Aug 08, 2013 - 11:57 am
Hi All..! OK, so a few of us have had Renal Vein Invasion. So, I thought this should be discussed a bit and maybe we and others may learn about our experiences. First I will say that thanks to a great surgeon at Stanford, my surgery went well. What he did was to have me do multiple Scans so that as he said.. "not find any surprizes when he opened me up." This turned out to be the right methodology for me and maybe others. A bit of history, I had was was thought to be Kidney Stones in January, 2012. But after about a month, my Urologist thought that an MRI was in order to see how many stones and how big... Surprize..!! A huge tumor was found.. and the "trip" started. So that first scan was only looking for Stones (No Keith Richard..) but the Doc that did the scan review noted several other concerns. One was some Renal Veing blockage, a couple of spine issues, a couple of cysts in the other Kidney and a spot(s).?) in my left lung. So when I got to my Surgeon he wanted better pictures and to KNOW what was going on inside me. Smart doctor..!
So, yes I had Renal Vein Invasion - Cancer of course. I had Cancer on it's way to both my Heart and Liver, but luckily it did not get there at that time. My back issues indeed were bike / car adccient related, the lung spots were undefined but not considered to be Cancer. My Kidney Surgeon postponed my surgery to get a second "hand" a Liver surgeon to handle the Renal Vein issue. My Doc told me he sees a case like mine about twice a year. Most other hospitals may not know what to do should they come across such a case and it could end up being really bad or a second surgery or.???
To "fix" me up, of course my left Kidney with a large 14 by 12 CM tumore was removed (late stage 3), and the Liver Doc did a procedure where he opened up the Renal Vein and scraped the Cancer out of it. This part of the procedure was very long and was dangerous to my remaining Kidney. In fact they were worried my remaining (right) Kidney could / would fail. Luckily my Kidney bounced back, no Dialysis neded.. whew..! I was 10 days in the ICU waiting for my Kidney to respond. OK, so I did have some unclear area in my Renal Vein post surgery for several scans. Then came the news of Mets to my Lungs and Adrenal Gland. Now that I had a few months of Votrient treatment the latest scans showed no more concern about my Renal Vein.. Not sure if that is connected or not, but thought it was worth mentioning..
So, I ask those that have also had Renal Vein Invasion to tell me (us) your story.. how did that part get handled..? Do you know how much invasion you had..?? Were your follow up scans clear in that area..??
Be Well All..!!