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Took the plunge today, shaved it off

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

Was not as difficult to accept as I thoughtt.  It was pretty painless, but really chilly when the AC kicks in.

Have a very important question?  How do you keep the wig still?  It feels like it is wiggling around.  I tried tightening it, but it felt like it was going to pop up, guess I got it too tight. Is it something you just get used to?  Also. how do you keep in on in the wind? 

Doe1504
Posts: 94
Joined: May 2013

That's good questions, I better pay attention, I will be shaving soon. My first treatment is coming up and I was told the hair would be gone. I dread it. I have long red hair that I have never liked until now. Prayers for you.

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

Getting it shaved now is so much better than looking like a molting bird.

When you get your chemo, drink as much as you can. I'm trying now for  a cup of water every hour to hour and a half. If you have trouble with n/v call your doctor right away. Don't put it off hoping it will get better on it's own or you don't want to bother the doctor.   Take it easy and don't push yourself.  I found out these things the hard way.

You will be in my in my heart and prayers.

Sandy

Doe1504
Posts: 94
Joined: May 2013

Coco,

My dr already gave me 5 prescriptions, 4 for nausea and 1 for heartburn. The dr gave me a schedule and told me to put it on my refrigerator and take the meds as ordered and I would not be sick. Having trouble with my ins paying for all of the 1 nausea med. He wrote 32 zofran and the ins only wants to pay for 15. I hate ins. At chemo education they told me to drink about 80 oz a day. I will do as he said and pray I don't get sick. Are you feeling better now?

I am signed up to take a class called Look Good Feel Better. In that class they teach you ways to tie scarves and such. Search and see if that program is near you. I was told you get freebies like make up, etc. I am going to check it out and see what I can learn. Keep me posted on you. Praying for you still.

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

Feeling much better.  Fluids are wonderful.  Still eating very little each time, but eating every couple of hours.  This seems to be working well.

Please let me know how your Look Good, Feel Better classes go.  They have classes at the CA center I go to, but the hospital is about 20 miles away.  I don't want to commit until I am sure it's worth a 40 mile round trip.

What day do you start chemo, I want to be sure to hold you up in prayer often that day.

Take care and God bless.

Sandy

Doe1504
Posts: 94
Joined: May 2013

Sandy, I am sooo glad you are feeling better!!!  Keep up with the fluids and meds and eat as you can. Take care of you.

I go to Look Good Feel Better on 7-15-13 and my first chemo is Thurs.  6-27-13. I go to the onco on Tues and I am sure then he will tell me what time to be there.

Thanks for the prayers I sure need them. You are also in mine.

Dolores

ComfortablyNumb
Posts: 42
Joined: May 2013

I gave my head the shave this week too. I haven't attempted a wig yet, I'm sticking with scarves for now i think, I am a head sweater so it's bad enough in the summertime without putting a wig on it :-/ 

 

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

I wish I knew how to tie scarves.  Unfortunately my talents don't fall in this catagory.  Do you give lessons?

CypressCynthia's picture
CypressCynthia
Posts: 3964
Joined: Oct 2009

My wig doesn't move much so I am wondering if yours is the right size? 

You can buy wig liners that make a wig more secure.  Here is one site: http://www.tlcdirect.org/Wig-Necessities-with-Wig-Accessories-and-Care-Products-Swatch-Rings-American-Cancer-Society-TLC-Direct

I have a cotton liner that I bought from another site because it is too hot in Louisiana for any kind of nylon.  I also have a couple of nylon liners.  Sometimes the liners are helpful when my scalp is sensitive or itchy.

There are also comfy sleep caps that help when your head is cold (at the same site above and others).  I always either have one on or next to my bed.  This site will send a free cap: http://www.hatsofftochemo.com/

Hope this helps!

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

CC, what would I do without you. I bought wig caps a few weeks ago and completely forgot about them.  My mind was working on something like 2-sided tape.  I will try the cap with the wig tomorrow.

kdavis212
Posts: 18
Joined: Jun 2013

I've been bald now a couple of months. Its not so bad, in fact I'm considering not having it grow back. I can't help with wig as I just wear hats, but wanted to say good job taking control and just going for it!!

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

Truth be known it's not a bad summer haircut.  I just need to remember to put a cap on when I answer the door so I don't frighten my grandkids.

I only wear the wig if I go out and even that may change.

Sandy

disneyfan2008
Posts: 5346
Joined: Oct 2010

i DID NOT HAVE CHEMO SO I HAVE NO EXPERIENCE OR ADVICE-I CHUCKLED ABOUT THE A/C. I AM SURE YOU WILL GET GREAT ADVICE HERE.

 

DENISE

desertgirl947's picture
desertgirl947
Posts: 426
Joined: Oct 2012

Last year I was in your spot.  I opted for a buzz cut when I knew my hair was fleeing my head.  The wig I had was adjustable on the inside.  So, I did all right.  More often than not, I wore one of my bucket hats when out but no covering when I was in the house.  I am not a scarf or turban person, although initially, until even my bristles were gone, I'd wear a terry cloth turban to bed.  I knew I would put that on my head in the house if the temp got rather cool.

I think the PLUS of shaving or buzzing the head when the hair starts to go is that it does not seem so terrible.  I am not sure I would have liked pulling/combing/brushing clumps out.  The week I did that, my husband and I were going out of town for the weekend to a family gathering in another state, and I did not want to be leaving hair everywhere.  As it was, it was shedding on my recliner, my pillow, and my tops.  UGH!

As to very windy days -- I went back to work (school) half days before I finished radiation.  My hair was not quite back enough for me to feel comfy without my, wig around the kids.  On the really windy days I stuck in my school bag one of my hats and switched to it when I left the building.  Probably this does not match your scenarios, but this is what I did.  As I said, often I just used a hat when I was out.  Only for church, going out to eat, and for work did I wear the wig.

e

coco2008's picture
coco2008
Posts: 406
Joined: May 2013

Your idea of wearing a hat and changing to the wig once I  got inside is great.  We sometimes have 30-45 MPH winds.  I have tight hats that I think would hold up to that.  And they are cheaper than the wig.

If not I can amuse people while I chase my head cover down the street.  After all, everyone needs a good giggle.  (Yes, I have a twisted sense of humor.)

Sandy

CypressCynthia's picture
CypressCynthia
Posts: 3964
Joined: Oct 2009

I agree that shaving your head is better.  I did not do it with the first chemo. Being young and no message boards back then, I just let it fall out.  It drove me crazy and was depressing.

This round (26 years later), I shaved it when the clumps started to fall.  It felt empowering somehow.  I picked out hats and scarves beforehand, but waited for a wig until my hair was gone.  Much better idea!

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