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Recurrent Sweets Syndrome in Left Arm Lymphaedema Post Mastectomy

emamei's picture
emamei
Posts: 144
Joined: Feb 2011

Hello.

It has been a while since I've posted anything here.  I'm nearly two years out, post treatment for Triple Negative Invasive Ductal Carcinoma - Stage 2 - Grade 3.

After all the surgeries (I had three in total) and the removal of 18 Axillary Lymph Nodes, I have Lymphedema in my left arm and hand.  I use compression garments and a pump to manage swelling.

I am presently experiencing my third recurrence of Sweets Syndrome in my affected arm and once again on serious antibiotics.  I see my oncologist later this morning.

For those of you who may not have heard of Sweets Syndrome here is some info from the Mayo Clinic...http://www.mayoclinic.com/health/sweets-syndrome/DS00752

This current bout of Sweets is the 2nd since the beginning of June and I'm really getting scared that it could mean the cancer is making a comeback Cry

Have any of you experienced Sweets Syndrome/Lymphaedema ??  If yes, I'd like to hear from you.  I'm so scared right now.

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

i have no experience with this, but read about it on the website you provided. With the symptoms they stated where in the world did they get such a cute name.

I pray that this goes away and never returns.

Hugs, Sandy

New Flower
Posts: 4031
Joined: Aug 2009

I looked at the pictures and wondered if I have had it. It was diagnosed as allergy and it did happended to me 2 years ago. The treatment was the same steroids- prednisolone.I ahve picture at my page backin 2011 *second or third) page

Pink Rose
Posts: 495
Joined: Nov 2012

I have never heard of this and I am so sorry you have it.  I hope you get rid of it and it never returns.

Hugs, Rose

VickiSam's picture
VickiSam
Posts: 8280
Joined: Aug 2009

this is the first time I've heard of 'Sweets Syndrome' ..  Thank you for posting and bringing this forward.   Many of our Sisters in PINK suffer from Lymphadema .. hoping your link will bring relief to those suffering.

 

Strength, Courage and HOPE for a Cure.

Vicki Sam

 

 

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