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Cypress Cynthia How Are You Doing?

SIROD's picture
SIROD
Posts: 2119
Joined: Jun 2010

Haven't heard from you in a while, CC, how are you doing?

 

Doris

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VickiSam
Posts: 8220
Joined: Aug 2009

Hoping all is well -  :))))))  perhaps you are busy with Kathleen and wedding preparations --- how's that soon to be granddaughter of your's ?  Bella, right?

Post when possible ..  Doris,  and I worry like two,  90 year old spinsters - when we don't hear from you every few days.

 

Vicki Sam

camul's picture
camul
Posts: 2017
Joined: Dec 2010

Hopefulil we will hear from CC soon.

cinnamonsmile
Posts: 1049
Joined: Dec 2010

I have been wondering about her,too. You get so used to seeing people post on here and notice when they are gone. Isn't it nice to be remember on here when you haven't posted in awhile?

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Pinky68
Posts: 206
Joined: Jul 2012

Im wondering how you are doing too!

Joyce

New Flower
Posts: 3938
Joined: Aug 2009

Eileen how are you?

It has been I ppreciate your recent very moving comment to honor Linda

CypressCynthia's picture
CypressCynthia
Posts: 3919
Joined: Oct 2009

You are all so sweet!!!!  I was hit hard by chemo #5.  I just have to keep telling myself...only one more taxotere! 

I was hit hard first with terrible shoulder pain--could barely move my arms.  Then fever, aches and chills.  Saw onc last week and he thought it was taxotere/neulasta flulike syndrome.  Fever of about 100 persisted for 10 days and it has worn me out.  CBC this am looks good and my wbc's are back up. 

Today was first day without fever.  August 15th is last taxotere.  Hoping I am stronger by then.

I have also been weepier than normal which may be a combination of being worn out and depression.  Thinking I may have to take more than 1/2 low dose lexapro...Lol.  I am sure the sad news on the board, plus my weakened state might be some of this, but my family has a bad history of depression so I am not going to let any of this get me down.

Cancer can just go right to ....!!!!

grannabeth
Posts: 91
Joined: Apr 2013

CypressCynthia, it is so good to hear from you.  I am so sorry to hear that you have had such a rough time with Chemo #5.  You are such a strong woman and you are always there to encourage all of us with your comments and advice. Hang in there CC, we are all pulling for you and praying that you will gain your strength back to move on to your last taxotere round.  You can do it--we all know that you can! We are here for you.

Grannabeth

VickiSam's picture
VickiSam
Posts: 8220
Joined: Aug 2009

 I am not with you, but please know thIat I am there with you,  via cyber space -

Chemo therapy infusion was a total unbearable NIGHTMARE for me. I had ......severe reactions to my chemo drugs (TCH). -- Insomnia, depression. and chronic
fatigue appeared to be my only friends for so long. I was unable to leave my home for weeks at a time, due to low blood counts.

I cried daily, had many very dark days and nights, I did have family around - but found myself lonely and
unable to convey my feelings. I was no longer the Vicki I remembered.  

PUSH, PUSH, PUSH yourself to the finish line --  I will be waiting on the other side with the other PINKs - sipping a sour apple-tini -  Cheering away -- 'YOU MADE IT' CC

Gentle hugs my dear sweet sister,

Vicki Sam

 

CypressCynthia's picture
CypressCynthia
Posts: 3919
Joined: Oct 2009

My first round of chemo 26 years ago was tough on me.  I remember not thinking I could make the second round because I was vomiting so bad.  My elderly dad (a retired physician) showed up in his car with a blanket, pillow and emesis basin and made me go!  He practically had to carry me in; it was that bad.

A few hours later, chemo again, but IV fluids really helped and we worked hard to get my nausea under control (always one of my big problems).

I share all of these horror stories as I think they help others realize that they will get through it.  Thank you for sharing Vicki Sam.  It is lovely to hear from someone who has been there, done that and is now thriving!  I have always been told by physicians that it was ok to take my little 5 mg lexapro, but to understand that that was usually a subtherapeutic dose.  My reply was that I would know now if I got depressed again.  I am boohooing too muc.  Lol, it isn't like my eyes aren't tearing enough from taxotere.  Talked to my doc today and he said to up my dose to 10mg tomorrow, so I will let you know if some of the blues let up. ;-)

I am like you in that I seem to get every single side effect and reaction (but my muga is still ok :-)).  But I am a stubborn cuss and I firmly believe my adherence and dumb luck, no matter how freakin' hard, has kept me alive for these 26 years since diagnosis.

To others, I implore you to get through it somehow, someway, if you can!  I know it is not easy, but my scan being clear makes it worth it. Love to you all!

And Doris, how are you doing?  We have been neck in neck with yucky side effects.  I hope you are doing ok?

camul's picture
camul
Posts: 2017
Joined: Dec 2010

I too was getting more worried by the day, and one thing I would never worry about is you not adhering to your doctors advice. So proud of you for having the strength and stamina to continue with the chemo when it has been such a tough go.
I believe it is that stubbornness, along with adherence, that has kept some of us going so much longer than our doctors ever figured possible!
Hugs and hopng last one is better than the first 5.
Carol

CypressCynthia's picture
CypressCynthia
Posts: 3919
Joined: Oct 2009

Carol, how are you doing?  I think of you and your courage and grace often.  Love your attitude!  Hope you are feeling ok?

