Aug 19, 2013 - 3:30 pm
My grandmother was diagnosed in March of 2013 with DLBCL at 71 years old and scheduled for 6 R-CHOP treatments. The first was terrible and she was hospitalized for 21 days. Each new treatment got easier and more tolerable, and she was able to receive outpatient cocktails through her port. Right before her 6th treatment, in July of '13, she started loosing her balance and strength and fell on her way to the ER For pain. She suffered stroke like symptoms with her left side pretty much paralyzed. After Dr decided she was too weak for 6th treatment she was transferred to a rehab facility to work on strength. While at the rehab for almost 3 weeks, she deteriorated rapidly. Lost feeling in right hand, food went from chopped to liquid to nectar to a feeding tube. She cannot speak, have a sip of water, nothing. She has good days where we can almost hear her whispers and she has bad days where we wonder if she'll make it through the night. She was transported back to hospital where they have now found the cancer in her brain and spine. She got an Ommaya port and started cytarabine. Has anyone eer experienced this much? How much is too much? Have you witnessed or lived through this terrible of a nightmare? We are so scared and continue to pray constantly, however, hearing a similar story would help me get through this. I search all day and all night (I have a newborn) for similar stories and all I find is brief survival stories with "it was rough." Is there somewhere to go to read how rough it actually got? I'm spinning in circles and every corner is making this nightmare worse...