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Hi, this is my first post.

Johnny H's picture
Johnny H
Posts: 3
Joined: Jul 2013

 

I was diagnosed on May 9, 2013 with Squamous Carcinoma of the left tonsil pillar. I started treatment on June 19th and I have had 12 of the prescribed 35 radiation treatments so far. No chemo as the pathologist said mine was in the very early stages.

 

So far I can eat but it’s a job. I eat soft stuff like cream of wheat and my taste is gone except for a weird paint like taste that everything has. I try to stay hydrated and use the prescription magic mouthwash and hydrocodone for pain.

 

I am taking my treatments at Forsyth Hospital’s Davis Cancer Center in Winston-Salem, N.C. About a hour and a half drive for me one way.

 

I’ve been reading and lurking since my diagnosis and decided to introduce myself.

 

That’s all for now.

 

Johnny

 

CivilMatt's picture
CivilMatt
Posts: 2900
Joined: May 2012

Johnny,

Welcome to the H&N forum, sorry you find the need to be here and 43% of our members are past lurkers (so you fit right in).

I jest with you because you sound like you are handling treatments well.  It is all about your body adapting to change (and rads, ouch).

Eating will most likely become more of a challenge, but if you can handle it “more power to you” .  Remember, keep swallowing and drinking water, one of the easiest and most difficult things to do.

Best,

Matt

phrannie51's picture
phrannie51
Posts: 3664
Joined: Mar 2012

Glad to hear you've been lurking....so you have been able to check up on what all may (or may not) happen during your treatments.  You're about 1/3 done, so my guess is that the "paint taste" will soon dindle down to no taste at all.   You sound like you're doing pretty darn good so far.  Just keep the nutrition and the hydration flowing, and before you know it you'll be ringing that bell.

Somebody must have shook the "lurker tree"....LOL....another one fell out tonight, too.

p

dunedintech's picture
dunedintech
Posts: 68
Joined: Apr 2013

Nice work on being 1/3 of the way through. As mentioned the hydration is critical but sounds like you have that under control. I am 13 weeks post treatment (chemo / radiation) and things are starting to come back online including taste.

Hang in there and go well.

 

 

fisrpotpe's picture
fisrpotpe
Posts: 1328
Joined: Aug 2010

Welcome Johnny

your well on your way to continued years of survival, sounds like the lurking is helping. 

at your stage of treatment i appears you on track with the most on how they are reacting to treatment. prayers going out they continue to be some what bearablem. 

nice to have you pop out and say hey

john 

 

Skiffin16's picture
Skiffin16
Posts: 8062
Joined: Sep 2009

I was STGIII Tonsils and went through similar treatment (with chemo)....

Glad you decided to stop in and say Hello, and introduce yourself...

Sounds like you are doing well and well informed..., staying hydrated and keeping the calories in are a huge plus.

Best,

John

Ingrid K's picture
Ingrid K
Posts: 811
Joined: Mar 2011

Welcome and CONGRATS on doing so well at this stage of the journey.

You sound like you have a really good handle on things.  As others have said, the "paint" taste will soon give way to "no" taste, but that also means you are getting closer and closer to the light at the end of the tunnel.

I hope you continue to do well and please come on here and ask any questions you might have.

In the meantime, KEEP UP THE GOOD WORK !!!

 

michdjp's picture
michdjp
Posts: 193
Joined: Sep 2011

Hi johnny

glad you hear you are doing well.  My dad was diagnosed with scc of the tonsil and we went to wake forest baptist medical center in Winston Salem For follow up care. We received wonderful care.  This site has great people and more information than you can get in the medicl field! Beat of wishes to you and continued healing.

michelle

CherieLW's picture
CherieLW
Posts: 420
Joined: May 2013

Hi Johnny,

Glad that you are making it through these treatments!  I get on here to support my dad who was diagnosed with cancer of the sinus and one lymph node affected.  He's going through 35 radiations (has 13 left) and 1 chemo (out of 3) left.  Unfortunately, I watched his taste completely go right after the first few weeks.  My suggestions to you is to eat anythign you can and even ensure if you can get it down.  Stay hydrated as that is really important as well.  I'll be praying that treatment isn't too rough on you and that you heal quickly!

