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OK, I'm going in!

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

Being admitted today for the Il-2. Maybe I can post during the week. (if I can get on). I'll let you know how I'm doing when I can. I'm in a kick ass mood.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

My, they look good, Alex and that's sound evidence you've advanced for the ELF statement.  

I suppose it will it give away my Cockney origins when I say:

'ere's to 'is 'ealth

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

I'm in. I see my dr. today. I will celebrate with a beer post visit. I need to get back into pub shape. Plus the fluid will fill out a few winkles.

For those that don't know, Alex had gone to medical school. However she couldn't pass the exam on conception and embroyology. When asked about the most important things that come out of a penis, she answered ,"The wrinkles!"

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

Here's to positive, uninhibited lives on this board!  You guys ALMOST make it worth having RCC to be here! 

You sure make having it a little easier to bear!

Salud!

I am alive
Posts: 219
Joined: Jul 2012

Amen Michael. Absolutley keep the attitude, Fox (or  "atty-tude" as they say in Philly). It's one of the things we love about you! And congrats on surviving. Who's counting rounds? It's what'll happen next that matters.Enjoy your zzzzzzzs.

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

Finally beginning to feel like myself. But skinny and weak. I have lost 20+ pounds and tire easily. I've begun to exercise and can't do half of what I did for normal maintenance. Still peeling. But no longer uncomfortable. I have a followup Aug. 30th and scan will be scheduled then. This IL-2 is mean stuff. I really believe it is going to work. Recently talked to a guy at Yale who finished a week before me. Mild difficulties at best.  So, I like my chances better than his. Why else would the IL-2 have kicked my a$$ so intensely? And so the battle continues. I'm ready to begin the next series of IL-2 in Sept. even if it kills me trying. By the way, I got my EOB from the insurance co. The first week in the hospital costs $298,739.88!!!....and 88cents? That part I can afford. Thank god for insurance. Medicare starts Sept. 1st. A whole new bunch of issues I'm sure. October will be 3 years since I was told I had 6 months to live. Of course pizza and beer will be part of the anniversay. I've been too weak to even consider riding my bike. But tonite I am going to a bike night. It is a yearly event that draws 4,000 bikes. I look forward to doing something normal. I have missed a big part of the summer. Let the party begin!

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

and PARTY!  Glad to see and hear you are on the upswing.

No Prisoners!

faithlou's picture
faithlou
Posts: 38
Joined: Jan 2013

You go boy!

Galrim's picture
Galrim
Posts: 274
Joined: Apr 2013

"Rise, awaken, seek the wise and realize. The path is difficult to cross like the sharpened edge of the razor, so say the wise."

For some reason came to mind when, once again, reading about your ordeals with this sucky disease...

Gods speed and good luck.

/G

rainsandpours's picture
rainsandpours
Posts: 93
Joined: Apr 2013

Fox, you are an amazing force to be wreckoned with.  I admire your strength courage and fortitude.  And of course the medical bills!  Holy crow, 300k for one cycle?  No wonder the CDN hospital systems don't offer that treatment.  I think that's the yearly cancer budget per hospital lol.  How many more cycles must you endure?  And what kind of treatments are in line afterwards?  I find this whole thing so fascinating.

 

Keep us posted.  I enjoy your "Live from the Cookoos nest" reports.  Best wishes, many hugs.  I'll be cheerleading for you.

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

We all know that cancer can be a barrel of laughs but who know it was so affordable? That $300k is just for the hospital stay. Can't wait to see the add on charges like drugs and toilet paper. I've done 2 cycles. I have 4-5 weeks off then after scans, maybe 2 more cycles. So, roughly speaking, this could be a $1,000,000. treatment. Pretty expensive for something without a guarantee huh? There are no other plans. Not until failure is detected. Then it will be discussed. Positive thinking. I like the "Cuckoos nest" reference. Right on. Thanks for the support. It means alot rainsandpours.

