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Second R-DHAC starts tomorrow

Shoopy
Posts: 210
Joined: Jul 2013

Howdy all,

My second round of R-DHAC should start tomorrow.  If the doctor is happy with my progress, I'll receive Rituxin tomorrow as an outpatient then go into Area 51 (Roswell Park) from Tuesday through Thursday for the rest of the fun.  My white count has rebounded nicely...almost to 5.0.  My platelets have rebounded as well to almost 116k.  My hemoglobin has been just hovering between 8.2-8.4.  My biggest concern is my LDH.  It was over 2600 on 6/30 and is now sitting at 960 (as of Saturday).  It was as low as 550 the week before.  Not sure if that's normal.  Also my spleen is still giving me some dull pain.

I'm sure I'll get the doctor's opinion tomorrow but, as all of you can attest, today is a bit stressful.  Will I hear "All is going to plan, don't worry, let's start your second round" or will I hear "We're not really happy with X, Y, Z"?  I've had a lot of good news lately.  I've been feeling better in general.  I've been walking 2 miles a day.  It's just that pre-doctor visit stress that we probably all feel.  The fact I've heard "It isn't working" after two rounds of R-CHOP probably has me a bit jaded.

I knew this would be physically challenging but I am now realizing how mentally challenging this is.  I thank God every day for my support folks (people here, family, friends, etc). 

Well, that's all for now.  I'm sure I'll have some update for everyone tomorrow!

Karl

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

I think we all know about the stress of appts. and test. I had Follicular and not your type. Wishing you LUCK.  John

allmost60's picture
allmost60
Posts: 3185
Joined: Jul 2010

Hi Karl,

 What your feeling is totally understandable,especially with the R-CHOP having failed after 2 rounds. Sounds like you are doing pretty darn good if your feeling well enough to walk 2 miles a day! Good for you!  It's easy for me to say.."don't worry, stay calm", but as we all know that's a whole lot easier said than done. So...I'm just going to think good positive thoughts, say a prayer, and wish you a good nights sleep. Tomorrow will be, what tomorrow will be, so I'll just stay in this day for you. We will appreciate a quick note saying all went well after your Rituxan infusion and you got a thumbs up for round 2. How's that for positive thinking? Wink Hang in there friend...we are here for you.  Sue

(FNHL-2-3a-6/10-age62) In remission

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

Good for you on the walking!  I can only agree with what the others have posted and wish you the best of luck tomorrow and send you big positive hugs!

Jim

nhldaughter
Posts: 69
Joined: Nov 2010

Hope all goes in the direction that is meant to be in the best interest of your future, Karl. It's hard to have any words that will take away your  worry or stress. However, the fact that you are walking 2 miles is a fabulous sign! I will say a prayer for you tonight and hope you share good news with us soon. 

Rocquie's picture
Rocquie
Posts: 605
Joined: Mar 2013

Karl, I'm thinking of you today. I hope all is on track and you receive your Rituxan today, then off to Roswell tomorrow as planned.

If we only had the physical effects of this journey, it would surely be easier. I found the mental and emotional aspects are much more of a challenge. I still struggle with that part.

I know you will get a lot of petting, attention, and tender loving care for the next few days. And breakfast in bed.  Just go ahead and enjoy that part.  Those Oncology Nurses are Angels!

(((Hugs))) and prayers,

Rocquie

 

Shoopy
Posts: 210
Joined: Jul 2013

Thanks to all for the words of encouragement and support.

As expected everything is fine.  I received Rituxin a little while ago.  I'm so lucky that I don't have any adverse reactions from any of the drugs.  So tomorrow it will be off to Area 51.

They aren't worried about my spleen thinking that it was so large and it's probably just scar tissue.  They aren't worried about my LDH either.  They said the LDH tends to move around during treatment and 'unless it was closer to 6000'...don't worry.

The thing that concerned me the most was the information on the web about LDH.  The stuff out there paints a very poor picture for those with high LDH (prognosis, relapse, etc).  The doc said that while the LDH is an indicator...the DNA test they performed on my biopsy several weeks ago shows that I'm 'standard risk'...not a 'double or triple hit'.  The DNA test is a much better predictor...which says I should be fine.

So, as I expected, not much to fret about.

Now, make it through the next couple days then have the CT/PET scan in a couple weeks.  That will determine if I go to SCT right away or go for 1-2 more R-DHAC.

Karl

nhldaughter
Posts: 69
Joined: Nov 2010

That's great, Karl! I'm happy for you and pray everything from here on goes as planned. 

allmost60's picture
allmost60
Posts: 3185
Joined: Jul 2010

Hi Karl,

 Thanks for the update and good news! I can't count the times I got myself all worked up and stressed out after reading information on the web. Try to keep it at a minimum and look for current information...so much info is outdated. I'll be thinking good thoughts this week while you receive the rest of your chemo treatment. Good luck and take care...Sue

(FNHL-2-3a-6/10 age 62) In remission

girliefighter's picture
girliefighter
Posts: 225
Joined: Mar 2013

Karl,

Keep the good news coming...I am impressed with the walking, that is great<----Had I have done that I might not have gained 30lbs...lol! Seriously, it's great that you have the energy and strength to do it....Keep that energy and strength at all time highs and you will breeze right through all treatments. I truly believe that your state of mind and spirit, mixed with prayer are the things that shall keep anyone strong throughout treatments that can bring the strongest man to his knees.

I sense that you have a Warrior Spirit and will not give cancer a chance to hold you down!!!

 

XXXOOO

Carie

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