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advice needed

llwright
Posts: 31
Joined: Jul 2013

i was rushed to hospital with severe abdominal pain about 3 weeks ago, and was told it was probably constipation. i went to see my family doc who ordered a transvaginal and abdominal US. they found 2 abnormalties higher up in the lining of my uterus and a growth on my liver. im scheduled for another trans US friday morning and a CT scan later in the day. im beside myself over this and im so scared that its cancer

Kathy G.'s picture
Kathy G.
Posts: 116
Joined: Dec 2012

Welcome llwright!

You've come to the right place for support although at this point I would not jump to the conclusion that it is cancer or that you will need us on an ongoing basis!

We have all gone through the fear and anxiety that the symptoms we are experiencing could be cancer. Obviously those of us that are members on this board have found that to be true. But if you read through our posts there is a wide variety of symptoms each of us have experienced, and once diagnosed our stages and grades and types of cancer can differ greatly.

Try to keep busy and remain as calm as possible. It sounds like your doctor has you headed in the right direction with the upcoming tests. Some of us have had to fight to even get that far so try to focus on the positive.

I had a very early cancer in the uterine lining, but will never forget going thru those feelings while waiting for the test results.

I wish you well. Come back and let us know how you make out.

 

Kathy

ConnieSW's picture
ConnieSW
Posts: 608
Joined: Jun 2012

Kathy has said it all in a nut shell.  My hope for you is that this is nothing, as it has been for so many people.  If not, we're here and will help you get through it.  Finding us so early is a real bonus.  I wish I had had these folks with me from the get go.  I'll be off the board for a couple weeks but my thoughts will be with you Friday.

llwright
Posts: 31
Joined: Jul 2013

went for my results yesterday. doc said the CT scan couldnt tell them what it was on my liver except that it wasnt a cyst. so they want to do an MRI. as for my uterus it is very thick and they now want me to see a specialist and  have a biopsy done. all he could tell me was that all my other organs look fine and that there is no lymph node involvement that thay could see. uuuugghhh im so nervous about this. im just having a bad feeling overall. if it is cancer n is it possible that it can spread to my liver with no other organ or lymph node involvement?

 

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

I know all this cancer stuff is very confusing and worrisome...been there and still have worry prior to each follow-up doc appt....darn cancer!  Now don't get the cart before the horse as this truly may NOT be cancer...I know easier said then done, but surely don't want to dismay you!

I started with a vagimal ultrasound which showed "thickening" of the uteran lining.  If you have very minimal periods (as I did) and/or gone thru menopause we tend to see this thickening. The monthly regular periods do keep the normal thickness in our linings and if not the blood flow, tends to thicken.  This is what I learned at the beginning of my journey via my GYN.  

As well, after  my treatments in '09 I had a CT scan.  This showed "some unknown" on my liver...darn!  Off I went for the next scan being an MRI which showed an abnormality, and not cancer....today they simply watch it after each scan it has not changed, so no worry.  You'll find these "abnormalities" which are NOT CANCER, would never ever bother us, then we have the scan and THERE IT IS...who would have known.  So....my take, might truly be nothing but what I had and all they do is watch it.  Our bodies change as we age and on outside we get lots of spots and wrinkles, and is quite similar on the insides.

I must say I have no idea how they can tell you no lymph node involvement??????  They never mentioned this to me until I had the total hysterectomy and that's when they sampled 24 lymph nodes and detected one with cancer.  Also, during pathology after the hysterectomy they do sample all "girlie parts" taken out and then know if have cancer in the parts.  I think any type of pathology done after surgery is more accurate.  Now that's what I think after my journey, but if I am wrong plse someone correct me so I'm not blurting out incorrect info.  

