Jul 28, 2013 - 1:26 pm
Another step in the right direction. Rob got the PEG pulled on Wednesday. Said it burned like HELL for about a minute. He worked up a real good sweat. Walked hunched to the car and was great by evening. Outside pretty muched closed as of today.
I wasn't there for it, absolutely thrilled it is gone.
He is off all meds except some oxy at bedtime. By the end of the day he says every bone in his body is killing him. Not sure what this is about but hope it gets better soon. He has not slept a full night in 2 weeks.
On the bright side he is eating well although he says he hates it. Says it mostly doesn't taste and it is hard to go down.
I sometimes think this will never really be over and our lives will be like this forever. Hoping not