Jul 25, 2013 - 4:24 pm
Ruben is approx. 6 weeks out from completing 35 rads with concurrent 3 rounds of Cisplatin, and is doing amazingly well per his medical team. Throughout the treatment, when asked how things are going, Ruben's response was almost always "All is well". He kept the faith, even in the darkest hours.
For those of you who are new, this is a rough and scary road, but the ride will get smoother. There is light at the end of the tunnel, even tho it's dim in the beginning. Keep the faith, pray for guidance and trust God to direct the care. (If you're a Christian, remember, Jesus said all you need is a mustard seed of faith.)
His taste is hypersensative, as is his hearing; he is still making adequate saliva; his weight is down 40 lbs, but he's pretty happy about that! He's still using his G-Tube for 99% of his nutrition, and I believe a lot of that has to do with his mental attitude due to the mouth/tongue/throat/nausea issues during treatment (granted he still has pain/burning with swallowing). His skin color is still yellowish, but it's softer than a babies butt.... ;) He went through a pretty drastic mood swing that started about two weeks ago, but is doing much better now. It wasn't easy for me to bite my tongue (which I have half of now!!! LOL), but considering everything these survivors go through, a little ranting and raving is acceptable...... to a certain point!
I am SO very proud of my husband and every survivor story I read. You were my inspiration. With my experience as an oncology nurse, I was scared shitless...(even tho Ruben wasn't). I learned more from your experiences than from my own professional experiences. You gave excellent information on remedies, and what to expect. One of Ruben's pet peeves is that 'they didn't tell us anything'.. meaning the medical team. He tells them what and where WE got our information, and advises them to 'look it up on the Cancer forum'.
Except for the one bout of thrush, and the second dose of chemo that shut down his kidneys for 3 days (nightmare story, V.A., yadda yadda yadda) everything went pretty darn well. Yep, ALL IS WELL.
Today, he's out and about, like he used to be, albeit with a helper (not me!), and is slowly returning to normal. I'm looking forward to him saying he's ready to take a bike ride so I can jump on my Harley and ride up and down Pacific Coast Hwy with him before the summer's out. (I hate riding alone!)
God Bless everyone.... Take Care.... Better Days Ahead.