Plse keep us all posted on your progress as we do care.  You've come to a very good place to learn and gain experience.  Stay positive and keep the faith all will go in YOUR FAVOR~

Big cyber hugs,

Jan

Sara Zipora's picture
Sara Zipora
Posts: 227
Joined: Sep 2010

2013-07-19

Just keep focusing on your name? Llright? ' You'll be alright'!

the Warriorettes on this site are so giving of their hard earned experience and knowledge. Keep an open mind, and decide for yourself!

My two cents, is go to a Gyno-oncologist for a second opinion after your MRI. If you have competent Gyno or GP, he/she sounds on the ball, they will support second opinions.

 

Also get your own copies of all scans,disks and hard copy reports. I have been using my Smartphone to record doctor meetings without telling. naughty I know, but it even beats a friend or husband with stenographic skills, when home I use an app to convert speech to text, and bingo email it to myself and print it out for my file.

at the beginning of any journey you are a novice and research the maps and guide books, but you are in charge of making educated decisions and your Docs are in charge of educating and serving you!

one of the first things one loses as a patient, and an adult, is the idea that someone has all the answers for you, sorry you are your own travel agent, buckle up and you'll be ready for the ride!

 

good luck.

one step At a time, and walk or swim or ride, or all three, for 20 minutes a day, eat normally healthy foods and portions of what you like, and don't let all the advice, including mine, drown out your inner voice.

 

sara

llwright
Posts: 31
Joined: Jul 2013

thank you for your kindness. my name is linda. im 48 and haven't started menopause. or i may have because i attributed all these issues ive been having for the last 2 years to it. i swear i have the patience of an elephant. been through cancer with my father, mother and my daughter when she was a child, and i was a rock for them through it all. but damn, how come im acting like such a baby now. i understand that i dont really know what im dealing with yet. and when i went for results yesterday i stayed optimistic hoping that he would tell me that the lining of my uterus was thick because it was just before my period and that it was a cyst on my liver. ive been reading up as much as i can just so i dont freak out if it is the outcome and also ive read other things that it could be not as serious. sorry if im babbling....im trying to keep positive. thank you friends :)

Sara Zipora's picture
Sara Zipora
Posts: 227
Joined: Sep 2010

Boy! you have had a real lot on your plate!

it's your turn here to rant and rave, cry and babble.

dont know geographically where you are, but I am melting on the East Coast right now, and I'm from the Middle East!

Sara

llwright
Posts: 31
Joined: Jul 2013

im in ontario canada. we are melting here also. heat wave the past 4 days but suppose to cool off a little tomorrow. 

janh_in_ontario
Posts: 110
Joined: Sep 2010

I am also in Ontario. My advice is learn everything you can and become very vocal. ypi will probably have to push for tests and scans if your experience is anything like mine. I am being treated at Sunnybrook.

dont assume itis cancer - which is extremely easy for me to say!

private message me if u want to compare notes

 

janh

 

 

 

llwright
Posts: 31
Joined: Jul 2013

jeepers, dont know if its my nerves but for the last 3 days i ve been having sharp stabbing pains in my lower abdomen and my lower back is aching like crazy :(  not sure if i should call my doc or just wait it out till i get my next appointment.

Ann55
Posts: 43
Joined: Jun 2013

I vote to call the doctor. I think you should listen to your body,if it turns out to be nothing that's great. 

ConnieSW's picture
ConnieSW
Posts: 608
Joined: Jun 2012

Those could also be sx of a urinary tract infection.  Wouldn't that be nice?  Much better than what you're fearing.  Call the doc.

