Aug 09, 2013 - 3:38 am
Writing from California. Hi to those I've talked to before. Some usernames I recognize and get happy to see.
I return here in a bad state after two years. my loving mother who means the world to her three daughters was diagnosed with follicular lymphoma grade 3A (i think) in 10/2010. she underwent 4 cycles of B-R and was clean. then she did 4 or 6 (can't think as i'm a mess) cycles of rituxen every 3 months. we had to stop the last 2 because she had a herniated disc and did emergency spine surgery which had horrible recovery. now we just got a confirmed core biopsy result that it is back as diffuse large B cell aggressive lymhoma. she is almost 70 and weak from the spine surgery and recent shingles attack. the UCLA oncologist just told us today she needs to start EPOCH R immediately and be hospitalized. we were almost thinking going the palliative route as within the last 5 days she has had constant fever and lumps in her underam are getting bigger and more. i feel like it was a sudden downfall within the past week, though symptoms had started 1.5 months ago, until this was caught two weeks ago. i partly blame her oncologist hence we've switched to UCLA. PET scan had also shown activity in her umblical area and we feel lumps there. the UCLA doctor said, no we do treatment in hopes to clear it. should we???? from my reading of 3 years ago when she was diagnosed i recall if there is relapse and it comes back as diffuse large cell prognosis is not good. my mother has suffered a lot since 2010, should we put her through more? her english is not good and she can't make use of this great community here. she too is not sure. please help. should we do treatment as the UCLA doctor said? tomorrow we take her to City of Hope too to see what they recommend. I am in panic of losing days here and there and it growing uncontrollably all over. she feels weaker and not herself as each day goes by. fever only controlled at 100 degrees by vicodin and tylonel. please advise! anyone with a similar situation. we don't want to be hopeless, but it's SO hard not to be when you see her and read statistics! Thank you!