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Dad's treatment DONE

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Hi Everyone,

Dad had his last radiation treatment a few hours ago.  Now I hope everything goes well and things start looking up.  I know you all have said these next few months he may still be miserable, but if that means no more chemo/rads he will make it through! This treatment in my opinion was one of the worst I have ever seen. Having the head/neck area radiated... You all are troopers! 

Thanks so much everyone for all your support.  If it hadn't been for you, I think I may have driven myself crazy by now. Thanks for all the prayers and thoughts. I'll continue praying for everyone, even if you are just beginning this crappy journey, you will get through it! You will continue seeing me on here as I am sure I'll still have questions and want to check on everyone.

Everyone on here is so right about things...Dad's hardly taking anything by mouth however (meaning water, liquid).  Which concerns me, but hopefully he can start to feel better and work through these issues.

Tomorrow we celebrate his bday!

Cherie :)

p.s. Smiling more than I've smiled in the past 2 months and I'm doing a dance around my work table baby! ;)

Hondo's picture
Hondo
Posts: 5795
Joined: Apr 2009

 

The last day of my second round of treatment was the best day of life. I walked out of those doors and said never will I go back again. It was extremely hard on me but I made it and I am now 9 years passed all of that. Just remember he will not be the same as he once was but he will still be the loving Dad he always been.

God Bless

Hondo

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Thanks Hondo,

I hope he takes it easy these next few weeks.  He's always been one on the go all the time and doing things, helping people, building things, working on cars...I hope he will be able to enjoy all that eventually again and get back in good spirits. Praying things continue looking up for you and that no one ever has to endure this again! Ugh... Now just hoping treatment was successful... waiting! Praying...

Thank you,

Cherie

KTeacher
Posts: 938
Joined: Jan 2011

I remember after the end of my first treatment being so tired.  So glad not to have to go anywhere, just rest and take a lot of naps.  Wondered how I had enough energy to get to and through all of those treatments.  After 4 maybe 6 weeks things start to progress little by little.  Never like the old us but the new normal is more than ok.  I returned to work after the 1st and 2nd cancer treatments, this last one I have retired.  Very slow going for me this time but I think it is because of so much that the body has gone through and I had chemo this time.

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

I'll continue praying for you and everyone else on here.  I'm just so releived that dad can start the healing process. It's his bday as some of you may know today so I'm going to go cheer him up as much as I possibly can when I get off work! Dad is retired, he worked in a glass factory and docs are 95 percent sure that this is where he got the type of cancer he had.  How far out of treatment are you Kteacher?

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

I'll continue praying for you and everyone else on here.  I'm just so releived that dad can start the healing process. It's his bday as some of you may know today so I'm going to go cheer him up as much as I possibly can when I get off work! Dad is retired, he worked in a glass factory and docs are 95 percent sure that this is where he got the type of cancer he had.  How far out of treatment are you Kteacher?

Skiffin16's picture
Skiffin16
Posts: 8087
Joined: Sep 2009

He's tough...

It'll all be good, like me, yes you are still going through crap, but your done... That in itself is like the best thing ever....

And per what Tim said below (up there ^^^)..

Hell, I was never normal to begin with, LOL...

At least now I have an excuse to be Abi-Normal...

JG

debbiejeanne's picture
debbiejeanne
Posts: 2436
Joined: Jan 2010

cherie, i'm so happy that trmnt is behind him now.  now comes the time to recover.  glad 2 hear u r dancing but u also need 2 ring the bell!!  finishing trmnt is a really big deal around here.  congrats 2 ur dad.  also, wishes 4 the best birthday ever one day early!!!!!!  Laughing

dj

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Thanks everyone! Dad was the one doing the ringing! I just got to dance!  And he will have a great bday, as great as it can be. :)

debbiejeanne's picture
debbiejeanne
Posts: 2436
Joined: Jan 2010

GOOD 4 DAD!  and i heard the bell ring loud and clear!  now ur dad can celebrate ringing the bell and his birthday!!  YOU GO DAD!

