Jun 22, 2013 - 10:29 pm
I was going along really well and truly feeling my oats back to singing like my oldself and exercising like a forty year old, when I had a very violent case of vertigo that led to an ER visit. By the time I got there, I had virtually lost the use of arms and legs and my head was lying either to the right or left of my shoulder. I could answer questions but slurred my words. (A bad drunk without alcohol!). They gave me anti dizzy and nausea medication (I had been projectile vomiting) which revived me and allowed me to begin to eventually let me carefully walk to the bathroom, etc. They gave me a quick test and diagnosed me with Benign (I love that word) Vertigo. I was scheduled to follow up with my doctor.
Luckily I had been seeing a Otalaryngologist in a good firm with an excellent ear specialist. Neither doctor agreed with the ER doctor. It was determined that I had lost 100% of my hearing in my left ear.
I had a shot of Prednisone directly enjected into my ear and an MRIs of my brain with and without contrast. Although the doctors believed this was caused by a vascular event or brain tumor, no evidence of this was found. Blood was taken to determine if I have an autoimmune disease (not the first time). Luckily the event of metastic lesion is found only seven per year internationally in the inner ear, which is where they believed my event took place.
All I know is that I am still wobbly, can't drive or exercise at my gym, and that breaks my heart. I hate being stuck in the house especially since bending over and picking up things, running the vaccuum clearner, etc seem beyond me right now. I am unstable and very tired. I read that one of these types of occurrences are among the most anxiety and depressive things that can happen to you and since I felt that way after the Lymphedema diagnosis (which hasn't turned out to be that horrible mostly because the weather has been cool), I am going for psychiatric consultation. The day after I could not recall the word "benign or vertigo" which was really weird. I am getting better daily.
The Ear doctor will call me when the blood tests come back and I plan to go for the physical therapy and repeat ear test scheduled for Thursday to see if there has been any recovery as a result of the Prednisone. I was told there is little hope my hearing will recover even slightly. Monday I go to the Pulmonologist, a visit which was already scheduled since this type of ear-to bronchitis thing is seasonal for me. It has already descended to my chest. The doctor seems to be convinced this is a wicked virus that seems to live in me like a perrenial.
I guess what I am saying is this feels like the broken shoe lace. It sounds like nothing but it is another chronic illness that doesn't have anything to do with the cancer except that it seems to be born from some sort of "immune system" disorder. I passed all the allergy tests which now I am so glad I had done. I am going to have a full psychiatric evaluation for depression and anxiety at MSK if I can get one. I also need a damage assessment and some emotional support. If I am lucky, maybe I will find a board like this but unfortunately this is a rare thing, especially full loss - no tintinitis.
Thanks if you read all this,Love,