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SIROD
Posts: 2119
Joined: Jun 2010

I second CC post, Carol.  You have courage, grace and pure spunk.

Doris

SIROD's picture
SIROD
Posts: 2119
Joined: Jun 2010

Hi CC,

Glad that you posted and relieved us from worrying.  I am so sorry that you have had all this to deal with in the past few weeks.

I like everyone else have felt the passing of Jamie, Claudia and Linda.  On going complaint is fatigue, some due to iron but it wasn't low enough out of normal range for an infusion.  I have a ct scan next week.  I am hoping that the wheezing doesn't mean it's failing.  

My mother had a major stroke a few weeks ago.  She is now childlike and under hospice care in her Assisted Living place.  Until now, I never realized just how much I counted on my parents as my major cheerleaders in this struggle with this disease.  I lost my dad in April and for all purpose I really lost my mother now also.  She has Alzheimrer and with the stroke, she remembers who I am but not much else.

Glad that Taxotere will be over on the 15th.  Then it will be herceptin and the bone strengthener only?

Best,

Doris

 

 

CypressCynthia's picture
CypressCynthia
Posts: 3919
Joined: Oct 2009

Doris, I am so sorry to hear about your parents!  When it rains it pours.  Please ask for help with depression if you need it.

As far as the board goes, I take what works for me and I ignore the rest.  When I was first diagnosed, I couldn't hear the dark side, so I can understand.

Depression has reared its head with me again.  I think my body and mind are overwhelmed.  I never have a problem asking for help with this now.  I went up on my lexapro today as suggested by doc.

Years ago, when I first had a bout with depression, it was so hard for me to get in and see a psychiatrist (no idea why).  There were a lot of circumstances contributing: my dad was dying, issues with my daughter, etc.  I went in blubbering and came out with meds.  Doc said I was going to feel better.  OMG, within a few days the sky looked bluer and my tears were gone.  It was a miracle for me and definitely improved poor Danny's life...Lol.

Getting a little worried that I may have a UTI or something else going on.  Keep having a low-grade temp in the afternoon or evening.  I haven't done this before.  Usually, I have a little temp and diarrhea for about 3 days after chemo and then bounce on back.  I am not bouncing anywhere :-(.  I am going to call in the am.

One onc says herceptin and xgeva and the other (my onc for 26 years) says herceptin, perjeta and xgeva.  Going to have to discuss this when I get through next cycle.  Of course, just herceptin sounds better to me, but, of course, it is my longtime most trusted onc who is suggesting leaving perjeta onboard...sigh.

 

 

SIROD's picture
SIROD
Posts: 2119
Joined: Jun 2010

Hi CC,

Perjeta is newer and if he suggest staying on I think that might be good advice.  Your hair will grow back again being on those drugs.  Are you taking your cranberry pills?  

I had an aunt who died from BC when I was 18 years old, I knew the darker side.  A friend had been diagnose in 1993 and had gone through surgery, treatments, and had been doing well.  She was a year older than I and had a lot in common.  When I was diagnosed in the summer of 1994, I had learned that my friend had just been told that her cancer spread to her liver.  The day I began chemotherapy, a mutual friend called to see how I was doing and after we chatted, she asked if I had seen our friend's obituary.  I never again heard of any one who died so quickly after learning their cancer had spread.  I knew from the start that BC had a very dark side.  

Perhaps I do need a little help getting through this present crisis.  I see my oncologist in a few weeks, perhaps she can give me something to help me out.  It's been a rough summer.  

My mother fell out of her bed last night and they found her on the floor when doing their rounds.  She had a buzzer but it was on her right hand and she can't use her left.  The nurses said they didn't hear her yell help or anything.  My sister and I wonder about the dementia playing a roll in it.  I think Alzheimer is a living hell for those who have to watch as it progresses.  

I will ask for something... after all these years, dealing with so many medical issues, doing great and here I am unraveling.  All I can think about is that old song by the Rolling Stones "Mother's little helper".  I never liked that song at all.   

Hugs to you and let us know what they say about your low grade temperature.

Doris

 

SIROD's picture
SIROD
Posts: 2119
Joined: Jun 2010

I like your post very much.  Just wanted to let you know.

Not sure what a sour apple-tini is but it sounds good.

Best,

Doris

Double Whammy's picture
Double Whammy
Posts: 2267
Joined: Jun 2010

I was told that Taxotere was one of the "easier" chemos, but it sure did a number on me when I was on it.  Maybe it's not Taxotere alone, but Taxotere plus something else, but that potion was sure nasty for me, too and I'm so happy you have only one more cycle of this.  You've really had a tough time and I hate to hear it.  Hope whatever is going on with you infection wise is cleared up quickly.   Definitely hope the increased Lexapro helps.  I was on it throughout my treatments, but seem to be ok without it now.  Sometimes we just need some help and this is one of those times for you.

Suzanne

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