Jul 18, 2013 - 3:38 pm
I have posted earlier too, but here is latest update:
My husband who is 33 now, was diagnosed with Kidney cancer about 15 months. Lesions in brain and lungs
April- left nephrectomy done
May- Cyber knife for 3 lesions in brain
July and October- HDIL-2
Scans after IL-2 were wonderful. in November scan showed only 3 tiny mets in lungs about 1-3 mm size. But doctor said it is more like scar. Then in Jnauary 2013, 3 new lesions in brain and 1 in spine( C1-C2 area). Again went through Cyberknife and 3 weeks of radiation for spine. He is on Decadron since then. Everytime try to taper it, swelling comes back. He was admitted to hospital for swelling in March. Now this is third time try to taper down steroids, so far so good. Last week he had brain scan, swelling much much lesser and no new lesion.
Yesterday he had follow up 3 month torso scan..all tiny nodules disappeared..there was nothing;-)
So now main challenge is to get off from Decadron which is causing lot of muscle breakdown. Does anyone had gone through similar issue?
Wishing all the members best of luck.