Jul 07, 2013 - 11:05 pm
Jan. 2010 it was discovered when I felt weak and seemed to black out and was rushed to emergancey that I had two brain tumors. They did many tests, most of which I don't remember and it ended up with a bioposy and it was non-hodgkins lynphoma large diffuse B Cell. I eventually ended up with a consult with Stanford and they said they would do what my doc was proposing and I began treatment with high dose MYX and Rutexin. i almost died because my kidneys decided not to operate but in a couple of weeks was out of the hospital and they said that I would lose about 15 percent of my kidney function. However in 6 weeks my kindeys were 100 percent and my tumors had shrunk by 50 percent. We decided to do the high dose MTX again and this time he didn't start the chemo until I had a ph of 8.5 and kept it at that the whole time I was in the hospital. We have continued with this proceedure for the last three years. After about 8 months both tumors were gone and MRI's each 4 months have said they are stable. I now get HDMTX every four months and monthly Rituxin. I seem to be getting stronger every year. I would really like to find others with what I have. I'm 73 and I know my doc is surprised that I am still here but is very supportive and it seems terribly protective. I have been working part time for the last three years as a MFT but have decided that the drive to work 1 1/4 hours each way is too much and am going to be retired and get to visit my grandchildren more often. I am finding that surviving has its own difficulties and I get pretty anxious as the 4 month MRI's and hospital stay come around. I would love to hear from some of you.