Aug 13, 2013 - 9:30 pm
Hi everyone, this is my first post to CSN
In April 2010, at 39, i had a hysterectomy done by my gyn, not a gyn/onc. The endometrial tumor was rather large at 10x5 cm, and was a grade 2, with a nuclear cell of 2-3. I not only had no lymph nodes taken but also had no "experienced eyes". The gyn/onc i was referred to, i can say in the two times i met with him, had the mindset of "out to lunch". When i finally connected with another gyn/onc, eight months later, he could not believe given the size of malignancy and more agressive grade that i had not had any staging surgery done and said i would have a significant risk for recurrance. About 4 months ago, i began having a pain in my left pelvis/hip and low back, intermittent at first but has become much more troublesome along with long time bowel problems (constipation etc). I recently (8/7) had a routine 6 month appt with the gyn/onc, the appt was a "train wreck", he had a student doc with him, which i don't mind, but made matters worse. Because gyn/onc are so limited, in my area, the appt times are way to short, and i can accept that too, what i can not accept is this doc being negligent. He brushed off everything, i brought to his attention regarding this discomfort i am dealing with. He told me to see an orthopedic doctor, and i am thinking, this could be a pelvic lymph node etc pressing on a nerve, am pretty sure not like a bone/orthopedic situation, it feels different and i have, what feels almost like pressure in the left pelvis. I brought up possibly having a pet scan, i have never had one, and he practically laughed at me. This is not the first time, i have seen this cavilier attitude in him or brushed off concerns but this is the first time i have been in this kind of pain. I went home and thought about it for a day and decided to schedule another appt, where both my husband and myself can speak to him. I would like to request again a pet scan, but am looking to see if that would be useful or maybe an mri is better, i have have had ct scans, but actually ct scans have missed different things occasionally, so i am not sure if i would be satisfied with just that or not. Any suggestions/ideas would be super appreciated, thanks so much.