dj

fishmanpa's picture
fishmanpa
Posts: 1113
Joined: Jan 2013

I thought I heard a bell ringing! Tell him congrats from "T"! One of the best things about finishing was not having to get up and go to treatment. I could finally relax. As bad as the first few weeks after treatment were, not having to spend my days at the hospital was wonderful :)

"T"

 

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

T,

I'll tell him! I know that is one thing he is relieved about too... no more fighting traffic, dealing with walking into that place hopefully ever again...other than for checkups! I hope he is able to finally relax some. I know he is still quite uncomfortable..but he's keeping his spirits up as best as one can in his situation.  You defintely heard the bell! :)

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

T,

I'll tell him! I know that is one thing he is relieved about too... no more fighting traffic, dealing with walking into that place hopefully ever again...other than for checkups! I hope he is able to finally relax some. I know he is still quite uncomfortable..but he's keeping his spirits up as best as one can in his situation.  You defintely heard the bell! :)

Ruben and Jude's picture
Ruben and Jude
Posts: 154
Joined: Apr 2013

Hi Cherie

Ruben finished treatment 6 weeks ago, and things are just now starting to get back to semi-normal. He's feeling better, throat is not as sore as before, but still having some issues. He also went through a huge mood swing which started about 2 weeks ago, but now is subsiding...thank God! I have no doubt it was due to the whirlwind of diagnosis, treatment, side effects and now recovery, besides other pressing issues of finances, legal family issues (long story!) and being around me 24/7!

All in all, he's doing really well, except for still getting 99% of his nutrition from his G-Tube. I'm more anxious about that than he is.

I'm glad the treatment is over. And I agree (as an oncology RN) it's one of the most brutial treatments, but also has one of the highest 'cure' rates.

God Bless you, your dad and the rest of your family, as this is something we ALL experience and go through together.

Take care Sweet One.

Jude

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Thanks Jude,

I read your post just now in the forum. I'm glad that Ruben is doing really well! We were told dad should have to have the PEG for a few weeks post treatment, but with him not taking even much water by mouth... I don't know...

I'll be praying for you all! Hope Ruben and you have a fantastic weekend!

Cherie

phrannie51's picture
phrannie51
Posts: 3731
Joined: Mar 2012

only the next few weeks might be bad, but then the small improvements will begin to come about.  Just knowing he doesn't have to go to radiation, or get any more chemo's will raise his spirits....it's all onward and upward from here.

Keep him swallowing some water everyday.....the rest he can pop into the tube.

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Phrannie,

I get on him all the time about trying to swallow water or something each day, but I fail :( He says he "drank a little" but I know better that that means barely...

Looking forward to the onward and upward. NOw they can begin focusing on moving, which we hoped to have done by August.  It's ok if its delayed though, no hurry. Dad's most important right now!

TracyLynn72's picture
TracyLynn72
Posts: 713
Joined: May 2013

Yay, yay, yay for your dad!!  I am truly so happy for him!  I know you've probably smiled until your face hurts today! Tell him to use that PEG.  I was so sick that I couldn't even drink water for almost 2 1/2 weeks so I did my tube feedings and lots of extra water!    Tell him Happy Birthday from all of us here!  Head and Neck treatment is the HARDEST and WORST for sure!  Each day from here on out will get easier and better. 

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Thanks Tracy! So glad that things are looking up for you too.  I k now dad has battled some constipation, but he is taking extra water through the tube.  Is constipation something that is common with using feeding tubes? Thanks though< I will tell him HB.

Have a good one,

CHerie

sin9775's picture
sin9775
Posts: 198
Joined: May 2013

Oh Cherie, I so know how you feel!  Congratulations to your dad for getting through his treatment like a trooper.  I pray for him right along with my brother.  Hopefully we will both be able to report great news as far as our loved one's recovery goes! 

Happy birthday to your daddy.  What did you end up getting him??

All the best to you and your dad!

~Shawn~

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Thanks Shawn! And to you and your brother as well!  I posted a pic of what I got him.  It was nothing big.  They are moving and downsizing...but I figured they were things he could use while healing! I still want to get him something more, but I just don't know. I thought about ordering a neck wrap thing someone mentioned on here.

