Jul 12, 2013 - 4:55 pm
I was diagnosed with DLBCL Stage 4 toward the end of May 2013. It was not in my marrow. The reason for the Stage 4 was a dime size spot on my right lung. Treatment plan is R-CHOP every 3 weeks for 6-8 treatments. First treatment was 6/5 and by 6/7 the lymph nodes above the diaphragm were 'gone'. Had a transfusion on the 17th and the doctor on the 21st. He was pleased. Told me 'we like paitents like you--you're responding to treatment.' My spleen, which measured 14.6cm (rib cage to where he can't feel it anymore), had shrunk to 7.0cm. Second treatment was 6/28. I continued to feel better. I felt like my spleen had shrunk more. I had been taking 1 hydrocodone right before bed to take the edge off the pain from the spleen...after the second treatment I stopped because it wasn't hurting anymore. I'm figuring it shrunk more.
Today's appt didn't go as I thought. Doctor says it's still at 7cm and 'that concerns him'. He's concerned that I might not be reacting to treatment as he thought. So...PET scan scheduled for Wednesday. 3rd Treatment scheduled for next Friday...but he said we may need to change treatments (to what I don't know).
Anyone have problems with their spleen like this? I was told the spleen was the size of a small grapefruit...remember the oncon measures from bottom of the rib cage to where he can't feel it anymore.
This news just deflated me. Ocon and pulmonologist telling me 'this will be cured'...argh...I hate this rollercoaster!