AprilandChuck's picture
AprilandChuck
Posts: 95
Joined: Feb 2013

I have went over  all the posts..your experience was a lot like Chucks..HDIL2 is tough stuff the lack of sleep was the hardest thing for him..he thankfully did not get thecwonderful psychedelic trip..although we were afraid he was heading there due to his off the wall sense of humor! I am surprised you held it together to give the very real real time updates but shouldn't have been because your a tough one! Waiting for these scans stinks! But I really believe if this works for anyone it will be you!  As I said before..you are and have been exactly where you needed to be and am thankful..that Nivolumab got you to this place.

We would have gotten through this without your posts..but you made it easier superman :D Its alwzys been my belief that heros should get their happy ending..stay tough you got this thing in the bag..sending happy positive thoughts your way!!! And a million hugs :D 

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

Glad to see you back Fox! All you need now is a few of those pizzas to build you up. I should have that bill framed and mounted if I were you, Lol!

Djinnie x

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

I thought of framing it. But couldn't get a wall big enough to hang it on. No pizza last night. But a HUGE plate of raviolis'. Getting stronger. Still amazed at the physical toll it took on me. I'm exercising at almost half my usual. Incredible. I need frequent rests. And naps. It is obvious to me why this isn't done at just any cancer center. What a beating I took. Again I ask,"How does everyone else make it seem so much easier? I would have bet that $300k that I would have had an easier time. But in any event, I'm ready to go back in. Knowing what to expect sure does make it somewhat easier.

twinthings's picture
twinthings
Posts: 399
Joined: Jun 2013

Fox, if it's true that laughter is the best medicine, then we are all better off having met you!  Well, we've kinda met.  You are quite an inspiration and funny as hell!  I'll continue to follow your journey, all the while praying for your healing, comfort, patience and strength...and yes, your nurses, bless their hearts!!   I share your love of bikes, beer and pizza and hope you get to enjoy each of them before you "go back in". 

Stay strong!!

Sindy

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

Don't we? Save the panic till the end. We cannot waste precious time on negative thoughts. As I've said over and over, "Time worrying is lost forever, and you can't get it back." So we stay positive and enjoy every minute of our lives. Some have bucket lists. The rest of us just live well. Ride on. Beer and pizzas on me. No really. You should see my shirt! Share the Karma Sindy. Fox.

GSRon's picture
GSRon
Posts: 1211
Joined: Jan 2013

Hi ya Fox man..!!  Oh yes, hoping your treatment works...  Tonight I was good, had Salmon with steamed veggies...  but I think for tomorrow I will have Pizza and Beer (just one beer) in your honor..!

Kick some Cancer butt..!

Ron

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

Ron, tomorrow I am riding with some buddies to the  Connecticut Brit Jam. All vintage cycles. with strange european bikes thrown in. My favorite bike meet of the year. Then in 2 weeks it is "Rice-o Rama." an all japanese show and swap meet. Great fun. I'm not just a Harley guy. I'll be doing a little 'splaining to the other gear heads. Enjoy that pizza and beer. I know the beer will be good but how is the pizza there? I might have second thoughts on a mutton and potato pie.

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

You sound like you are regaining your strength and getting back into your stride Fox:) you have a busy schedule lined up:)

I can guarantee you that any pizza you buy over here is not a patch on the US version. Although the mutton, onion and potato pie ie. Shepherds Pie is the best, especially when home made. Won't be much of it around this time of the year though, so Ron can probably escape that treat. lol!

 

Djinnie x

 

GSRon's picture
GSRon
Posts: 1211
Joined: Jan 2013

Fox Man.. great to hear of your fun time..!!  I know a few people that will be at the Brit Jam.. but there will be far too many to point any out.  Have fun..!!  I still hope to get your direction next year... will have to do that Pizza and beer if I do...  Keep riding..!!  Keep smiling..!!!

Love ya man..!

Ron

Phoenix Rising's picture
Phoenix Rising
Posts: 154
Joined: Jul 2012

Fox, i did not realize you were doing IL2. I have missed so much while dealing with my treatment. Glad to know you climbed the Mattehorn that is IL-2. you won't regret it; I'd do it all over again.   Did you happen to see my spotted, stuffed-elephant?  I let him visit all IL2ers. He doesn't talk much, but if you blow at him he'll go away.

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