pinky104
Posts: 78
Joined: Feb 2013

I had stage IVB uterine cancer with no lymph node involvement three years ago.  My cancer spread to both ovaries, the omentum, and the small intestine without being in the lymph nodes.  My CT scan has consistently shown an abnormality on my liver, but it hasn't changed at all, so they think it's a benign liver cyst.  My cancer was UPSC, which is very aggressive, but I have not had a reoccurrence after surgery and chemo.  I don't want to scare you, but the surgery was much worse than I'd expected, and I was in the hospital 6 days (my gallbladder (full of gallstones) and appendix were also removed) and I had to have a couple of units of blood. My bowels wouldn't work after surgery, but I suspect that was because of the liquid diet and then the inedible food at the hospital I had after it.  I'd been told I was going to have day surgery because of a polyp, but it turned into much more.  My surgeon didn't look at my CT scan results until the day of the surgery!  Anyways, although the going was tough, I'm still here with no evidence of disease.  I'd heard all kinds of bad stuff about chemo, but that wasn't bad at all.  It made me short of breath and I lost my appetite for a little while, but I took meds before my chemo and didn't have any nausea or vomiting.

I read someone else's posting on here awhile back which said that this cancer spreads laterally across the abdomen.  This seems to fit with what happened to me.

I had a 15% chance of survival with my late stage cancer, so I'm one of the lucky ones.  I commented about my stage IV cancer to my doctor recently, and he told me he's had plenty of people with stage IV cancer who have survived it.  My doctor is in Albany, NY, which is probably not one of the places you would expect to find such a high success rate.  I'm fortunate I was referred to his practice. 

Good luck with whatever path you have to take.  I hope it's nothing serious.  But if it is, you can see from my story that there are successes with treatment.

Golov003@gmail.com
Posts: 12
Joined: Jul 2013

My mom was just diagnosed with this cancer, the ct showEd peritoneal involvement no obvious ln, liver, spleen pancreas bladder etc involvement, we are all so scared though any advice would be appreciated

 

llwright
Posts: 31
Joined: Jul 2013

hey guys, thanks for your respnses. well i go for a colonoscopy tomorro and my biopsy and MRI next week. hopefully i will have all results around the 6th of august. and hopefully it will be good new!! its been about 6 weeks since all this started. i appreciate you guys for helping me through this. ive managed to calm myself down with your help of course. its hard to talk about it to anyone because they just want to shut me up and say everything will be fine or stop worrying cause i dont know anything yet. and i know they are right but i still worry. so im glad i found this site. i will keep you up to date how things turn. keep on the sunny side :)

llwright
Posts: 31
Joined: Jul 2013

well got  the colonoscopy done and over with yesterday. didnt feel a thing. they found some polyps and removed them. guess they will send them for testing. my father had colon cancer so they wanted to check my colon. next is biopsy on tuesday and MRI on wednesday. 

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Glad you're moving along down the path to find out more inforamtion which will give you the answers.  I know it's so frustrating dealing with the medical community as they need lots of tests until find what you're looking for, but stay with them. Very difficult to be strong, no matter if you're at the beginning of the journey or completion of everything and NED.  

Assuming this was your fist colonoscopy?  I had my first after my treatments and the prep was worse vs. the procedure.  Now the waiting...darn it!!  Definitely follow up with us next week after the pathology comes back and MRI results.  

Thinking good thoughts for good results!!!  We're here for you, so plse keep us posted on your journey~

Jan

Kathy G.'s picture
Kathy G.
Posts: 116
Joined: Dec 2012

Hi!

Isn't all this testing just nerve-wracking?

I have had to have frequent colonoscopies since my 1st one about 3 years ago. They found a large and small polyp then and they were pre-cancerous. I had to have a 2nd one in 2 years.

I had that right before my uterine cancer diagnosis and had 5 small new precancerous polyps. So they want me in every 3 months for colonoscopies until I am clear. I missed the 1st 3 month one because of my hysterectomy this past January so I just had it in June. This time 2 small pre-cancerous polyps!

I go back for another follow-up colonoscopy in September which will coincide with my 3 month uterine cancer check-ups.

My brother was diagnosed with anal cancer this past March so I will bite the bullet and keep having these tests done.

It just feels like you 'live' from test to test/check-up to check-up....what alot of the ladies call the 'new norma' after a diagnosis.

I hope you tests turn out well.

Continue to keep us posted!

