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Does my fatigue last forever and will I be able to excercise with one kidney.

fluffylove's picture
fluffylove
Posts: 19
Joined: Feb 2013

I had part of my kidney removed in March this year then on 2nd July had it completely removed. The news is I should be cancer free. So to my question, I wondered how long this fatigue will last it just hits you like a brick wall, I do intend to go back to work by November. Also would like to be fit for purpose and wondered about swimming and walking, apparantly no jumping out of planes or rugby (shame) that is contact sport is allowed. To reflect four weeks post op any suggestions would be appreciated. Oh and also how long does swelling take to go down, look pregnant but hay at least I am still here. Regards to all.

fluffylove's picture
fluffylove
Posts: 19
Joined: Feb 2013

first draft was better, did it again as thought lost text.

therapture
Posts: 25
Joined: Dec 2012

I took naps for the first couple of months. Especially about 12:00 or 1:00, my body just wanted it! It WILL come back, the energy will return, your body has been assaulted, more so than we think. My swelling took about 7-8 weeks to really go away. I still have some minor soreness from scar tissue, but nothing bothersome. What kind of surgery did you have?

 

It's not a good club to be in, but most of the people in the club are cool people and we share in the compassion for each other, the understanding of a common frame of life.

 

I don't post much, but I lurk here ever since my diagnosis on 11-27-12. I can't wait to get a new tattoo that reflects my struggles, and to get my new Ironman tattoo after I earn it.

 

Plan something cool, something new, something a little bit crazy, for after you are healed. You will heal!

fluffylove's picture
fluffylove
Posts: 19
Joined: Feb 2013

Thank you for your post. I had a parital removal of kidney and cancer tumour in March then they found the cancer was more aggressive than first thought so back in on 2nd July for whole kidney removal. They wanted to do keyhole but due to complications drain leaking into stomach after first op they had to abort and cut me open again. So kinda cut in half so to speak.

Glad to know swelling will start to go down, not in any pain. But yes fatigue is a pain and does make me consider what I am doing and when I can rest. I normally hit a wall about 1-3pm in afternoon and have to at least lie down if not nap. Im 51 not 90 very frustrating indeed.

I have a friend in the Caman Islands (near you America that is) who I have been in contact with since I was 16teen, have an open invite to go over and visit. Bet insurance will be expensive now huh! point is been putting it off but maybe I need to do just that.

something new! got the message loud and clear and thank you.

 

DonMiller's picture
DonMiller
Posts: 96
Joined: Feb 2013

Hi.  I am six years older than you but I think we are dealing with two separate although related issues.  I was over on your side of the pond last month to see one of my boys get his LLM from Cambridge.  I was surrounded by all these bright strong young lawyers from Britain France and the US.   It always seemed I the youngest person in the room and suddenly I was the oldest and beat down a bit by this cancer thing too.  It is true these young men and women can do certain things I can’t too as well anymore….physically and mentally…….no question.   We have other skills now……..including the kind of judgment that  only comes from years of experience…. skills that these guys can’t even begin to compete with and won’t for years to come.  My Surgery was last October and my cancer was locally pretty advanced so each scan is a little stressful. Do I truthfully feel 100%?  No.  But I am pretty damn close.  In fact I exercise more and have a far better diet then I used too. It is just as unacceptable to be defined by age as it is cancer.  Lots more to do!        

fluffylove's picture
fluffylove
Posts: 19
Joined: Feb 2013

Just wanted to acknowledge the content of your post. I have been very lucky in finding my cancer so soon and seems like the prognosis is looking good, will know more on Friday. From reading your post it reminded me that I owe it to myself to keep myself healthy and I intend to start swimming again as soon as I can.

This journey has made me appreciate life more and made me more aware of the people around me who care about me and have been so supportive, which in itself has been a surprise and a blessing. Who would have known I was a nice person.

I realize I have a lot more to offer and your right that does come from experience, thank you for reminding me of that Smile.

