Jul 17, 2013 - 3:36 pm
except for posting on someone else's thread. Have felt crappy since I started chemo on May 7th but even worse since chemo on June 25th. I had to skip my scheduled chemo on July 18th because I had diarrhea for five days, extreme fatigue and low blood counts; platelets were 58 and neurophils were 4. I am anemic and neutropenic. Sounds like a broadway tune. A wonderful advice nurse was in daily contact with me after I had called in on June 29th. It was a Saturday and I was scared based on what happened 3 years ago when I didn't get help in time. The ER's attending physicians' words were "I don't see how you made it." Wow!
Anyway...I am on day two and already experiencing symptoms like foggy head and queasy stomach that usually start on day three. I got up, made my breakfast, put on sprinklers, washed dishes, had my 89-year old mother help me reposition my new potting table (Okay I am anal) and sat outside for a couple of hours. I have been in bed so much I am trying to avoid it as long as possible.
My picc line needs to be be redone as it has slipped out to 12. They were unable to get a blood draw but it was ok for the infusion. However, that may be a moot point now because I might not need chemo #5 or 6, My latest CA 125 is five (CA 125's were 191. 25, 6, 7 and 5) I will have a petscan on July 31th and that will determine if I am in remission. I never thought it would go so fast. So I am sorry for all the bit*hing about the discomfort but you know how it is when you are in the middle of "sick", it's sometimes hard to see the light at the end. I was kind of deadpan when the doctor was talking to me and it made me feel a bit ungrateful but it has been kind of hard with the heart thing and just never recouping between chemos.
I have had to depend on my mom a lot and she is quite fragile, with her own health problems. My son will help when asked. I enlisted one friend to be my chauffeur which has worked out great. She is very dependable. I don't have to worry about finding different people to take me to appointments. I still feel forgotten by most of my friends and family but am doing my best to not to let anger rear it's ugly head. I mostly feel puzzled. I know people are busy but some of whom I considered very good friends do not even know I started chemo again. I know I could call but as someone on this board once said, the people who are really in your life will know. I guess my circle is much smaller than I thought it was.
So ladies I guess I have dodged another bullet and hope to be in NED's strong arms soon. Hell I wish I was in someone's arms! Ha Ha Ha. Imagine finding a man with my laundry list of issues. Old, sick, 89-year old mother, son who hasn't left the nest, not to mention the extra pounds I carry. Oh well, I am probably much better off. At this age I would probably find a man that needed me to take care of him. I don't have the strength for that.