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Question of the Day!!

Eims's picture
Eims
Posts: 414
Joined: Feb 2013

guys, ok im not freaking out but i was wondering how long it may be til you felt symptoms of something else or could it just be all in the mind?  when i had my initial ct scan and they told me about the kidney he just said the good news is that is is no where else!!  would anything have shown up then if it was there even if it was small?  is this a natural way of thinking?  just throwing it out there for your input....thanks all......

eims x

Djinnie's picture
Djinnie
Posts: 769
Joined: Apr 2013

 

Hey Eims,

You are bound to have that sort of concern in the back of your mind. If like me you had a full scan they would have picked up on any other problems at that time. 

Djinnie x

 

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

all take on a new importance. Probably safer than being in denial. Keeps us vigilant.

GSRon's picture
GSRon
Posts: 1211
Joined: Jan 2013

Hi Eims.!  Proper pre-op scans will find all kinds of potential issues.  In my case  my first scan was not RCC related, but it sure showed several areas of concern for my Surgeon.  He immediately ordered additional scans to identify what he saw.  I have several spine abnormalites, some caused by falling off my bike and some from all the manual work I did in the past.  And yes the blockage in my Renal Vein was indeed RCC.   As my surgeon clearly stated he was NOT opening me up to find any surprizes..  This dilligence saved me a second surgery, and for that I am grateful.!  So, as long as your scan(s) got a proper look see, then it all should be just fine, for now anyway..

Cheers..!!

Ron :)

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

I've wanted to ask that a hundred times! 

It has been the elephant in the room for a few weeks now.

I appreciate all the wisdom.

Michael

Eims's picture
Eims
Posts: 414
Joined: Feb 2013

thanks everyone.......ive been thinking all sorts and i think i am stressing even though i think im not!!!  i have my big scan in august so i guess i just have to wait til then.....

eims x

Suekub's picture
Suekub
Posts: 115
Joined: Apr 2013

It is horrible not knowing what is happening inside your body, every little ache or pain sets in motion a whole lot of unwelcome feelings. Best of luck for your scan in August.

Limelife50's picture
Limelife50
Posts: 411
Joined: Nov 2011

Could all of us here on this board have RCC that has spread already but not yet detected on our scan, well the the answer  for a few of us is yes and for a few more of us later on maybe 1 2 3 or 5 or 10 or 20 years later the answer will be yes again,but now is there a chance some of us will grow old and die from another cause,the answre is yes again,i do not mean to be cold hearted but there comes a time when we need to embrace our situations and move forward.Be strong Elms,there are so many people who die months later after being dxed with cancer but for a lot of us here we have been blessed with a chance for many years of quality life.

Galrim's picture
Galrim
Posts: 274
Joined: Apr 2013

In the end there is no clear answer to your question. Yes there could have been something undetected. Yes there is a lower treshhold to what the scans can pick up. And we are all, despite our prognosis, prone to having mcc circulating...

But you have to let it go, otherwise you will drive yourself insane and worry every day in and out. You have to remind yourself that the risk is small, but also come to terms with the fact that it is actually there. Not an easy process, but its vital to do for the sake of your quality of life. Adress that fear and show it youre the boss.

Be vigilant and have attention to your health and symptoms, but find a balance where it doesnt occupy your mind all the time.

/G

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Well said, Mike and Galrim - a message that needs to be voiced here on a regular basis for the benefit of newcomers to this game.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

What you are feeling is normal, as an oldtimer I can tell you that it will lessen over time, but it does not go completely away, at least not yet anyway.  I had perhaps the best pathology a person could hope for and still after nearly 4 years the worry persists, increasing around scan time.  In time it just becomes a part of who you are and I think it helps keep us vigilent over the years.  I'm planning to be a little scared for the next 30 years or so, more like 50 for you.

FiatDriver
Posts: 11
Joined: Jul 2013

It seems like such an obvious thing but it is comforting to read that people feel the same way.  I also had great pathology and there is no indication that my tumor spread.  It was removed on June 5th.  I find myself already focusing on my first scan which is scheduled for December.  Heaven help me if I get sick and run a fever or have some other weird symptom.  It would put me in a total panic.  I am suddenly turning into a hypochondriac.

