Jun 24, 2013 - 1:23 am
I guess I am a survivor of Squamis cell on the back of my tongue. I went through surgery Last year May and had a tumor along with 2/3 of my tongue removed. They also removed my limthnodes form left side of my neck. After a couple months of healing I went through 40 rad treatments. The oral mucus got so bad I could not hardly eat. I would not of made it with out Boost and Brussels Sprouts
It was hell for about 4 months. I went from 290 down to 216. I have gained back about 18 lbs. I still cannot handle catsup or any food with any spice. My taste is still not completely back. I don’t taste any sweet and very little salty, my oncologist said it might be as good as it will get. My dentist made me a fluoride tray and prescribed me fluoride, which use at night. I don’t have many teeth left, so I am trying to keep all that I have. They discussed oral surgery to shave my jaw bone for lower dentures, but the surgeon said because of the radiation would have to go through 30 to 30 oxygen treatments and I still have the chance of the jaw not healing. I decided not to have the surgery. My dentist said she would try to make me dentures. She said they properly would not fit due to the scaring from the radiation.
I have very little saliva, which is a problem during the night. I keep Biotien and a class of water by my bet side. Speech can be difficult, with the lack of teeth, 1/3 of a tongue and little saliva. But I am hanging in there. It still I guess is a small price for life.
It has been about 8 months that I have been on the message board. It has really helped me to deal with the cancer. I Thank Everyone, and pray for all of you.