Kathy

ConnieSW's picture
ConnieSW
Posts: 608
Joined: Jun 2012

Every 3 months!  Oh, Kathy, I feel for you.

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Yes I do agree all this testing is really quite nerve-wracking....never ends!  Never thought one doc would suggest that many frequent colonoscopies....sorry to read that one as those procedures aren't so much fun during the prep work, but once in and enduring the procedure it's quick.  

Hubbie has colon cancer which runs in his family and his dad would have his colonoscopy every 2 years and each time they found a few "pre-cancerous" polyps.  As well hubbie had one when he was 50 yrs with NO polyps and goes in for next one in 10 yrs.  Everyone is different.

I endured a MRI last year due to some pretty painful back issues. ...tried so many alternative which just didn't work.  MRI showed bulging disk which was relieved after a few months with a new chiropractor.  Today on CBS THIS MORNING they spoke with a prominent doc about MRIs and how not always worthwhile.  Finding we have them and find things which aren't related to our pain (sorta like something very minor which really doesn't need treatment).  The majority of us as we age end up with some minor back issues which never truly manifest into pain....and only shown on higher level scans.  Then when found the docs are rushing to our side to do surgery or add another Rx to our mix.  Comes down to the thinking of not everything needs scans as many things aren't life threatening.  But...in my eyes when do we know it's not life threatening or needing treatments?  In my case I tried everything to alleviate my sciatica pain, but had it and knew the MRI would be my best option.  Bingo, in my case it was well worth  my time and money as now don't have that type of pain.

Guess there comes a point when we have to know our own bodies and realize NO MORE TESTS.  Many people feel more comfortable with all these tests and scans and someone like me, I'm always more hesitant....I probably run more in lines with laze faire type thinking.  Good and bad in both thinking categories, but everyone must do what THEY FEEL IS BEST and consult with a doc we TRUST!!

Just my 2 cents.....

 

Jan

 

 

Ann55
Posts: 43
Joined: Jun 2013

I don't think I've ever heard of someone with a family history of colon cancer not getting another colonoscopy for 10 years after the baseline. I thought after age 50 everyone got one every 5 years routinely.

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Doc told him since 3 colonoscopies came back each time with NO POLYPS, no need to see doc for another procedure for 10 yrs.  Now in my case with my own cancer and having one colonoscopy with no polyps ... I'm lucky, see doc in 5 years.

That darn cancer card is always in my face~~~

Jan

Ro10's picture
Ro10
Posts: 1453
Joined: Jan 2009

My mother had colon cancer, cut lived 10 years after her diagnosis of 3-C with no treatment.  My brother died of colon cancer at the age of 54.

my GI doctor recommends a colonoscopy every two years because of the family history and my uterine cancer.  I am scheduled Tuesday for my next one.  I can hardly wait for the prep.

llwright
Posts: 31
Joined: Jul 2013

well went for endometrial biopsy this morning. unpleasant but overwith. then he tells me he is leaving for holidays and wont be back till the beginning of september????? wth. so i said, but if something is wrong wont someone call me and let me know? and he said that he has to read the report first....uugghhh!!!!

llwright
Posts: 31
Joined: Jul 2013

he actually said that the samples look fine and i dont believe you have endometrial cancer. can he tell by looking at the sample?? 

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

What the heck, he's leaving and can't give to you until back in SEPTEMBER????  Now any good doc will NEVER keep a patient in limbo, especially with a cancer diagnosis possibility.  Now when he tells you "I don't believe you have endometrial cancer"....that sounds flippin and not accurate.  My doc has another oncologist practicing in his office, and when he was on vacation for a week, the back-up doc was available to do whatever necessary to keep my docs patients moving and updated on things.  

Did he tell you when biopsies results would be available?  I do know mine took 2 weeks, but in my case the results were laid on desk to incorrect doc in the practice, so I was longer.  I'd feel very uncomfortable being put on the "waiting list" until docs back in September....just not good practice to make patients wait.  And...if it is cancer, you need to start making plans for possibly surgery, further testing, etc.

