Aug 15, 2013 - 11:42 pm
Everyone is so great in helping us learn about what we are up against. But, gosh, right now I hv to say it is overwhelming. Just coping with the acceptance of CA the up coming first day of testing, and then the chemo. It is driving us a little over the edge.
we need to know all this, because I don't want our lack of knowledge to miss a drug like amiphostine to not be an option. Just learned about that one. You would think the docs would go over all options to protect you. Now maybe they will. We hv not been to the first apt yet for start of treatment. But We want to be armed to fight with all the information available.
Is there something to can place in your mouth to protect the tongue From rads bouncing off fillings? Someone mentioned cotton. Could you use the plastic mold used when you whiten your teeth? Or does that not help?
Anyway thks all. Tough week end coming. Go in Mon for pet scan then Tues swallow testing Wed pic Thrus we find out which arm of he MDAnderson research treatment we get Then chemo. BAC caregiver.