Jun 28, 2013 - 3:54 pm
Hi everyone. My dad was diagnosed with SCC Stage 4 T1N2bM0 back on June 3rd. He had surgery to remove what they thought was a benign cyst. Come to find out it was cancerous, the primary was in the tonsil and it had spread to 3 lymph nodes. His margins were clear and there was no extracapsular spread.
We are definitely doing radiation but only on 1 side. He has had a PET scan, ultrasound, and CT and nothing shows on the left so we are doing radiation only to the right side to lessen his side effects of dry mouth, sore throat and taste buds. He will be watched closely over the next 2 years.
Adding chemo has been left up to us and we don't know what to do. They are recommending 1 dose of cisplatin at the start of each week for 6 weeks (30 rads and 6 doses cisplatin). The ENT people seem to think adding chemo is overkill, but the oncology side thinks its the best chance to stop a recurrence. We have received opinions from people at Northwestern, Vanderbilt, and Univ of Kentucky and for the most part all surgeon think no chemo, all oncology teams think we need to add chemo.
Had he not had the surgery chemo and rads both would be necessary but since it has been removed and margins were clear some docs think we don't need to full court press and add the chemo.
Anyone out there who has has tonsillectomy and neck dissection and only done radiation?? We have 1 week to make a decision. Going to pray for god to give us wisdom and pray for feedback on here.