Sorry you're playing the waiting game, as it seems to be part of anything associated with cancer.  Any way to call the doc office and speak to at least the head RN or his assistant, asking about your dilemma and not wanting to wait,.....suggestions to get the results prior to his return in September.

You're in control so do whatever you can to keep the process moving and not stopping for vacation plans.  

We're here for you, keep us posted,

Big cyber hugs,

Jan

 

 

 

 

light42day
Posts: 61
Joined: Mar 2012

You've already had to wait quite awhile for test results.  Even 6 weeks can seem like years when you're waiting to hear if it's cancer or not!  I really hope that your doctor will read the reports before he heads off on vacation and let you know something (even through his nurse).  Sometimes it seems like the doctors can be a little insensitive when dealing with test results etc.  I'm not sure they really understand what it's like to wait (unless they've been through it themselves).  I know how your're feeling right now.  I'm coming up on my 18 month CT scan and pap.  You try really hard not to worry and just go on with your life but that's sometimes easier said than done.  I hope and pray that you'll have good news!  Keep the faith and try not to worry (it's hard)

light42day
Posts: 61
Joined: Mar 2012

It sounds like he did read at least some of the report. It seems positive that the sample looks good anyway.  I think I'd hold onto that for now. I don't know for sure if that means there's no cancer in there but it does sound promising!

llwright
Posts: 31
Joined: Jul 2013

there was no report except the 2 ultrasound reports. he looked at thelittle jar with the sample that he just took out of my uterus and said" it looks fine, i dont think you have cancer".  thats great if he doen't think i do and if he is right i'll be the first one to bring him a box of chocolates. but i honestly felt like he doesn't care to be bothered with it cause he is leaving on holidays. i will call them tomorrow and demand that the results be sent to someone else. he told  me it takes 4 to 6 weeks for resultsn and i think he said that to coinside with his vacation plans

ConnieSW's picture
ConnieSW
Posts: 608
Joined: Jun 2012

4 to 6 WEEKS?  Unless you are in a third world country, this makes no sense at all.  Stand your ground.  I can't believe this doctor's  unfeeling attitude.  He eyeballed the specimen and believes everything is ok.  How scientific.  Don't let him get away with treating you like this.  I am a retired RN  and I have never heard of such a thing.

Are you in Francewhere everything shuts down in August?

Kathy G.'s picture
Kathy G.
Posts: 116
Joined: Dec 2012

WOW!!!

I am in shock at your doctor's blase attitude! It appears the other members are as well... 

I had several endometrial biopisies over the years due to extremely heavy perimenopausal bleeding. None took longer than a week to come back. I'd have to agree with Connie's question about being in a 3rd world country. That just sounds so off that you would have to wait that long for the official results.

Before my diagnosis I was more likely to let things go and hope for the best. NOW, I am more likely to be on top of it and THEM. I don't like all this testing business and Jan makes some very valid points about MRI's, etc. Sometimes I think they add to our worries without being truly capable of being helpful.....they can be more misleading than helpful.

That being said in the case of my family history with colon cancer and recent uterine cancer diagnosis I will slurp the testing crap every 3 months until I am clear of polyps. Again, like Jan said we all have to pick and choose our journey on an individual basis.

I'd just want a copy of my results in hand in this case....my 1 cent of advice.

Kathy

NoTimeForCancer's picture
NoTimeForCancer
Posts: 511
Joined: Mar 2013

Linda said earlier in the thread she lives in Canada.  The Canadian health care system is different than the U.S. system. 

Sara Zipora's picture
Sara Zipora
Posts: 227
Joined: Sep 2010

Grrrrr!

Don't know if it is too late now, but could you ask for biopsy slides and get them seen by someone else?

The Doc usually doesn't make the microscope ready slides the pathology department does.

