Aug 14, 2013 - 7:05 pm
It's been awhile since I've posted but I do read many posts. First 90 day post treatment MRI was surgical site where they removed submandibular gland with tumor in it. NED. Had a CT of chest last week and my appointment today with ENT\Surgeon. No evidence of disease in lungs. That’s 180 days post tx. Whew!
I have an appointment in November with Oncologist for a 9 month checkup and won't have another scan for 6 months. Not sure I agree with that as Adenoid Cystic Carcinoma, no matter what stage( for me stage 2 ) is always graded as a high grade malignancy with a very high reoccurrence rate and I feel I should be watched closely. I mentioned this to my ENT and he reassured me I could contact him anytime and, after meeting with Onc in Nov, if I am not comfortable, to see him and he would take care of it. I like my ENT.
Anyway, I feel really good today! Better than I have felt in a couple of years. Most of the side effects of rad tx's are gone, just some stiffness in neck and under chin, I can usually stretch that minor discomfort away. I've put all the weight back on and then some but who's counting?
I am struggling with smoking. Made it 7 months and found myself with a cigarette in my mouth. Quit and started. Quit and started. Quit and on day 5. Will wake up and ask for strength. Ugh! You think with a c dx it would be easy.