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pro-active instead of re-active

katenorwood
Posts: 1863
Joined: May 2012

Hey everyone !

Well made the appointment with the onc's at the U.  Rolie also has a re-check with his team for his annual diabetes check the same day.  Killing two birds with one stone so to speak.  Our daughter's will be coming with....because of Rolies vision and our appointments being so close together.....one will stay with him, and the other with me.  Such good kids, we are so lucky ! 

They are planning a biopsy in office the day of my re-check, and of coarse scoping.  We can also go over my tumor profile I had done back months ago.  I think the medical onc. (who is very good) will be going over this with me.  I have 3 alterations breaks in my DNA....very common in ACC patients....but saying this....none that were showing were specific to adcc.  But with so little tracking of this dx....maybe not so.  

I also decided on one of those walkers with a seat in it.  (instead of the chair for now)  And I talked my primary into a PT plan at the clinic near us....to strenghthen my muscles.  I don't think this will make my lungs repair themselves.....but for me it's a quality of life issue.  We'll try to tailor it to specific ideologies for my health issues and needs.  They have awesome machines that are low impact....and I guess I want this for me. 

So, saying this.....I continue to express.....we are our best advocates......and living life as we see fit...when finding ourselves in a position (transitioning) through all of life's little adventures. 

Oh please keep my daughter Jayne in your prayers....she's going through some intense testing on thursday.  I will be with her.  We won't mention the C-word here.....because I won't accept it !  Only good thoughts....only good outcomes !   Hugs to all !   Katie 

Skiffin16's picture
Skiffin16
Posts: 8104
Joined: Sep 2009

Nothing but good mojo your way.....

Thoughts, Prayers and Well Wishes for all your way...

John

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

katie, saying prayers for all of you.  let us know how jayne is.

dj

CivilMatt's picture
CivilMatt
Posts: 3093
Joined: May 2012

Katie,

I feel that Katie determination growing.  I hope things fall your way.

Best of luck and only good thoughts,

Matt

phrannie51's picture
phrannie51
Posts: 3852
Joined: Mar 2012

to you, Rollie and your daughter.

Sounds like you've put on your fighters hat once again.....GOOD!!  Everybody has down times, and we (or at least I) forget that they pass just like the good times. 

Glad to know you're back to your proactive self, girl.....PT will be great for getting some of your strength back. 

p

jim and i's picture
jim and i
Posts: 1686
Joined: May 2011

Absolutely sending postive thoughts and prayers.

Debbie

Hondo's picture
Hondo
Posts: 5936
Joined: Apr 2009

 

Keeping you and all the family in prayer, sometimes we forget our caretakers need a little help and prayer themselves.

 

Blessing coming your way

Tim Hondo

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

I agree, we will NOT participate in that negativity!!

It will all work out!!

Best

Mike

hwt's picture
hwt
Posts: 2008
Joined: Jun 2012

Good thoughts and prayers for you and our family

Candi

TracyLynn72's picture
TracyLynn72
Posts: 747
Joined: May 2013

Prayers for you and your daughter!  You are such a warrior..keep up that fight!  Please keep us updated and know we're all on your side!  ((HUGS))

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