CSN Login
Members Online: 14

Not so good news

micah00
Posts: 13
Joined: May 2013

So today I got my results from my pet scan and not so good. The Dr said its all gone but there was still a little bit that popped up on the scan. He thinks that its just tissue healing still but he don't wanna take it lightly. So now I meet with a radioligist monday and see if I need radiation. The Dr thinks its so small that I won't need it but I will have to go through another cycle of chemo. So much for it being done so now I keep going.

jimwins's picture
jimwins
Posts: 2085
Joined: Aug 2011

I'm sorry you didn't get so good news but the bright side is most of it's gone and maybe all you need is one more cycle to kick its a$$ for good :).  Was the little bit in your chest or neck (based on your profile)?  Hopefully you won't have to have the radiation (fingers crossed).   I know you're disappointed - it's like running a marathon and when you think you've reached the finish, they added another couple miles.  Like you said "keep going" - I know you can and you got lots of cheerleaders here (though my outfit doesn't fit any more :))!  Please keep us updated.

Hugs and hang in there buddy,

Jim

 

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Ah Bullcrap Jim I hear you still squeeze into that pink TuTu and toss a mean bunch of PomPoms at all the NC games. LOL.  John

jimwins's picture
jimwins
Posts: 2085
Joined: Aug 2011

Hehe - BUT my pom poms are sagging among other things!  Tongue Out 

allmost60's picture
allmost60
Posts: 3175
Joined: Jul 2010

Hi Micah,

  So sorry you have to do another cycle. I was told either 6 or 8 rounds of chemo but ended up only getting 6. I guess it's not uncommon to extend chemo when trace cancer shows up upon chemo completion. It sounds like your treatments thus far have gone fairly well..(per Bio) so hopefully after this next cycle you will be good to go! Hang in there and let us know how things go.

Best wishes...Sue  (FNHL-stg3-grd2-typA-dx 6/10-age 62)

anliperez915's picture
anliperez915
Posts: 756
Joined: Sep 2011

Hi Micah,

Don't get discouraged, I know how you feel sometimes we just want to get it over with! Well, that's how I feel :/ 

like my other buddies here have said, keep going you're almost there :) Take care

Sincerely,

Liz

GKH
Posts: 326
Joined: Jul 2012

Mine are mutts but lovable. One is half Boston/ half pug. The othr  if half Boston, half Frenchie. Your little guy/gal would have a ball with them.both were saved from the shelter. My very best friends!

anliperez915's picture
anliperez915
Posts: 756
Joined: Sep 2011

Hi Garry (right name???)

thank you, I just got him about a month ago, he's half chihuahua/pomeranian..he's a really smart puppy. I'm still training him to poop outside so if you have any suggestions on how I can accomplish this task please advise :D 

Hope you are doing ok, take care of yourself and (((hugs))) to you!

Sincerely,

Liz

micah00
Posts: 13
Joined: May 2013

Thanks for the encouragement everyone. Im keeping my head high don't worry. Very thankful it didn't spread and that it has gone away. Just one of those moments where ya think "really". haha  The spot that popped up was still in my chest Jim.

Bill_NC's picture
Bill_NC
Posts: 112
Joined: Jan 2013

May I ask what type of HL you had? 

micah00
Posts: 13
Joined: May 2013

I was stage 2B

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1211
Joined: May 2012

Micah,

Your first post  at the top above said that the doc thought that the "spot" in your chest on the scan might be tissue healing.  If it was a PET scan, then of course that is very possible.  PETS detect "hypermetabolic activity" (fast growing tissue), and a wound healing is precisely that.   By the comment "gone away," I assume you mean it is no longer detectable.  I am very glad to hear that.

Like GKH, my dog is also a mutt, but he is "pure" mutt; no one can detect any purebread strain in him.  He strands at times as if he has a little pointer in him, but who knows...  80 pounds of hyperactive energy, although 7 years old now.  He too was saved as part of a litter at the local shelter.  We brought him home in a shoe box.   Totally gentle and a blessing to have around.

