Jul 16, 2013 - 6:18 pm
Well, the news was as expected, which is that pretty much every tumor they saw on the CT scan lit up on the PET scan. The SUV values were from 3.6 to around 10.5 which the oncologist said was moderate for uptake. He said he has seen values up to 80 or more so my tumors aren't hyperactive. Unfortunately, this is more evidence that the hallwang treatments did not really help much if at all. I started folfiri plus avastin today so hopefully that will slow or stop my progression. There was more ascites noted on the scan so I will likely get that removed next week as it can take up the chemo drugs and lead to bone marrow suppression by slowly releasing drug into my system. Looks like I am really relying on irinotecan at this time so I hope it works for me or I may be in trouble. I've always worried about this and it looks like the time to worry is here. Oddly enough I feel pretty good even with the cancer progressing. My liver enzymes are good as are my blood counts so I have a lot of fight left in me. Just have to get the tumor growth back under control or stopped/shrinking. Wish me luck.
Forgot to mention that I also had a spot light up on a rib but onc doesn't think it is bone metastasis as the CT didn't confirm a tumor there. Either way I'm doing folfiri plus avastin. Waiting on the interpretation from my onc at Northwestern. I'm 13 months into this and have done FOLFOX plus avastin for 6 months then 5 fu plus avastin then Xeloda plus avastin and now folfiri plus avastin. I did have about a 6 week break in Germany where I had TACE (mitomicin C, irinotecan, avastin) and removab.