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My first exposure to "scanxiety"

BLKJAK
Posts: 108
Joined: Apr 2013

I must say that "scanxiety" surprised me in regards to severity. I was doing OK keeping my mind occupied, but I am having some interesting symptoms. For the past three nights I have had some pretty nasty nightmares that I cannot get away from. Normally I will have an occasional bad dream but I can force myself to wake up and end the dream. These recent dreams are very persistant and withstand waking up. I will wake up and remind myself that it was just a dream, but when I fall back asleep, there it is waiting for me where I left off. Crazy stuff. Last night I took my Lorazepam along with an OxyCodone and the dreams were a little less intense. No memories of something horriffic happening in my dreams.

I had my first scan after three months of votrient use this morning. I had to drink contrast at 7:30am and then again at 8:30am before going in for the scan. That has got to be one of the worst tasting liquids I ever put into my mouth. To me it tastes like a swimming pool cover smells like right out of the packaging. Bonus - I got to the hospital for the scan and learned I was getting more contrast via an IV. What the heck? Why didn't they just skip the personal torture and use the IV for all of it like they did the first time three months ago? My wife and I also noticed that they keep the contrast in a locked refridgerator. Is there some street value to contrast? Do the elderly perhaps like the warm feeling they get after injecting the contrast so they turn to the streets to get their fix? Anyway, I have one more night to get through and I will hear the results tomorrow at noon. I am praying for shrinkage of the tumors. I would settle for no growth. I don't know how I'll react if there is new growth. Regardless, it's out of my control. I can only pray for the best.

Thanks for letting me vent and to share my experiences with all of you.

BLKJAK

Djinnie's picture
Djinnie
Posts: 813
Joined: Apr 2013

It is so difficult controlling our stress levels when it comes to the scans. i will be praying for good results for you tomorrow,  and we will all be sending you positive vibes.

 

Djinnie x

 

donna_lee's picture
donna_lee
Posts: 415
Joined: Feb 2009

of being a survivor.  I won't say the scanxiety will ever go away completely; it just comes with knowing that you're still alive and they need to test to ensure that nothing has grown that shouldn't have.

The lovely liquid is barium sulfate, which will outline your digestive tract and supporting organs.  If you don't want the report to say "you're full of s...", purge before you go in.  Ihe IV radioactive iodine will make you feel hot throughtout the blood vessels, ie., bladder, etc.   That checks your kidney(s), ureters to the urinary bladder and urethra. Quite a rush!

The one drug that was been eliminated is the Acetelcystine or Mucomist.  Many Dr.s use to require it the day before and the morning of the CT.  It wasn't very expensive but smelled and tasted like rotten eggs.  Since there wasn't a great demand for it locally, they only stocked it in liquid form which had to be added to a beverage to mask the flavor.  About a year ago, my primary care doc said medical review board at the local hospital has ruled against it as not doing enough good to benefit the patient.  Finally, oncology caught up with them and said it wouldn't be prescribed for my Sept. test.

Request a written copy of your report plus your labs.  Get on the good side of the oncology nurse assigned/working with your doc.  You can usually call her to get a preliminary of the results prior to your test follow up appointment.  My nurse has been extremely sympathetic to the "need to know," as her husband went through treatment for non-Hodgkin's lymphoma a few years ago.

For me, it's been 7 years, with 2 recurrences.  Not a day goes by that I'm not aware I've had kidney cancer.  But worrying about it is not how I choose to occupy my time and energy. 

We are alive, We have had cancer.  And we are living our lives as best we can.

Go for it.

Donna

Djinnie's picture
Djinnie
Posts: 813
Joined: Apr 2013

BLKJAK, I hope everything went well today with your results:)

All the best

 

Djinnie x

mrs_blkjak's picture
mrs_blkjak
Posts: 87
Joined: Apr 2013

The word is that many of BLKJAK's tumors have shrunk! And a couple look necrotic! So we are moving in the right direction. What an emotionally exhausting day. But a good one. 

Suekub's picture
Suekub
Posts: 124
Joined: Apr 2013

I am so pleased to hear your news. I can't wait until I am able to start treatment which I believe will be Votrient. Still waiting to have MRI this coming Saturday to check my spine met which I hope will not need surgery as it will delay drug treatment even longer.

Sue 

 

BLKJAK
Posts: 108
Joined: Apr 2013

While the shrinkage is small, it is there. There were also no mets found! I want to thank everyone for the support and information shared over the past few months. This site has helped to keep my thoughts realistic and has given me courage. This is sounding like an awards ceremony speech, lol. I guess in some ways it is. 

Keep fighting and kicking cancer's a$$!

Darron's picture
Darron
Posts: 224
Joined: Jun 2013

Congrats on the scan, didn't comment last night, but you have both been in my prayers for peace.

I don't have nightmares, but I get night sweats pretty good the night before. I think the 1st scan on new treatment always makes it a little worse.

Glad all went well!

Keep kicking it's a$$!!

Djinnie's picture
Djinnie
Posts: 813
Joined: Apr 2013

That is such great news!! Congratulations!! I can imagine you must both be feeling emotionally drained, waiting for results always seem like an eternity. But what a good result! No bad dreams for you tonight:)

 

Djinnie x

I am alive
Posts: 224
Joined: Jul 2012

Ahhhhhh relief is so sweet! Congratulations!

garym's picture
garym
Posts: 1651
Joined: Nov 2009

CHICKEN DINNER!!!  Kickong the big C's ass...ain't it great!!!

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

I am very very pleased and excited for your news! 

You are showing the rest of us just how to kick Cancer in the a55! Laughing

Keep it up!

Michael

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

YES YES YES YES YES!!!!

 

Awards ceremony it is -- time to celebrate!

 

Congratulations on a well deserved WIN.

TillieSOK's picture
TillieSOK
Posts: 245
Joined: Jul 2013

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Tillie, it seems there's (No subject ) you don't want to talk about!Laughing

TillieSOK's picture
TillieSOK
Posts: 245
Joined: Jul 2013

There WAS a picture there!  I swear there was! 

angec's picture
angec
Posts: 626
Joined: Mar 2012

AWESOME!  The first few times of scans there is anxiety, but i am told you get used to it after awhile!  I don't know how but some do! So glad the results are looking good.  Give wifey a big hug and sit back and enjoy some quiet time!  A big sigh of relief!  Keep up the fight and show cancer who is boss!

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

fabulous, fabulous, fabulous....well done you xxxxxx

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