Aug 19, 2013 - 9:20 pm
Sorry its been so long..daughter was home for the summer and we actually got to keep the grandbabies for longer than a few days for the first time in a year..then we took an actual vacation for the first time in 15 years :D was a busy summer..
Okay here goes I am almost afraid to say it...It looks like at least for now as of today Chuck has had an almost complete response..the almost is becausea lymphnode they have been watching stabilized but has not shrunk yet..the radiologist reading the scans called the Dr (he was one who had never read Chucks scans before) and asked if Chuck really had metistatic disease..so the Dr refered him back to Chucks April scans for review...it takes a while for news like to sink in..we are hoping it will be a sustained response because as you know with immunotherapy it sometimes is not..whats next? It looks like possibly a few more doses of Nivolumab ..then he may go off it..because they are afraid with no solid tumors to fight it may turn toxic..then we wait..to see if its sustained..today is a good day! and hope is a beautiful word..
These drugs offer something that those going through this and their families do not find in the old data..HOPE..we are headed to Tn to see the grandbabies tomorrow..but when we get back I am going to start a letter to the FDA..these drugs need to be approved so more people get access to them!
Have a wonderful night everyone! Hugggsss
P.s. won't stay away so long this time I promise!
One more thing Dr Amin and his staff are amazing we will never be able to thank them enough! God answers prayers and he led us to a great place!