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

My x-rays come every 90 days. CT scans annually. My first chest x-ray is September. Thats still far enough away that I am

using gallows humor to cope with it! Smile 

I'm sure tensions will rise as September nears.  I know I already lookup every discomfort or pain I feel now, at least in my torse, just being sure.  It hell to wake up one morning and have to face the fact I am neither ten feet tall, NOR bullet proof! Cool

Michael

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

My x-rays come every 90 days. CT scans annually. My first chest x-ray is September. Thats still far enough away that I am

using gallows humor to cope with it! Smile 

I'm sure tensions will rise as September nears.  I know I already lookup every discomfort or pain I feel now, at least in my torse, just being sure.  It hell to wake up one morning and have to face the fact I am neither ten feet tall, NOR bullet proof! Cool

Michael

Eims's picture
Eims
Posts: 414
Joined: Feb 2013

thanks guys...its nice to know i am not the only one xxxx

dhs1963's picture
dhs1963
Posts: 373
Joined: May 2012

It gets worse the further away from the last scans you get.

Last April, if something hurt, I knew it was not cancer.  Today, 9 days away from my next scan, I have pain in the lungs (burning and achining), and some other things.  I do not know if it is hypochondria or something real.  I can easily convince myself that it is bad.  The way I deal with it is to not plan for anything after my scan.  On July 17, when I get the results in, I will either plan for treeatment, or plan the next three months. 

And I will eat some bacon, because that makes me happy.

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

That's funny. I do similar things too. I have a brain mri this week and it worries me. Oh well, let the fun continue.

dhs1963's picture
dhs1963
Posts: 373
Joined: May 2012

Last winter I made T-shirts that say

    Bacon Cures Cancer*

    *You only die once

on the front, and "what the #$#%, lets get the sports car" on the back.

With the requisite ribbon, orange lettering on maroon.

 

I did it as a fund raiser for Caringbridge (My jounal helps me a lot).

I have a few extra.  PM me your contact, and size, if you want one (and I have your size).

Eims's picture
Eims
Posts: 414
Joined: Feb 2013

dhs i would love one of those!!!!  im a small/medium woo hoo x

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

Make mine an Extra Large!  I'll pm my info! LOL

 

Michael

TillieSOK's picture
TillieSOK
Posts: 232
Joined: Jul 2013

If you still have one in a XL or even XXL ( I love to sleep in tshirts!) I'd love to have one.  

I don't have a clue how to send a pm on here...

anmazon's picture
anmazon
Posts: 129
Joined: Jun 2013

XL or XXL.

I'll PM you.

Annie

Phoenix Rising's picture
Phoenix Rising
Posts: 154
Joined: Jul 2012

I just had the MRI and CT scans done Thursday and will get the results Wednesday.  Every ache in my neck, chest and back is cancer until I get those results.  I have already missed a meeting at work due to being completely scatter-brained and anxious for the results. 

Then along came Sangria..... and I forgot what I was worried about.

I look great, I feel good, so what the hey?  I'll trust and believe that I am okay and no matter what the results say, I will be fine.

GSRon's picture
GSRon
Posts: 1211
Joined: Jan 2013

I guess I too can join this crowd.. had my MRI and CT scans yesterday.. get the results on Wednesday as well..!  My back has been hurting for a couple of weeks now.. but I happen to have a bad back anyway... so I keep telling myself this is the normal pain... sure hope so..!

Hope we all get good results..!!

Ron

Eims's picture
Eims
Posts: 414
Joined: Feb 2013

ron that is your back getting ready for the rock!!!!!!  it will be ok x

eims xxxxxxx

Eims's picture
Eims
Posts: 414
Joined: Feb 2013

phoenix rising i had a maaaahooooooooosive jug of sangria today in this beautiful sunshine and i must say i feel fabulous xxxxx

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

I have a source for Apple Pie Moonshine!

August will be my anxiety rising time! X-rays and bloodwork early in September!

btw Eims, I have a Phoenix rising tattoo on my left bicep!   I thought i was getting it for my 4th reincarnation.  I guess it will be for my 5th!

Michael

Eims's picture
Eims
Posts: 414
Joined: Feb 2013

woo hoo we want pics michael!!!!!  i have a celtic design on the top of my left buttock so no pics im afraid but i am thinking of getting a little one above my scar.....

eims x

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

Awww, one little picture won't hurt! I'll close one eye!

I've  had this only since February, just before I got mydiagnosis!  Its my only tattoo so far! n LOL I was 66!  LOL  Maybe I'll get another on my 67th Birthday!

Michael

Eims's picture
Eims
Posts: 414
Joined: Feb 2013

oooooo now what else would you get?

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

Something hope filled and positive. I've been thiunking there are some very uplifting rebirth myths from around the world with very interesting characters!   Something in that vein. Perhaps a Native American theme! Still deciding! LOL

Eims's picture
Eims
Posts: 414
Joined: Feb 2013

you have plenty of time to decide......check out some of the celtic designs...some of them have beautiful meanings and very symbolic too x

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