Aug 10, 2013 - 2:08 pm
I haven't posted a thread here in probably a year because everything has been going relatively well since my treatment. Just had my 3rd PET scan last week but my Dr. didn't set up an appt. for the results. If all is well they will probably mail me the results.
Being only 16 months out of radiation treatment I am still seeing my H & N surgeon 3-4 times per year. This last visit three weeks ago (when he ordered the PET) I asked how many years I will have to see him this many times. His response was not what I expected. Instead of the normal 5 years that most other cancers have, my Mucoepidermoid Carcinoma will continue on for 15 years! He said because of the slow growth of this type of cancer, that is what is recommended. That surprised me because the survival rate is about 90% when caught early and with clear margins like mine. Okay, whatever.
My right neck is still a little numb from the neck dissection but the scar is almost completely hidden in fold of my neck. I notice the crooked smile and lack of muscle on my right neck but no one else does. Still taking Gabapentin for nerve pain down my shoulder but it lessens every day. On the whole, I'm doing quite well. And so far I have not lost any teeth. I know it's still early but I want to keep my chompers as long as possible. Doing the flouride every night like a good patient.
The main reason I wanted to post was to put the keywords of Mucoepidermoid Carcinoma in here in case another person joins our group and does a word search. I feel a little bad because I noticed a member posted several months ago who had exactly the same cancer and her tumor was BOT like mine. It is a very rare cancer especially on the BOT. I didn't have a chance to respond because I hadn't logged in for months. So there, now the words are in this post just in case.
Thank You all once more for your encouragement and friendship you showed me in my darkest hours.