At work I am being missed and If I allow myself to listen, the message is clear they are missing me not just my skills that I offer on a daily basis. To be honest when I think about it, I have always felt respected and listened too at work. Grateful that you made me think about 'who I am in the workplace'.

Thank you again for your kind words - none of us know whats around the corner, its all so scary now. Guess we will both have to take each day at a time. Hope all goes well with you. Regards Tracey.

 

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

I'm 66, not 90! My radical was in May and there are still times I feel like I am hitting the proverbial wall! 

Never forget that you have been assaulted, twice in your case. It takes time for that to heal. Everything inside you has been turned on its head a time or two.  Go with the flow, rest when you body tells you and stay positive!

You have lots of life left to live and lots of time to engage things. Heal first.

Michael

fluffylove's picture
fluffylove
Posts: 19
Joined: Feb 2013

thank you Don miller and Michael what you say makes sense. Felt quite emotional reading your posts. Feel like now I am recovering and everyone says how well I look I should be doing more I guess. Like broken leg is obvious but internal wounds arn't. The word you used was assulted which I hadn't really considered or is it accepted. Accepted whats just happened to me.

As for the age thing looks like I have to do a lot of accepting, funny how if you think too much about something it can make it a self fulfilling prophacy..... memo to self. I am not defined by cancer or my age.

Thank you both for replying to my post, I am so glad I found this site.

 

 

 

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Hi Fluffylove, 

I had my partial at the end of March, I was swollen for a couple of months. The fatigue lasted a while longer, you do begin to wonder if your energy will ever return to normal, but it does. For you it must be like a double wammy, with two ops in such a short space of time. Don't push yourself too much though, you have to be guided by how you feel and what you can cope with.

You are so right in thinking you will not let cancer define you, it is better not to let yourself become absorbed by depressive thoughts. You have your life ahead of you, and lots more positive things to experience in the years to come. Cancer certainly does not deserve pride of place on anyone's mantlepiece. Try to put it behind you, concentrate your mind on getting well and staying fit and healthy. I started going for walks about two weeks post op and swimming after about four weeks. 

Take care:-)

Djinnie x

GSRon's picture
GSRon
Posts: 1214
Joined: Jan 2013

Hi All..!!  OK, I am posting this link that I found yesterday on S.P.  It says it all a lot better than I can....  Watch the whole thing, then let it sink in, if needed...

Ron

http://www.youtube.com/watch?v=YTFPMYGe86s

 

fluffylove's picture
fluffylove
Posts: 19
Joined: Feb 2013

Thank you for your post. I am now one of the lucky ones, recent visit to consultant said I no longer have any signs of cancer. But went into long explainations of how now they realize that did not need to take kidney as the partial did the trick. However, No kidney no cancer. I feel very lucky indeed. My Doctor had said if they found it next year they would not be able to do anything.

I turned 50 last year which was a shock as I didn't see it coming guess life begins at 50. I have found this site so useful and not matched by any in the UK.

I was told in Feb that I am borderline diabetic due to having steriods during my 30's which they say caused it. Funny before Feb I would consider myself  healthy, eating good food, swimming double whammy indeed. So I can start swimming again and adjust any diet as necessary, keep a healthy outlook and get on with it, (as my late mum would say!).

Thank you again regards x

 

 

 

 

fluffylove's picture
fluffylove
Posts: 19
Joined: Feb 2013

Thank you for your post. I am now one of the lucky ones, recent visit to consultant said I no longer have any signs of cancer. But went into long explainations of how now they realize that did not need to take kidney as the partial did the trick. However, No kidney no cancer. I feel very lucky indeed. My Doctor had said if they found it next year they would not be able to do anything.

I turned 50 last year which was a shock as I didn't see it coming guess life begins at 50. I have found this site so useful and not matched by any in the UK.

I was told in Feb that I am borderline diabetic due to having steriods during my 30's which they say caused it. Funny before Feb I would consider myself  healthy, eating good food, swimming double whammy indeed. So I can start swimming again and adjust any diet as necessary, keep a healthy outlook and get on with it, (as my late mum would say!).

Thank you again regards x

 

 

 

 

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