Aug 14, 2013 - 8:07 pm
Well, it's been a while since I logged in to update. I've been pretty busy all summer with company visiting, being out of town and zillions of Dr appts. At last posting, I think I was nearing my first biopsy date of May 27th. Well that didn't go off like it should. The radiologist refused to do it, as my tumor is in a precarious spot, butting up against my spleen, and towards the upper backside of the left kidney. Fast forward to today. I've been in a holding pattern waiting on a second forced attempt. I sought a 2nd opinion from a well-respected Uro, who also recommended I do this, however, he's suggesting I have RFA done. It's a two-fold process: bio first, then RFA. My first Uro has basically no clue what to do with me. He doesn't want to operate, nor does he want to do watch/wait. I think he's a moron, but that's besides the point.
This second attempt is not guaranteed. I've been warned they may abort the effort if again the tumor is elusive. It's at least being done by CT, *arg, not again....already had 4 CT's since March*.....Should it fail, I don't know what'll happen. I may choose the "do nothing" option. Not excited about 3 monthly CT's to surveil it, but if I can avoid surgery I will.
This is all on top of other developments. I finally had my breast MRI a week ago-after 4 months on the waitlist. Results indicate a few tumors. Seeing the BS next Monday.
Added to that, new recurrence of a thyroid met in the exact spot I had it removed in May. Wasn't there in my June 10th U/S, but clearly visible at 1.6 cm on Aug 7th. Pretty signifigant growth in 8 weeks. Visit to the ENT end of the month. Very doubtful he will operate again, nor do I want to. He's playing "who's on first" with my Thyca. Radiation Onc is unreachable, but she's useless anyway. It's likely I'll have to go elsewhere for treatment, before it gets too late. It's apparently so aggressive now that they cant remove them quick enough before a new one pops up.
But the most worrisome is the excrutiating back pain I've been in since early July. I imagine it's spinal mets, but I can't get a single doctor to look into it. Hopefully the CT on Friday will spot whatever it is. I'm unable to sleep as the pain starts the second I lay down. Ugh. When it rains....
Anywho, that's the latest. I'm going to try to catch up on everyone's progress on the board.