Cherie

Grandmax4's picture
Grandmax4
Posts: 583
Joined: Dec 2011

club no one really wants to belong to~~~my cancer was on my epiglottis, I had the divinci robotic surgery on November 2,2011. I was very blessed that no lymph nodes were involved and I didn't have to have chemo or radiation~~~for a year, I ate nothing but soft foods and drank ensure,boost. I had to learn to swallow and to talk again..with the help of my wonderful team at The James in Columbus Oh, I did it! Now, 1 year 8 months out, I am eating everything, my voice is clear and strong, I still suffer with some annoying mucus, but I deal with it. Good luck as you travel this journey. This board is full of awesome,knowledgable survivors that will help you beat the beast. Prayers to you~~

josh r.
Posts: 185
Joined: Oct 2010

Hi Johnny,

If this wonderful sight had been available in 1991 when I was going through treatment I probably would have "lurked artound" for a while also. I had stage iv scc and went through rads and loads of chemo and I am still moving right a long like so many of our "brothers and sisters" and have no plans of stopping any time soon. You have received wonderful advise and support and just remember it takes time and faith. We are here for each other. Sending you all the best, josh r.

josh r.
Posts: 185
Joined: Oct 2010

Hi Johnny,

If this wonderful sight had been available in 1991 when I was going through treatment I probably would have "lurked artound" for a while also. I had stage iv scc and went through rads and loads of chemo and I am still moving right a long like so many of our "brothers and sisters" and have no plans of stopping any time soon. You have received wonderful advise and support and just remember it takes time and faith. We are here for each other. Sending you all the best, josh r.

josh r.
Posts: 185
Joined: Oct 2010

Hi Johnny,

If this wonderful sight had been available in 1991 when I was going through treatment I probably would have "lurked artound" for a while also. I had stage iv scc and went through rads and loads of chemo and I am still moving right a long like so many of our "brothers and sisters" and have no plans of stopping any time soon. You have received wonderful advise and support and just remember it takes time and faith. We are here for each other. Sending you all the best, josh r.

rachel12yrsuv's picture
rachel12yrsuv
Posts: 432
Joined: Feb 2013

 

Hi Johnny, as i am sure you will hear quite a few times... WELCOME TO THE CLUB NOBODY WANTS TO JOIN!  Sounds like your handing your treatments well, and congratulations on your early stage, even alot of us survived at higher stages myself 3 and it will be 13 yrs Sept. 28,2013, all of us would have rather heard they caught it early, so again KUDOS to you and the Lord watching over you!  If you have questions feel free to ask, alot of smart, helpful and caring peoplr on our site.  Good luck and God bless you that you may continue through your treatments no worse off then today, in Jesus' name I pray Amen

 

take care, Rachel

D Lewis's picture
D Lewis
Posts: 1523
Joined: Jan 2010

What they all said...  Just keep on keepin on, putting one foot in front of the other, staying ahead of the side effects,

Deb

TracyLynn72's picture
TracyLynn72
Posts: 670
Joined: May 2013

You have to be here but WELCOME!!!! I'm right outside of Charlotte NC, not too far from Winston either! 

hawk711's picture
hawk711
Posts: 525
Joined: Jan 2010

Lots of good & smart people here to help you through this tough treatment.  Just ask and you'll get answers.

Hate to welcome you, but this is a great spot to be when going through treatment for this crap.

All the best, Steve

Johnny H's picture
Johnny H
Posts: 3
Joined: Jul 2013

have been having trouble getting logged back in to post or I would have replied sooner. Laughing

Skiffin16's picture
Skiffin16
Posts: 8062
Joined: Sep 2009

The site has been terrible lately ...

Hopefully that has been resilved with some majr work yesterday and very late last night...

So far so good..., fingers crossed.

John

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

I finished radiation three years ago.  Clean checkups.  Do well.

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

I finished radiation three years ago.  Clean checkups.  Do well.

hwt's picture
hwt
Posts: 1881
Joined: Jun 2012

Sorry you found yourself on this journey but glad you found this site. I had cancer of my lower jaw, 19 hour surgery 01/2012 and finished rads & chemo 05/2012. Clean scans since. Please feel free to ask questions because someone has usually experienced the same and can offer advice. 

Prayers for an easy go of it

Candi in St Louis

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