Jul 25, 2013 - 2:17 am
I was away from this forum for quite some time now... To tell you the truth time is passing so fast, summer is here, we're really trying to enjoy life. Some of you know me and were a great help for me in times, when it was the worst and when I neede an advice. For all newcomers - this is wonderful place and I don't know what would I do without it when my dad started this hard journey last year.
Today is exactly one year - when he started with 35 rads and 7 chemo treatments (Cisplatin) for T2N3 Oropharyngeal cancer (BOT and lymph nodes in neck). He finished in September 2012 and first three months were the worst. After new year he slowly began to feel better. His scans showed still a bit enlarged node in his neck (very close to jugular vein) whicn measured aproximately 2 cm in January. Then he had scopes and scans and 3 needle biopsies which only showed that it is probably just destroyed node from radiations and it stayed a bit enlarged. Needle biopsy showed only "junk" in it, so they decided for another CT scan in June. It showed nothing to be concerned about. The node is now even smaller and neck, lungs and head show no evidence of desease!!!! Praise the Lord for that!!!
It was a tough journey, but this board helped me and my family like nobody else!! For those who don't know, we're from Europe, we live in Slovenia. Our treatments are the same as in US, so this forum was a great source of information and comfort. I have never met more caring people! So I thank you for great comfort and advice in times when we were lost the most! You always answered, you were always here for us!! So I will try to come to this forum more often again to share our experience and give advice if I can. I updated my info, so you can click my name and maybe it can be a comfort for somebody with same diagnosis who is just starting this bumpy road.
Dad is feeling great! He gained about 5kg from January. Still has a lot of issue with saliva and taste, but he can live with that. He takes no medication anymore (since spring) and I just pray to God that it stays that way and that this beast never occurs anymore!!
God bless all of you and hope you're all doing well! Love you!