Vacation/Holiday or Not they are your property and can at the very least ask a pathologist to look at them.

My two cents,

Sara

janh_in_ontario
Posts: 110
Joined: Sep 2010

I had many biopsies prior to jy diagnosis. my dr told me it takes 2 weeks. after jy biopsy that was cancer he called me with the dx in exactly 1 week. I am in canada and as much as dr beila hates for me to say, canadian healthcare is significantly different than the US. I have lived in both countries and feel entitled to my opinion.

I suggest you call the dr and ask his secretary for an alternate dr to be added to the results list. if u r seekng a gyno, perhaps add your family dr.

try to take some comfort in his comment about it not looking like cancer. enjoy the summer and try to forget the test. if it is cancer you will need to learn to wait - and more importantly learn to fight for yourself. you will need it.

hugsjanh

 

 

 

 

 

 

 

 

 

llwright
Posts: 31
Joined: Jul 2013

went for MRI yesterday. all scheduled tests are done now. does anyone know if i should have had bloodwork done? nobody has ever ordered any bloodwork at this point.

janh_in_ontario
Posts: 110
Joined: Sep 2010

I suggest you Demand a CA125 test. you will have to pay $35 but it may be a good cancer marker for you.

light42day
Posts: 61
Joined: Mar 2012

I don't remember having any blood tests done until I had my pre-op tests before my hysterectomy. I hope you hear something soon!

llwright
Posts: 31
Joined: Jul 2013

got mri results back today for the spot on my liver. it says : Posterior right lobe liver lesion with atypical imaging features that do not fit in with any classic benign lesion. does not have typical appearance for cyst or classic hemangioma.

the imaging appearances are unusual. intrahepatic cholangiocarcinoma might have a focal presentation such as this.

i would suggest a biopsy for definative diagnoses. surgical consultation is suggested.

i also got a call from colonoscopy doctor today. results from polyps are in and he wants to talk to me tomorro at 4.

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Now where does that leave you..still unknowns from what I'm reading.  Looks like they need additional testing, etc for the MRI results.  I had my first CT scan after completion of treatments, found something on my liver.  Came back with "hemangioma" and it's on every scan and notes no changes.  Do you have a plan where to go for the consulation or is your present doc doing this part?

Keep us posted on your colonoscopy results as well.  Anything we can answer for you or help, plse post.

Best to you and be strong this part of the waiting is the PITTS!!!

Jan

 

 

 

llwright
Posts: 31
Joined: Jul 2013

my doctors office is arranging  for me to consult with a liver surgeon for a biopsy. and since the colonoscopy doc refused to give me my results over the phone, even at my urging. im suspeccting its not good news.  yes  i am getting sick of all this waiting. gives me a headache....lol

llwright
Posts: 31
Joined: Jul 2013

my doctors office is arranging  for me to consult with a liver surgeon for a biopsy. and since the colonoscopy doc refused to give me my results over the phone, even at my urging. im suspeccting its not good news.  yes  i am getting sick of all this waiting. gives me a headache....lol

Double Whammy's picture
Double Whammy
Posts: 2318
Joined: Jun 2010

You're really going through some scary things!  I hope you can get results of endo biopsy sooner than Sept. and liver biopsy turns out ok.  My experience has been that "they" don't take these things as urgently as we do.  Maybe in most cases, the outcome will be the same within a certain timeframe, but they have to know their patients are beside themselves with anxiety while waiting.  Frankly, I don't think they even think about us unless something is in their face (a test result or appontment) and if an appointment, they don't even review our records until just before they step in the door of the room (or sometimes after they enter the room).   I do think there is that there can be a visual appearance on the biopsy samples IF it's an obvious cancer.  At my biopsy, she took extra samples because they didn't look right.  That, however, does NOT replace a microscopic exam and some of us had biopsies that showed only atypical hyperplasia but ended up with a cancer diagnosis after surgery.   

Adding my encouragement and support to you through the waiting game. 

