Jul 31, 2013 - 3:18 pm
Here's the deal, as many of you know, my brother, who is 54, just finished up his cancer tx. I would love to put down exactly what he is being treated for, but also as many of you know, my brother doesn't really know, or care. He doesn't know what stage he has, he knows it was in at least one lymph node. He does know that the tumor he had was a T1 and in his left tonsil. This is what I am struggling with -- All along at the beginning, they told my brother that he was HPV-16 positive. He was getting all sorts of tests done to see if he qualified for some kind of trial and then at the end he found out that he was NOT HPV+. He seems to think that he is still positive for HPV (I don't know why), just not 16. I asked him what number he was, 18? He of course, did not know. I have read a lot about all of this, and what I have learned is that in 90% of the cases, if you have HPV throat cancer , it is 16! 90%. So, I say that the odds of him being positive with another strain are obviously very slim. My questions: Is anyone else on here HPV+ with something OTHER than 16, and if they are, are the survival rates for a different number as good as with 16? Also, are there any tonsil cancer survivors on here that were HPV negative who are long term survivors? Like everyone knows, it is "great news" to be HPV+, not so great news if not. I am so scared. I finally just had to put it out there for discussion. Any kind of info would be appreciated. Thanks.