Aug 01, 2013 - 9:30 pm
Feeling a bit lost and unsure. It's been 19 months since my dx of adcc. Many of you know it's been kind of a wild, uncharted ride I've been on. I did a relatively dumb thing...cancelling my ENT appointment last month. I found a pretty large lump just below the resect site of my original tumor. Feels identical to the original.....and I freaked. My lungs are weak, doubt I could go through anymore surgeries. I been thinking about biopsy to be sure, and then what ? The inner fighter in me says trials...maybe ? Chemo, rads maybe again. I think alot of days I've accepted things....and other days I say hell no....fight some more Kate. I am having problems swallowing, and get really bad (what I call charlie horses) and pain on that right side.
On a lighter note.....I've been spending alot of time with my grandkids. I look at them all with such awe, and gladness in my heart. I am a very blessed woman, and have been doing alot of thanking the higher power for this. Not sure where I'll end up with all of this, but my only hope is that these doctors have learned something from me to maybe help the next person with this crappy rare dx. Hugs sent to you all....and sorry for being so down. Katie