Aug 08, 2013 - 10:22 pm
I wanted to know if there are any people with similar cirstances to me. I had severe stomach pain in April thisnyear andnthe dr sent me for an ultrasound suious it was my gall bladder. The ultrasound tech told me my gall bladder was fine so I didn't go back to collect results and put it down to a strange virus.
I went back to the dr about 3 weeks later for the flu and was told the scan had picked up a suspected 3.8cm angiomyolipoma in the middle of my left kidney.
I had ct scans which revealed the tumour was solid. In the mean time I had been getting pains on my left side to the extent my left rib cage was noticeably higher than my right. All drs kept telling me was I was too young (I'm 35) and didn't fit any of the risk categories. I'm an ex smoker, healthy weight range etc. I was also told all along that I shouldn't be getting pains.
I was fatigued and feeling worse quite quickly. I finally got in to a specialist who referred me for a biopsy which revealed the tumour was chromophobe renal cell carcinoma.
I had a radical nephrectomy of my left kidney two weeks ago. I have been recovering well but I am still swollen in the middle. Can anyone tell me how long it takrs to go away? I also almost faint pretty much every time I stand. I just crouch or lean against something until the dizziness subaides and then I am fine. Has anyone else experienced this? If so, how long does it last. Other than that I am off pain meds and getting out and about and I'm now able to look after my 3 yr old daughter while my partner is at work.
My follow up is in 10 days and I'm nervous and hoping that the cancer was contained to the tumour. From what I've read there isn't any affective treatment for chromophobe rcc if it spreads other than surgery.
Looking forward to hearing from people.