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My mom has extensive SCLC/mets

gillimom's picture
gillimom
Posts: 5
Joined: Jul 2013

The Monday after Mother's Day of this year, my mom was diagnosed with extensive small cell lung cancer. After many tests, it was discovered that it has spread into her liver, her skill bone, her lympnodes as well as other bones in her body, it is widespread.

She has been in and out of the hospital since the second week of May 2013. She had her first round of chemo on May 26, 27 and 28. She is receiving eptisode and carboplastin on a every 21 day schedule. She wasn't able to take her second round until July 1, 2 and 3.  Her most recent chemo scheduled July 22, 23 and 24 had to be postponed due to being in the hospital again on July 11 for having low blood counts and a fever.

Now since in the hospital she has still been running a low grade fever and have done every test or scan to determine there is no infection.We are now waiting for her to be discharged here probably by the end of the week. 

I hate seeing my mom detoriate like this. She was always a hardworking woman that hardly ever sat down or do something for herself.  She used to enjoy sewing and crafts, but now it's hard for her just to get through the day without vomiting or having a fever.

Her prognosis is not good, sometimes I wonder if she should put herself through the treatments or just live her life the best she can with the time she has left.  

dennycee
Posts: 685
Joined: Mar 2011

I am so sorry she is experiencing this.  has she expressed her fears of things along those lines to you?   This is a family disease and it can be far more devastating to the family.  I'm glad that we are here for you to vent to.  Please take care of yourself.  your hospital should have a support group for caretakers.  it would help you immensely to talk with others in your position.  If you are not able to find a group Lungevity has a telephone buddy system and the online chat here can be very helpful too.  

This is probably the hardest thing you will do in your adult life.  After my mom died from Lung Cancer my sister and I both expressed that we felt like midwives helping her get ready for the next world.  I was with her when she breathed her last and it was oddly comforting being there. 

 

jim and i's picture
jim and i
Posts: 1666
Joined: May 2011

So sad to watch a loved one suffer. Yet so heart breaking to think of losing them. Ultimately it is the patient that decides to fight or to let go. I pray for your mothers comfort. As a care taker I know how we tend to hold in our fears and tears, especially in front of our loved one so be sure you find relief somewhere, a support group, a friend or family member. And if you are a believer, contact a pastor for support, even if you do not regularly attend a church.

Debbie

 

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