Jun 28, 2013 - 12:09 am
Have any of you experiencme worsening of neuropathy ? Now, 18 months after last chemo Gemzar after roundsofcarbo taxol and Carbo Doxil, my toe tingling numbishmess seems to be creeping up my legs to my calfs now. My doc just kinda shrugged.
As if Stage IvB grade3 Clear and Undifferentiated Cell Adenocarcinoma isn't enough, I lost my vision in one eye 9 years ago to a behind the retina hemorrhage, two surgeries left me blind in one eye and with glaucoma there. Not done yet, nope, now my good eye, has been clouding with a cataract which I have been loathe to treat as if something goes wrong I will have no eyes that can see!
Ironically, now, three years after Dx, the cancer seems to be PG in a dormant stage,after four recurrences, chemo thrice and two surgeries and four radiation intervention treatments, but I am exhausted all the time trying to negotiate my world, work a half day etc, because of the energy I expend on seeing!
Sunday I have a PET scan three month follow up from last Thank God, clear one.
If, Please God, this one is ok too, I have an appointment for cataract surgery.
I am snarly, scared and cranky, feeling alone in a sea of people who are moving along with their lives and a big bit tired of being on the 'edge of their wits' worrying about me?!?!
Sorry for the long rant.
But back to the Neuropathy, any ideas?
Be well,keep fighting,