Aug 12, 2013 - 4:23 pm
I'm new to this site, found it while researching for answers to better understand the tests my dr is ordering and what he is telling me.
Basically I am at the point of having a ca125 test done. He says it's just a precaution and that he thinks that the 'complex' cyst I have is probably benign.
He said if my numbers come back good then I can take a wait and see approach but if the cyst bothers me physically he would remove it. So nothing to worry about right?
Why I am worried- upon researching I have found various opinions on if the ca125 is accurate in diagnosis. If numbers are low, I could still have cancer depending on other criteria. If they are high, it does not mean I have cancer.. am I understanding this right? Not sure I understand how this is a useful test...
In the beginning 16 months ago I had unusual bleeding, upon testing found precancer cells. Had ablation and repeated checkups. That part has been fine, at that time I then had my first ultrasound. The first one was a base ultrasound showed a cyst on the right and left ovary but very small. Most recent ultra sound showed no cyst on the right but increased growth in the 'complex cyst' on the left which is why he is ordering the ca125. I also have had pain in my right ovary area which has been diagnosed as low back pain, (pain has steadily been getting worse over the course of several yrs) only that one area, so I worry that is somehow related to my ovaries yet the dr tells me no, it's just low back pain. Back pain dr said my discs are fine and that I just need to excercise. I am 42, 5'3 and 130 lbs. I am fit. I'm just saying that I am not sure either dr is right and since I have ovary issues and am being tested for ca125 I'm worried the pain I've been feeling is from the ovaries afterall. How do I get through to my dr that I feel this pain could somehow be related and take a bigger look?
So basically now I am trying to figure out what is generally done if a ca125 numbers come back not in favor of the person. My dr never stated other than whether they are good or not I could opt to have surgergical removal. Also, I am fatigued easy though I am fit. I feel my lymph nodes throbbing at times. I've discussed this w/ my dr. I don't want to be dramatic but I don't want him to just brush things off easily either.
Any insight or advice is appreciated. I get the lab done this week, but the dr said it would be 10 days before he'd be able to let me know the results.