Aug 04, 2013 - 6:44 pm
Steve has been in the hospital for almost one week. Fatigue, poor appetite and difficulty breathing have been the main issues. Many tests have been done. The three sessions of Folfox have not helped. Liver/lung tumors have grown and some new ones have developed. He is very weak. Sleeps almost constantly. Liver function is worse every day. Urine is very dark, bowel movements are very light in color, face and eyes appear jaundiced. We have decided to stop treatment. The plan is for him to go home next week with hospice care. I will take an LOA from my job so that I can look after him. Steve asked the onc how much longer. Onc preferred not to answer. He said there is no way of knowing. I suspect it will not be long.
I am not sure how active I will be on the board as I suspect I will be quite busy. I will let you guys know of any new developments. I want to thank you all for your ongoing support throughout Steve's illness. Without you all, I would have lost my mind ages ago.
Wishing you all the very best,