Suzanne

Kathy G.'s picture
Kathy G.
Posts: 116
Joined: Dec 2012

WOW!!!

As Suzanne says above you are really going through it! I hope you have a good support system while you are waiting for these results. I have always found the waiting is worse than dealing with concrete information...no matter how bad!

Hopefully your results will be good, but even if they are not once you move through this waiting phase into the 'action' phase with either a sense of direction or the sigh of relief that all is behind you it will be a better place!

Come back and let us know how you are doing...even if it is to vent!

Kathy

llwright
Posts: 31
Joined: Jul 2013

got results from colonoscopy and the polyps were benign :) the CT scan and the liver mass says it does not appear as any classic benign lesion so they want to do a biopsy on my liver. i am still waiting on the results for the endometrial biopsy. they have ordered a mammogram and a endoscopy?? to check my stomach. going for mammogram tomorrow and see liver surgeon next week.

ConnieSW's picture
ConnieSW
Posts: 608
Joined: Jun 2012

So glad the colonoscopy results are good.  Why on earth couldn't he have said that on the phone instead oif keeping you on pins and needles.

llwright
Posts: 31
Joined: Jul 2013

6 months ago i had a lump on my left breast. so doc sent me for a mammogram and ultrasound. It turned out to be a cyst,  A few dyas later i got a call saying i had to go for another mammogram. when i got there it wasnt for a mammogram but for a biopsy on my right breast. i got all freaked out because i had no idea and thought everything was fine. the new radiologist decided to do another mammo and ultrasound because she didnt seem to think that i should need a biopsy. so they re did both and said they couldnt find anything but to come back in six months for mammo to follow up.

well i went in this past thursday for mammo. now this morning i got a call from the radiologist to come in again because they want to do an ultrsound. so i asked her if my mammo was clear and she said we need to do an ultrasound...so i said again..is this because of the spot in particular from 6 months ago...and again all she said is" we need to do an ultrasound".....uuuggghh  

i feel like im going to explode. im still waiting on my uterine biopsy results and still have to go for a liver biopsy????

my god!!!! if i get through all this and i come out clear...im buying a lottery ticket!!!

ConnieSW's picture
ConnieSW
Posts: 608
Joined: Jun 2012

This is such a nightmare.  I feel so awful for you and wish I could give you a big hug.  I guess a cyber hug will have to do.  Are you eating and sleeping ok?  I hate to think what this stress is doing to your poor body.

llwright
Posts: 31
Joined: Jul 2013

no kidding connie this has sure been a very trying summer. thanks for the hug :) i dont know what kind of lesson the almighty up there is trying to teach me,   but enough is enough already!!

WalkingThePath
Posts: 1
Joined: Aug 2013

I can't believe how much you've been kept waiting! I'm in the USA, but I always make a written request to have my test results (blood work, MRI, UltraSound, PET/CT) faxed to me (we have a home fax machine) as soon as they are in, and if necessary I write that I do not want to wait to talk to the doctor about them before getting them. You can do this written request when you sign in for the tests, as a condition of giving them permission to do the test.

Most recently I got my PET/CT scan results faxed two days after the test, and well before the doctor called me. I much prefer to read results myself, look things up online, and then go into the conversation educated, with my questions ready, rather than the doctor having all the knowledge and power and I just have to listen, unprepared to ask good questions.

If I didn't have a fax machine, I'd ask to be phoned and then to come and pick the results up -- but I'm only 10 miles from the hospital where all the tests are done.

Getting the results mailed would be my last choice, as that can take a long while.

I just want to encourage everyone to be full owner of your tests results. It's your body!

Smile

 

llwright
Posts: 31
Joined: Jul 2013

good news. endo biopsy is b9 all clear!!!!  they've booked liver biopsy for september 23 unless an available time comes up sooner. go for ultrasound on breast this wednesday. Hopefully these good results keep coming.......:)

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