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Thanks Shawn! And to you and your brother as well!  I posted a pic of what I got him.  It was nothing big.  They are moving and downsizing...but I figured they were things he could use while healing! I still want to get him something more, but I just don't know. I thought about ordering a neck wrap thing someone mentioned on here.

CivilMatt's picture
CivilMatt
Posts: 2965
Joined: May 2012

Cherie,

I will ring my bell for your Dad.  Besides the neck burn I started to (slowly) feel better and improve soon after treatment ended.  A great big weight has been lifted off your Dad I hope your family has many, many sunny days ahead.

Matt

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Thanks Matt and wishing you many many sunny days as well!  Also, thanks for all your support and wisdom! It's been greatly appreciated! I hope you all know that!

VanessaSLO's picture
VanessaSLO
Posts: 280
Joined: Jul 2012

Cherie, you remind me of myself... I was in the same state as you are now, last September. The truth is that my dad was really "cooking" first month after rads were done and it was the worst. He was hospitalised and put on IV fluids for 3 weeks. But he felt good there in hospital because they took good care of him. He did not have PEG tube so IV fluids were absolutely necessary. He could not eat or dring anything for the first month. Only a few sips of tea. Then, after first month, things slowly started to improve. But for the first trhee or four months he mostly slept all day and eat his pain killers.

Your dad will go thru this too, I just know it! And yes, it is great to know that at least he is done with treatments and now he is on his way to recover with no more damages to the skin or the neck.

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Thanks Vanessa! I know its going to take some time, but I'm just so relieved!

wild willy's picture
wild willy
Posts: 32
Joined: Jun 2012

things will get better. i'm 73 now and 3.5 yrs out and cancer free. i eat every i want most of the time.i have about 80% of saliva back but no taste. i work around our little farm every day and still ride horses some. i snow ski in colorado every winter and take a pack trip into the rockies elk hunting every year . i had to miss out on these things 1 year but you have to keep pushing on. so tell your dad its just a matter of time before things improve.  Bill

robswife87's picture
robswife87
Posts: 178
Joined: Mar 2013

So glad the day after day crap is over for him. Now to finish cooking on the inside and start the climb back up. I look back to even 4 weeks ago and Rob has really started to climb up. It was real slow in the beginning. Your dad will probably be miserable for a couple weeks but the only thing to keep pushing him on is drink and swallow at least a half bottle a day. That's all Rob could do for awhile, but he had the worst case of Thrush most of the nurses had ever seen. 

The thrush disappeared over night and the eating began. Popped the tube last week. He is having some withdrawl problems but just another round of crap on the climb.

Tell Dad to hang in there, drink and keep on trucking on

Sandy

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Sandy,

I think I recall you mentioning Rob's thrush problems... so far dad has been hanging in there, but drinking minimum water by mouth.  I feel like I can only push him so much before I annoy him.  Hope that he increases his intake.  Thanks for keeping us all in  your thoughts!  Hope that Rob keeps trucking too! :) 

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Thanks for all the encouragement Bill (and everyone!)! I know its going to take time... Dad had a pretty exhausting weekend.  Didn't do much, but we all went to my older sisters and visited. 

MICH4EL's picture
MICH4EL
Posts: 73
Joined: Mar 2013

Congratulations to you and your dad.  Yes, it is till a long way out of the abyss, but being done with radiation is a major, major milestone.  Good luck on the road to recovery, now.

 

m

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Thanks Michael, I can't wait to see my dad recover! I am so relieved that he is done with treatment, yes a big milestone.  I just hope that he keeps taking the necessary steps to get better!

catfish_58's picture
catfish_58
Posts: 124
Joined: Feb 2013

Congrats to your father for ringing the bell,Plus tell him Happy Birthday and hope his has many,many more.

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Thank you! I hope so too as well as all the other survivors! He had a pretty good bday!

debbiejeanne's picture
debbiejeanne
Posts: 2436
Joined: Jan 2010

cherie, really like the new pic.  new pic for new stage of the trip...lol.

dj

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