Jul 08, 2013 - 10:11 am
First a BIG BIG thank you for everyone who has been so kind and responding to my posts about Mike and his battle against EC and now emphysema. He was determined to be that miracle but his body is not cooperating so July 3rd, we officially terminated all medical treatments and went on ho****e Juky 4th..While it was a hard decision to make, both Mike and I will tell anyone it was the BEST decision we ever made.
Ho****e is a scary word for when people hear that word the first thought is end of life care but that is not true. Ho****e also means comfort care and that is what we have now. Mike and I after long talks full of tears, he decided he no longer wants to endure the pain of chemo, the fast that robs him of the pound or two he gains during the weeks, be sick and puts his quality of life at a 1 but he wants to live what ever time he has left free of hospitals, tests and chemicals. Going on ho****e took so much weight off our shoulders that for the first time in over a year and half of fighting this fight, I saw that sparkle in his eye when he smiled and said this was the right choice and all our doctors are supportive and behind us.
Ho****e comfort care means exactly that..comfort care. We are treating his symptoms and not the cancer or emphysema. Our focus is on making sure Mike is comfortable not on all the endless appointments on a calendar and taking care of the side effects of the chemo. I have one number to call, not a list when I need help and they come to us. The ho****e staff calls our doctors who will stay involved with us and when the time comes that Mike draws his last breath, I call ho****e, not the police or ambulance so they can prove he died of natural causes, but the ho****e nurse comes and makes all the calls for us after they pronounce his time of death. What ho****e now offers Mike is the ability to focus on his family and spend quality time with us and will not step foot in the hospital or ED again..more importantly, Mike will not die in a hospital which is his greatest fear. Ho****e has allowed us to re-direct all our energy and focus from trying to fight cancer and emphysema which does not provide a cure but does provide severe sickness and agony but rather allows us to focus on what is truly important..family and all the small things like a sunrise or sunset, a bird sitting on our fence or the laughter of our grandchildren..the things that get lost in the fight that are so precious. I am thankful for ho****e which has given my husband peace of mind through the amazing care we have so far recieved since the 4th.