Aug 17, 2013 - 10:00 pm
I am happy to say Rob is doing very well. Some taste has come back. He says that he would rather have saliva than taste. Time i tell him, just give it time.
He no longer is napping in the day although I can hold the couch down pretty well on the weekend. We also joked that he should be a barcalounger tester and I a couch tester.
He is eating really well and is so happy no more PEG. He sleeps more every night, in fact I beat him out of bed this morning, hence the nap.
He did lose almost 40 pounds, which really was good for him, just not the way it had to happen. He looks better to me everyday. At the end of treatment and the few weeks after, I was not sure he was going to make.
He is not back to work yet but hoping to at least go back to the office work in a couple of weeks. His boss told him, whatever he needs. He is a gravel train driver but no way is he ready to be jumping in and out of a truck and hauling around heavy crap all day. So he most likely will be dispatching a littlte while til full strenth is back.
He is back to cutting the grass, although most weeks it takes him 2 days as it is over 5 miles of walking to do it all. He has been helping me in the garden and spending a lot of time outside. He is feel good enough to be stir crazy doing nothing.
We are still fighting getting off the meds. He only takes 5mg of Oxy at bedtime but we are cutting it back a half ml at a time. Slow and steady is working better than the docs recommended. He still gets the jerking/twitching some nights but the meds take care of it for sleep.
We ahd a great weekend away at the lake last weekend and had a great time. He captained the boat while we all did some fishing. He is not really a fisher and the rest of us fake it pretty good. Caught nothing legal but had fun just sitting in the middle of the lake cracking jokes and singing off tune all the while having to call hime El Capitan. We almost through his cockey butt over board.
Hoping everyone is doing as well or at least reading here that you will be. PET scheduled on Sept 16.