims x

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Yer makin' me blush Embarassed

jknorth's picture
jknorth
Posts: 44
Joined: May 2013

When I have ten minutes to waste before bedtime and I realize what just happened to me, flashback to this site, all I want to read is the latest on anything to do with Kidney Cancer, latest wannabee cures, latest miracle drugs, survival rates, follow up catscan sharing, latest anything for survival, the robotic related stuff I really relate too. Digging through some other stuff makes my 10 minutes a quick exit as the 10 minutes goes pretty fast.

jknorth's picture
jknorth
Posts: 44
Joined: May 2013

When I have ten minutes to waste before bedtime and I realize what just happened to me, flashback to this site, all I want to read is the latest on anything to do with Kidney Cancer, latest wannabee cures, latest miracle drugs, survival rates, follow up catscan sharing, latest anything for survival, the robotic related stuff I really relate too. Digging through some other stuff makes my 10 minutes a quick exit as the 10 minutes goes pretty fast.

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