May all of your future scans show "gone away !"

max

micah00
Posts: 13
Joined: May 2013

Today met with the radioligist and she said it was my call if I wanted radiation. She said that the spot in my chest is dead! So radiation wouldn't really make a difference if i was already getting another cycle of chemo. Which is really good because I would have to get radiation everyday for 3 weeks. She also said when she looked at my PET scan nothing lit up so today was a good day of appointments. So next Tuesday I start my last cycle of chemo and once thats done I wait 3 weeks then I get a CT scan to see if the spot in my chest changed in size any. So I feel everything is going in the right way again. So I'm praying for the best.

jimwins's picture
jimwins
Posts: 2085
Joined: Aug 2011

That is great news, Micah!  Thanks for sharing and I wish you the best also.

Hugs - Jim

jimwins's picture
jimwins
Posts: 2085
Joined: Aug 2011

That is great news, Micah!  Thanks for sharing and I wish you the best also.

Hugs - Jim

allmost60's picture
allmost60
Posts: 3175
Joined: Jul 2010

Hi Micah,

 Now that is excellent news in my opinion!!! Smile No radiation and only one last cycle of chemo sounds like a great plan. Totally doable, don't ya think? Good way to to kick off the holiday week! Happy 4th of July...I'll be moving to the river on the 4th in 105 degree weather, so I'm not sure how "happy" I will be! Tongue Out ha!

Take care...Sue (FNHL-stg3-grd2-typA-Dx 6/10-age 62)

Bill_NC's picture
Bill_NC
Posts: 112
Joined: Jan 2013

Congrates and wish you all the best.

micah00
Posts: 13
Joined: May 2013

Today was my last chemo and I'm so happy its done. They gave me my certificate of completion so its legit! I meet with the Dr Thursday morning and see what he says and what happens next. So thankful for all of this and the power of prayer from everyone that helped me through this. God is Great!!

Rocquie's picture
Rocquie
Posts: 523
Joined: Mar 2013

Fantastic! Congratulations.

Rocquie

girliefighter's picture
girliefighter
Posts: 218
Joined: Mar 2013

Congratulations...Great News!!!!

jimwins's picture
jimwins
Posts: 2085
Joined: Aug 2011

Congratulations!  Certificate of completion?  Do you hang that on your office/cubicle wall like you completed training in CPR or Microsoft Excel?  LOL :)

Hugs andf happy you're done!

Jim

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1211
Joined: May 2012

Jim,

My infusion center has a ship's bell mounted, and when a person finishes his or her last infusion, they chime themselves off deck, as the Captian is chimed off his ship when he heads home in the evening...  A pretty cool tradition.

Rocquie's picture
Rocquie
Posts: 523
Joined: Mar 2013

My infusion center gave me a "Purple Heart" award for completing my chemo. It was cute and well-meant and signed by my doctor, nurses, and several office staff. Since I didn't have a cubicle to hang it in, I filed it away with my medical records. Smile

Rocquie

 

Mary N.
Posts: 89
Joined: Jun 2013

So glad the treatments have come to an end.  Best wishes.

allmost60's picture
allmost60
Posts: 3175
Joined: Jul 2010

Congratulations! SmileSo glad you are all done. Keep us updated after your scan,and get out there and enjoy what's left of summer! Cool Best wishes...Sue

(Follicular NHL-stg3-grd2-typA-Dx 6/10-age 62) In remission

micah00
Posts: 13
Joined: May 2013

I met with the Dr and he went through my blood work and he said that I am in remission. I go back in a month to see the Dr again and hes going to check my blood work again since I just receieved a scan a month ago. If all is good then, then I wait 2 months. Dr said he doesn't believe in giving scans all the time for he doesn't like radiation being put in the body so much. He said he can tell if something is wrong by bloodwork. So i'm glad I have finally made it and praise the lord for it everyday.

Shoopy
Posts: 210
Joined: Jul 2013

EXCELLENT NEWS!!!  I am so happy for you!!!

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

ALWAYS THE BEST NEWS TO HEAR !!!!! JOHN

allmost60's picture
allmost60
Posts: 3175
Joined: Jul 2010

Hi Micah,

   "REMISSION"...that's music to our ears! So very happy for you!

Best wishes....Sue

(FNHL-2-3a-6/10-age 62) In remission

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network